News about Long Covid including its relationship to ME/CFS 2020 to 2021

Status
Not open for further replies.
Barely worth mentioning
https://ca.style.yahoo.com/5-signs-caught-chronic-coronavirus-110614616.html


5 Signs You Caught Chronic Coronavirus
Michael Martin
Thu, October 29, 2020, 11:06 AM GMT·4 mins read




1
Fatigue


45c242f37223ed78ef9783d0282cee03

According to the Long Hauler Symptom Survey, 100% of COVID patients participating reported prolonged fatigue. Doctors have observed this for months, and it's a phenomenon that Dr. Anthony Fauci, the nation's top infectious disease expert, has likened to chronic fatigue syndrome, also known as myalgic encephalomyelitis. "We're starting to see more and more people who apparently recover from the actual viral part of it, and then weeks later, they feel weak, they feel tired, they feel sluggish, they feel short of breath," said Fauci in August. "It's very disturbing, because if this is true for a lot of people, then just recovering from this may not be okay. You may have weeks where you feel not exactly correct."
Click to expand...
 
Psychology Today - The Long-Hauler Tragedy - More Frightening than Halloween Nightmares
by Leonard A. Jason, PhD. and Vernita Perkins, PhD.

What are the lessons we can learn from these patients who have experienced decades of marginalization and victimization by our health care system? Similar to those with myalgic encephalomyelitis, many COVID-19 long-haulers are ready to or in the process of falling off a cliff, into a barren landscape filled with undermining messages invalidating their illness experience. They want to be heard, understood, they want our compassion, but instead they receive unmerciful rejection from a society that values abundant energy and productivity.
 
Last edited:
how surprising a journalist who puts in the hard work and tells it how it actually is without the horrendous need to spin it into something positive .everything he says is common knowledge the reasons for our current mess have always been there . we live in a world where parasitism has gone to extremes exploitation of everything for short term profit for a minority will lead to the worst possible outcomes for the majority .
 
Kalliope said:
News Wise - Nova Southeastern University Researchers Receive $4 Million From CDC for 'COVID Long Hauler's' Study

“With our long-standing research into ME/Chronic Fatigue Syndrome, we’ve been selected by the Centers for Disease Control and Prevention to begin researching these symptoms in COVID-19 patients,” said Nancy Klimas, M.D. “Because the symptoms are so similar – joint and muscle pain, severe fatigue and memory and cognitive issues – to Chronic Fatigue Syndrome, NSU is uniquely positioned to study this emerging development in the pandemic.”
Click to expand...
 
this ace-bradykinin thing (not that i understand it) has so many explanations and similarities.
very specific.

wondering, if its those "hydrogels" seen with covid, is the same liquid that fills up lungs on high altitude

there may be more triggers for this mechanism, not just a (covid)-(virus).
... covid may hijack the ace2-receptor and increase this bradykin-axis indirectly
... helminths may do via tissue injury... directly
 
Last edited:
Well 'brain fog' is also a prominent common symptom for so many other health issues too. I don't experience 'brain fog'. I started experiencing cognitive issues 10 years into the illness from exercising that continuously caused PEM.

I hope this isn't going to become a focus piece for 'ME similarities'.
 
Dolphin said:
Has this talk by Dr Nancy Klimas been posted? I haven't watched it myself so far
Click to expand...

In this, Dr Klimas is recommending that people with (post?-)Covid take various supplements including 'baby' enteric-coated aspirin of about 80mg daily to prevent strokes because of risk of blood clots.

Is this going on in post-Covid patients in the UK, whether they still feel ill or not?

Despite strenous efforts to protect myself, I came down with something viral a month ago and haven't recovered. I don't think I'm on an upward trajectory. I didn't have classic Covid symptoms but my GP nevertheless thinks it may have been Covid, possibly because it's lasted so long and is very little better. It's too late for a PCR test and I can't get an antibody test. She's given me no medical advice and offered no tests apart from the antibody test. I can't safely get to the surgery for one, and the finger-prick ones you can do at home from private companies seem to have sold out.

But should I and others still not better after a few weeks be doing something? Are there tests we should be getting, such as whether our blood might clot?

Wondering what you think about Dr Klimas's claims about inflammation etc., @Jonathan Edwards?
 
Sasha said:
But should I and others still not better after a few weeks be doing something? Are there tests we should be getting, such as whether our blood might clot?

Wondering what you think about Dr Klimas's claims about inflammation etc., @Jonathan Edwards?
Click to expand...

I have not looked at Dr Klimas's presentation. I don't think we have evidence for any specific action at present. Aspirin has pros and cons. My understanding is that the stroke risks in the acute Covid illness, not Long Covid. Aspirin has been recommended for people under 65 as a guard against clotting problems in general but it may not be best to use it in the context of some otherwise unexplained medical problem like Long Covid.
 
Sasha said:
But should I and others still not better after a few weeks be doing something? Are there tests we should be getting, such as whether our blood might clot?
Click to expand...

I understand your concerns. I think I may have been exposed to COVID early on, but I think a few weeks is still a very short period of time to be concerned?

I've had viral infections that lasted for several months, including the one I'm currently dealing with. I'm very slowly improving, and the intense vertigo is starting to settle down. I've never taken any treatments for viral infections and eventually recovered from them, but that's only my experience.
 
Sasha said:
Wondering what you think about Dr Klimas's claims about inflammation etc., @Jonathan Edwards?
Click to expand...

I watched about 10minutes. I don't think there is any good evidence for any of the things she is saying I am afraid.
I don't think ME has anything to do with inflammation or oxidative stress. The cytokines are all normal and no inflammation shows on tests or imaging. Oxidative stress has never made much sense to me as a clinically relevant concept.
 
During incremental exercise pwME oxidative stress enhanced earlier and antioxidant response was delayed. Don't know if this applies to other health conditions or if it's a normal response, but this was the case for me.
 
We've seen glimpses of this but it would be important to check the material. Either it's wrong and incompetent or a complete reversal of position from Chew-Graham's entire career. Either would be important to check.


A Keele University Professor has co-authored a new training module to help GPs understand the long-term effects of Covid-19 on patients.

https://www.keele.ac.uk/discover/news/2020/october/long-covid/gp-training-module.php

The module has been co-written by Professor Carolyn Chew-Graham, Professor of General Practice Research at Keele University, and forms part of the RCGP’s “Recovery from Covid” course, which encourages doctors to reflect on how they can support patients in times of uncertain evidence.

Professor Chew-Graham said: “As a GP, I became aware of patients presenting in late spring 2020 with symptoms such as chest pain, shortness of breath, fatigue, headache, rashes and ‘brain fog’. I then conducted a qualitative study, interviewing people with long-Covid recruited using social media. I worked with colleagues at RCGP and with a patient with long-COVID to develop the learning module.

“It is vital that GPs recognise this condition and offer support, investigation and ongoing care.”
Click to expand...
Unfortunately because of people like Chew-Graham, GPs cannot do that, as they have been trained to explicitly dismiss this type of illness with high prejudice. In fact they mostly find the very suggestion of this type of illness laughable, as in many actually literally laugh it off as silly nonsense. Oops.
 
Status
Not open for further replies.
Back
Top Bottom