1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for 'CFS'.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 11th November 2024 is here.
    Dismiss Notice
  3. Welcome! Read the Core Purpose and Values of our forum.
    Dismiss Notice

Michael Sharpe skewered by @JohntheJack on Twitter

Discussion in 'General ME/CFS news' started by Indigophoton, Apr 9, 2018.

Tags:
Page 81 of 114
  1. Amw66

    Amw66 Senior Member (Voting Rights)

    Messages:
    6,771
    We may be at the Blackadder stage - a pencil up each nostril, a hankie on head and saying " squibble" multiple times ....
     
    Amw66, Jun 21, 2018
    #1601
    alktipping, Invisible Woman, Missense and 5 others like this.
  2. Forbin

    Forbin Senior Member (Voting Rights)

    Messages:
    1,581
    Location:
    USA
    The one that begins with "First, do no harm."
     
    Forbin, Jun 21, 2018
    #1602
    Mike Dean, MEMarge, janice and 17 others like this.
  3. Daisymay

    Daisymay Senior Member (Voting Rights)

    Messages:
    686
    Pantomine at Christmas, following on after a season of Strictly Come Dancing which he'd fit in whilst being an MP, and throw in Emeritus Professor at Oxford, and he can follow on as President of RSM after Wessely and then in his dotage finish his career in the Lords.
     
    Daisymay, Jun 21, 2018
    #1603
    alktipping, Invisible Woman, Deleted member 102 and 2 others like this.
  4. Sasha

    Sasha Senior Member (Voting Rights)

    Messages:
    4,016
    Location:
    UK
    Sasha, Jun 21, 2018
    #1604
    alktipping, JaimeS, arewenearlythereyet and 12 others like this.
  5. Adrian

    Adrian Administrator Staff Member

    Messages:
    6,563
    Location:
    UK
    A huge thanks to @Keela Too for making sure all the tweets are captured. Here are documents capturing all of them.

    I've put up the rest now:
    Posts 1-100
    https://www.s4me.info/docs/SharpeTweets1.pdf
    Posts 100-200
    https://www.s4me.info/docs/SharpeTweets2.pdf
    Posts 200-300
    https://www.s4me.info/docs/SharpeTweets3.pdf
    Posts 300-400
    https://www.s4me.info/docs/SharpeTweets4.pdf
    Posts 400-500
    https://www.s4me.info/docs/SharpeTweets5.pdf
    Posts 500-600
    https://www.s4me.info/docs/SharpeTweets6.pdf
    Posts 600-700
    https://www.s4me.info/docs/SharpeTweets7.pdf
    Posts 700-800
    https://www.s4me.info/docs/SharpeTweets8.pdf
    Posts 800-1000
    https://www.s4me.info/docs/SharpeTweets9.pdf
    Posts 1000-1100
    https://www.s4me.info/docs/SharpeTweets11.pdf
    Posts 1100-1200
    https://www.s4me.info/docs/SharpeTweets12.pdf
    Posts 1200-1300
    https://www.s4me.info/docs/SharpeTweets13.pdf
    Posts 1300-1400
    https://www.s4me.info/docs/SharpeTweets14.pdf
    Posts 1400-1500
    https://www.s4me.info/docs/SharpeTweets15.pdf
     
    Adrian, Jun 21, 2018
    #1605
    janice, Luther Blissett, alktipping and 24 others like this.
  6. Sean

    Sean Moderator Staff Member

    Messages:
    8,076
    Location:
    Australia
    Nice work, @Sly Saint.

    Catch them out with their own words, the ones they voluntarily placed on the formal record multiple times, over decades.

    Collate and cross-reference, and ye shall be rewarded.

    ---------------------

    Absolutely. Their refusal to stop the use of PACE to justify it condemns them more then anything else.

    Did wonders for my mood, I can tell you. A thing of beauty, to quote a knight of the realm. :D

    Perversely, that may help us in the longer term, as millions of patients across the board revolt. Neither they, the medical profession, nor the government can ignore that level of howling outrage and failure for long. Though they will try.

    ---------------------

    One reason I think that PACE effectively disproved the underlying model (causal assumptions) is that everything was done to favour a positive result for CBT & GET, yet it still failed.

    It really wasn't a hard test to pass.
     
    Sean, Jun 21, 2018
    #1606
    janice, alktipping, Invisible Woman and 9 others like this.
  7. LightHurtsME

    LightHurtsME Senior Member (Voting Rights)

    Messages:
    122
    Location:
    UK
    Absolutely and you articulated it very well. Likes x 1000
     
    LightHurtsME, Jun 21, 2018
    #1607
    alktipping, Inara, Woolie and 4 others like this.
  8. Amw66

    Amw66 Senior Member (Voting Rights)

    Messages:
    6,771
    Especially this
     
    Amw66, Jun 21, 2018
    #1608
    MEMarge, janice, alktipping and 4 others like this.
  9. Sean

    Sean Moderator Staff Member

    Messages:
    8,076
    Location:
    Australia
    Oh, he knows. Just can't face the consequences of admitting it.
     
    Sean, Jun 21, 2018
    #1609
    alktipping, JaimeS, Invisible Woman and 4 others like this.
  10. Sean

    Sean Moderator Staff Member

    Messages:
    8,076
    Location:
    Australia
    Exactly. He is playing games with words, and not playing very well either.

    Only communists, perverts, and those in denial of mental illness dress to left. All right thinking people dress to, well, the right.

    Another is that the more seriously ill are more likely to join self-help groups.

    Yet another is that those who have failed to get any help from doctors are more likely to seek help elsewhere, like from, I dunno, other patients who have had similar experiences.

    But did they test any of these assumptions or inferences? Nope. Just like they failed for decades to be bothered testing the rather critical one about deconditioning.

    And an increase in desperation?

    "We have a number needed to treat; I think it's about seven to get a clinically important treatment benefit with CBT and GET. What this trial isn't able to answer is how much better are these treatments than really not having very much treatment at all."

    http://www.abc.net.au/radionational...son-of-treatments-for-chronic-fatigue/2993296

    Leaving aside the fact that an NNT of 7 is not good, especially for such a poor effect size ("modest", in the authors' view), you'd think that they would test that bolded bit before recommending CBT & GET be rolled out.

    I am feeling more positive and forward looking about our prospects than I ever have. (Though the MUS and IAPT shyte being rolled out across the UK is very disturbing stuff. :eek: )
     
    Sean, Jun 21, 2018
    #1610
    janice, alktipping, JaimeS and 8 others like this.
  11. Hoopoe

    Hoopoe Senior Member (Voting Rights)

    Messages:
    5,433
    The destruction of PACE is an extremely positive step in my view.
     
    Hoopoe, Jun 21, 2018
    #1611
    MEMarge, janice, alktipping and 20 others like this.
  12. Liv aka Mrs Sowester

    Liv aka Mrs Sowester Senior Member (Voting Rights)

    Messages:
    1,201
    Definitely, which is why MS is desperately trying to stop everyone talking about it.
     
    Liv aka Mrs Sowester, Jun 21, 2018
    #1612
    MEMarge, janice, Milo and 15 others like this.
  13. WillowJ

    WillowJ Senior Member (Voting Rights)

    Messages:
    676
    I saw someone use it again and so found a link.
    https://threadreaderapp.com/
     
    WillowJ, Jun 21, 2018
    #1613
    alktipping, Invisible Woman and Chezboo like this.
  14. Guest 102

    Guest 102 Guest

    I'm thinking PACE in BOOTS - he could be the trickster cat. Jesus, you have to laugh - I am finding his charm offensive on Twitter really disturbing. He is so transparent. Dislocating though to see a medical professional spend last few months on Twitter insulting everyone involved w ME advocacy/exposing PACE and now opening his arms to understand us.
     
    Guest 102, Jun 21, 2018
    #1614
    janice, alktipping, Daisymay and 7 others like this.
  15. Arnie Pye

    Arnie Pye Senior Member (Voting Rights)

    Messages:
    6,422
    Location:
    UK
    Since I'm female, like most normal females I dress in the bedroom. ;)
     
    Arnie Pye, Jun 21, 2018
    #1615
    alktipping, Hutan, JaimeS and 8 others like this.
  16. large donner

    large donner Guest

    Messages:
    1,214
    Pain is not a measure of tissue damage? Really!!

    Pain is a protective device, yes correct, but there's countless reasons for someone needing that protective device not just one airy fairy notion that pain should be magically explained away to people without an actual diagnosis or why that protective device is saying, "pain be aware differential diagnosis required".

    I just got a check gearbox warning on my car dash, it could be a simple fluid top up required or a fucked gear box that needs the whole thing replacing. Perhaps ill just top it up with fluid and be done with it?

    No surprise though that Sharpe liked that tweet.
     
    large donner, Jun 21, 2018
    #1616
    alktipping, Woolie, Daisymay and 11 others like this.
  17. Inara

    Inara Senior Member (Voting Rights)

    Messages:
    2,734
    There are also fairies and dwarves, I tell you. In Ireland for instance. Some people will bury you alive if you don't respect the fairies and dwarves...(Ok, most people will admit it's a myth...

    Didn't look at the cited papers in detail, but a feeling tells me it's okay to save the energy.
     
    Inara, Jun 21, 2018
    #1617
    MEMarge, alktipping, Woolie and 4 others like this.
  18. Trish

    Trish Moderator Staff Member

    Messages:
    55,455
    Location:
    UK
    I've found the solution. I stay in my nightie.
     
    Trish, Jun 21, 2018
    #1618
    MEMarge, alktipping, Hutan and 13 others like this.
  19. Inara

    Inara Senior Member (Voting Rights)

    Messages:
    2,734
    I think people with ME have to be positive or else they have no chance of surviving this illness.
     
    Inara, Jun 21, 2018
    #1619
    MEMarge, alktipping, Woolie and 9 others like this.
  20. large donner

    large donner Guest

    Messages:
    1,214
    I think the people on twitter he keeps referring to as activists are extremely positive and are the kinds or people who have got us to the verge of positive changes despite 3 decades of being targeted by the BPS crowd and their negativity.

    I think being on the end of their positivity is leading to negative consequences for him. That's his real problem.
     
    large donner, Jun 21, 2018
    #1620
    janice, alktipping, Hutan and 14 others like this.
Page 81 of 114

Share This Page