News about Long Covid including its relationship to ME/CFS 2020 to 2021

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Thank you @Robert 1973. :thumbup:

Great letter! I think you were right to keep it clear & simple. It's such an absurd claim that it makes a great hook to tempt people to look further into it. Especially, now that so many medics are experiencing the patient perspective for themselves.

Robert 1973 said:
This letter in today’s FT took me all day to write and I suffered for the exertion but I hope it was worth it.
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Rest up. Hope you recover soon.
 
BioTech Life Sciences Initiates New Study of Anti-Aging Formulas in Helping COVID-19 'Long-Haulers' and Those Suffering With Chronic Fatigue Syndrome

LONDON, Aug. 5, 2020 /PRNewswire/ -- BioTech Life Sciences (BioTech – https://btl.science) recently announced it was studying the effects of its proprietary formulas on long-term patient symptoms related to COVID-19 Post-Viral Fatigue (long-haulers) and chronic fatigue syndrome (C.F.S.).

The findings will be a part of a larger research study undertaken by the company, and is currently calling for voluntary participants; especially those who suffer from myalgic encephalomyelitis (M.E.), chronic fatigue syndrome, or Post-Viral Fatigue.

BioTech specializes in anti-aging, stem cell production and neuroscience, and has discovered a clear link between COVID-19 long-haulers, C.F.S., and the therapeutic benefits of certain anti-aging compounds.

The Link Between Post-Viral Fatigue and M.E./C.F.S.

According to the Cleveland Clinic and a recent Atlantic article, patients who survive COVID-19 typically recover in roughly two weeks' time. But there are a growing number of patients – as many as 20% – who inexplicably suffer with the disease for months, with longer lasting complications. These so called long-haulers report symptoms including fevers, chest pain, shortness of breath and debilitating fatigue.

Researchers are not sure why these patients experience COVID-19 for prolonged periods. Theories range from reinfection, to viral reactivation (similar to herpes), to a whole new syndrome initiated by COVID-19 infection. Patients are increasingly describing symptoms that are similar to the conditions of M.E./C.F.S, but more research is needed.

"What we're all seeing is a large, unexplained increase in people who are not making a full recovery from COVID-19," said Nicole Wong, lead researcher for BioTech. "We have already found several links between these long-haulers and M.E./C.F.S. patients. First, both groups seem to suffer from their cellular batteries – mitochondria – not producing enough energy. SARS-CoV-2 hijacks and destroys mitochondria, essentially eating their contents to replicate, and inflammatory cytokines such as TNF-alpha and IL-6, also reduce ATP-energy production."
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https://www.biospace.com/article/re...hose-suffering-with-chronic-fatigue-syndrome/
 
Brain fog, phantom smells and tinnitus: my experience as a Covid 'long hauler'

https://www.theguardian.com/comment...tinnitus-my-experience-as-a-covid-long-hauler

My first symptom was that I couldn’t read a text message. It wasn’t about anything complex – just trying to arrange a video call – but it was a few sentences longer than normal, and I couldn’t wrap my head around it. It was the end of the night so I thought I was tired, but an hour later I took my temperature and realized I had a fever. I had been isolating for 11 days at that point; the only place I had been was the grocery store.
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Those were some of my earlier severe symptoms. I lost the ability to read for several weeks, could not make sense of anything. Somehow that was considered "normal", or not of any concern anyway.
It has been hard for people to believe us. The focus had been on the respiratory side-effects and the death toll for so long that the narrative of long haulers seems new and jarring. Many long haulers are diagnosed with anxiety or written off completely; this is especially true for women, trans people and people of color. Doctors are firing their patients and asking them not to return. Spouses don’t believe that their partners can be sick for so long, and end the relationship. Family and friends have been distant and alienating.
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Doctors in TV series when faced with complex cases: we will do everything we can to help you even if it costs us everything.

Doctors in real life when faced with complex cases: you're fired.
Four things would help the current state of long haulers. First, Long Covid patients need access to daily care, daily check-ins, and post-Covid clinics even if they are recovering from home, and especially if they are isolated. Second, studies on Covid patients need to include long haulers, not just hospitalized patients, who have vastly different disease progressions. Third, long haulers need accommodation in relation to extended sick leave and a slow return to employment, particularly because the primary advice to long haulers is that a pacing regimen is required to prevent worsening symptoms. And finally, diagnostic tests need to be deprioritized quickly and cannot be a barrier to care, belief and recognition from doctors, employers and insurance companies; given the frequency of negative tests and continued inadequacy of available testing, a clinical diagnosis must be treated as equally or more valid.
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Decades of controversy over this, with an endless stream of lies and sabotage. Trust the damn patients, our lives literally depend on it, yours don't.
 
Since March, we have published a series of in-depth interviews with John Swartzberg, MD, about different aspects of the coronavirus pandemic. In our most recent sit-down (via a safely distanced phone call), we asked about the emerging reports of people continuing to experience poor health after an acute episode of Covid-19, a phenomenon that’s being referred to as “post-Covid syndrome.” What lingering symptoms are patients commonly experiencing? Is this normal after a viral illness? What causes it? Here is an edited version of our conversation from late July.
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https://www.berkeleywellness.com/he...s-disease/article/and-now-post-covid-syndrome
 
Heather Hogan: The Soft Butch That Couldn't (Or: I Got COVID-19 in March and Never Got Better) | Autostraddle

https://www.autostraddle.com/the-so...i-got-covid-19-in-march-and-never-got-better/
I was already in a hospital the first time I realized I needed a wheelchair. A sprawling full city-block of a hospital in midtown Manhattan with a lobby that looks strikingly similar to the cavernous Ministry of Magic atrium. My neurosurgeon had sent me in for an emergency MRI three months after I’d been diagnosed with COVID-19.

Death or a two-week flu were the only options for people who contracted COVID, according to the Centers for Disease Control, and I wasn’t dead so surely lingering coronavirus wasn’t the thing that was causing my body to go so berserk. Racing heart, palpitations, stroke-high blood pressure, chest pain, weak legs, fatigue that felt like my body was made of lead, nausea, loss of appetite, extreme weight loss, shortness of breath, brain fog that caused me to forget how to form sentences, bladder dysfunction, and creeping numbness and tingling in my feet and legs.
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Code: 
https://twitter.com/theheatherhogan/status/1291028415072567297



Code: 
https://twitter.com/trishgreenhalgh/status/1291075637172736007
 
Healthy Women: COVID-19 "Long-Haulers" Are Finally Being Heard

Unfortunately, if history repeats itself, a number of the patients may end up with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS), a devastating chronic neuroimmune disease that disables up to 2.5 million Americans and 17 to 20 million people worldwide — approximately 75% of whom are women.

"Looking at the history of SARS (severe acute respiratory syndrome) and MERS (Middle East respiratory syndrome), the other coronaviruses, there was a high rate of people who ended up remaining sick for a long time," said Linda Tannenbaum, founder and CEO/president of Open Medicine Foundation.
 
MSEsperanza said:
Heather Hogan: The Soft Butch That Couldn't (Or: I Got COVID-19 in March and Never Got Better) | Autostraddle

https://www.autostraddle.com/the-so...i-got-covid-19-in-march-and-never-got-better/




Code: 
https://twitter.com/theheatherhogan/status/1291028415072567297



Code: 
https://twitter.com/trishgreenhalgh/status/1291075637172736007
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Shocking that something that's been the norm for decades is happening. Greenhalgh talks a good talk sometimes but is very much part of the problem, siding with the BPS brigade against us when we say the exact same things and seemingly unconcerned with the consequences of systemic illness denial despite having experienced it herself. This medicine-by-exemption thing is really, really bad. All patients are equal but some are more equal than others.
 
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Kalliope said:
Healthy Women: COVID-19 "Long-Haulers" Are Finally Being Heard

Unfortunately, if history repeats itself, a number of the patients may end up with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS), a devastating chronic neuroimmune disease that disables up to 2.5 million Americans and 17 to 20 million people worldwide — approximately 75% of whom are women.

"Looking at the history of SARS (severe acute respiratory syndrome) and MERS (Middle East respiratory syndrome), the other coronaviruses, there was a high rate of people who ended up remaining sick for a long time," said Linda Tannenbaum, founder and CEO/president of Open Medicine Foundation.
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see
https://www.s4me.info/threads/healt...ve-chronic-fatigue-syndrome.6461/#post-278513
 
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