Monitoring app - Visible - a platform "designed for any invisible illness that benefits from resting and pacing - including ME/CFS & Long Covid."

I am doubting the accuracy of HRV as a predictor but then I am also doubting I’m getting good readings since I switched the the arm band. That’s why I’m wondering how he would vet the accuracy.

 

Nice idea, but still needs washing every day!

 

https://www.youtube.com/live/zWOLxwwp75I?si=MtFr1MeQC7bSLoGY

i’m not sure if I did this correctly. Interview with Harry Leeming. He talks about on going changes to the software and how research data is being used. Interesting to me is how they are finding HRV is working differently for people with chronic illness then they expected.

 

I think it’s great they are looking at publishing imminently. One in the eye for BPS and a massive step forward for patients.

 

Last time I checked, Visible was just a fancy HR/HRV app with no evidence of efficacy. Only thing that appears to have changed is that they accrued testimonials, presumably for marketing.

 

It has the self-reported activity tags, daily symptoms by severity and the monthly FUNCAP.
They’re at the point they can predict HRV days ahead. David Putrino is using the data for a research project.

 

Good question. What is the data on the use of HR/HRV monitoring for pacing?

 

https://workwellfoundation.org/wp-content/uploads/2023/01/HRM-Factsheet.pdf

 

I’ve seen a lot of guidelines and listened to various people talking about using monitoring to help with pacing and I have been and will continue to use the Visible app but my question is has there been data showing that this kind of monitoring does in fact increase the effectiveness of pacing? Cause I am long past the ability to simply stop and recover or trade activities and this does seem to be low risk as an attempted intervention.

 

Pacing has always been about resting. This is just a scientific way to see what your body counts as rest or exertion.

 

I was thinking of it as a way to figure out that magical baseline and learn ways to stay under it.

 

That’s what you do - reduce your overexertion. Stay under your pace points.