News about Long Covid including its relationship to ME/CFS 2020 to 2021

Annals of Internal Medicine is a high impact US-based general medical journal

https://www.acpjournals.org/doi/full/10.7326/M21-1043

 

It still hasn't become old, hearing a physician who has joined the club complaining that physicians haven't a clue...

 

This is the only reason something may actually be done in the end. Rarely is "a taste of their own medicine" meant literally but nothing beats ending up on the wrong side of institutional bullying to see the light.


Strain on NHS as tens of thousands of staff suffer long Covid

https://www.theguardian.com/society/2021/apr/03/nhs-feels-strain-tens-thousands-staff-long-covid

Institutional bullying stems from the culture in which it festers.

Ah, well, problem solved, then. Nevermind it's all good, they have mental health support for their chronic illness so they'll be back to work chip-chop, if they want to.

 

Although those 'secondary gains' from their imaginary illness will prove to be too enticing for many of them.

 

The American Academy of Pediatrics posted a summary of a "virtual town hall meeting" on long covid on the website. (Sorry if this was already mentioned, in that case I missed it.) This is the article: https://www.aappublications.org/news/2021/03/23/townhall03-18-21

Peter Rowe was among the participants of the online discussion. The article only quoted part of what he said:

You can also find the link to the video in the article (it's 1 hour long). I didn't watch it in its entirety, just stopped at certain points to check for ME/CFS related parts. But at the very end he talks about how ME/CFS is not behavioral and it needs to be educated better and even adult patients, some of them seriously disabled suffer alone without proper care and this is a shame, we have brought this on ourselves. More specialists and a coordinated effort are needed because ME/CFS is the number one reason for prolonged absence from school and no one does anything about it.

 

https://twitter.com/user/status/1378828991251931138

 

http://annalsofrscb.ro/index.php/journal/article/download/2390/2009

 

(Ireland)

 

Opinion piece in the New York Times: The Mysterious Aftermath of Infections by Roxanne Khamsi.
It's paywalled, unfortunately.

Spotted it on twitter as it was shared by journalist Amy Maxmen who wrote a great article for Nature a few years ago about medical research into ME. She says she received pushback from psychiatrists for that article.

 

To the surprise of no one:

Failure doesn't repeat itself, failures repeat themselves.

 

When I got ill and asked my GP about "CFS", he said that diagnosis wouldnt get me anywhere.

It does because then at least I know what not to do.

Same thing happens with endometriosis, even though there is treatment.

Doctors seem to underestimate what it means for a patient to not have a diagnosis. Not only treatmentwise, but also psychologically, socially, being believed by family and work.

They seem to think giving you the diagnosis of a complicated illness means to doom you when in fact it can be a relief.

 

Long Covid isn’t as unique as we thought

https://www.vox.com/22298751/long-term-side-effects-covid-19-hauler-symptoms

 

Live in 5 hours from now here

https://www.youtube.com/watch?v=QsBbame6C44

 

This is the other side of the psychosomatic quack theories. The proponents have convinced doctors that patients will develop an illness if they hear about it so giving them a name to latch onto will make them worse. Horror, they may even join a support group and doom themselves to a lifetime of illness.

 

https://twitter.com/user/status/1380222413762400258