News about Long Covid including its relationship to ME/CFS 2020 to 2021

so the world comes to an end via twaddle and not a fiery explosion .

 

Sudden severe chronic illness, disability is a shock. In response, a person may cling to unrealistic hopes. I know I did.

 

Bit ironic with the trope over how the certain anguish that we will never get better is reinforcing the... whatever it is supposed to be doing. I never once thought that. The shock takes years to take hold, frankly, the realization that help simply isn't on the way. The hope is always there, crushed every time but still holding on. Took me nearly 10 years to really accept that this is all there is and that this failure is a conscious choice that people will fight to preserve at all costs.

I expected long haulers to be sort of outraged at the pathetic attempts with CBT/GET but forgot how long it takes people to get the hint of how truly dysfunctional medicine is when facing complex problems. It really takes being hurt by it to believe it. Then of course that frustration turns into anger and tone policing goes a long way silencing people who have every right to be outraged.

But of course by then the % of those still affected is so much lower that it's easy to point at the huge % who did recover as the "norm". Complex problems suck, nobody gets them at first and simple but wrong solutions always occupy the space for a while.

 

But can the twaddle be GRADED ?

 

I think it was medically unexplained symptoms, not medically unexplained covids! but yeah, she misquoted the number by more than tripling it--it was 3% of all NHS expenditures--if you even believe how the study did the calculations, which was questionable.

 

Why were people referring to her recently? What's her position on all this? It would seem that Pope is the anti-Garner, since she doesn't seem able to wish her symptoms away

 

That's laughable.

I recall seeing a tweet from a woman with long-covid who, after waiting months for her appointment at a specialist LC clinic, was told that her symptoms were all due to "anxiety and depression" and was then promptly discharged.

If that's standard practice, the NHS should be able to churn through the backlog of these pesky patients within a couple of months.

 

That's why these clinics are genuinely excellent. That woman was sorted so quickly. And she never came back, so she's obviously delighted with the results!

 

I don't think they are singing Kumbaya anymore.

or the joke about someone going up to heaven and seeing a large wall and asking 'who's behind that'? to be told
'oh that's the [religious group], they think they're the only ones up here'.

 

Saw the same from a German patient that's bedbound.

Made me think of old Western movies where everything (the Saloon, the town hall etc.) are just a 2D coulisse/movie set. Nice from the front but nothing behind it.

 

That's weird: I'd never heard that until tonight on the Dave Allen programme

 

Patient perspective: Young person with long COVID after mild disease

https://www.thelancet.com/journals/lanres/article/PIIS2213-2600(21)00123-5/fulltext

 

Maybe this should be on the Monbiot thread, but I believe dr. Pope's reply belongs here. Haven't seen that argument before, that "Covid-PVF" doesn't belong under the Long Covid umbrella.

 

The Lancet: Long-haul COVID: heed the lessons from other infection-triggered illnesses by John N Aucott and Alison W Rebman

ETA: Both authors are from:
The Lyme Disease Research Center, Division of Rheumatology, Department of Medicine, Johns Hopkins University School of Medicine, Baltimore

 

Well, at least George Monbiot has a platform, and is unlikely to be willing to keep quiet about being gaslighted!

 

https://twitter.com/user/status/1368518815445827587


So just like in ME/CFS.

 

ME/CFS is what we have when the symptoms go on for years and years without resolving which is exactly what she is saying longcovid is.

Exactly the way we have known for years that some people have an extended recovery from an infection but then return to normal whereas others stay sick.