News about Long Covid including its relationship to ME/CFS 2020 to 2021

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rvallee said:



Clearly we must get everyone out of hospitals, people keep dying in there! They're death traps!

It really needs to be emphasized how completely dysfunctional things are when common sense guesses from complete amateurs are usually much closer to reality than experts' advice. It's completely abnormal, simply does not exist in any other profession. Great plan to build an alternative model of health care based on the complete absence of common sense, science and critical thinking. Genius!
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Opinion piece in the journal of the Swedish Medical Association, by ME doctor/researcher (bps) Indre Bileviciute-Ljungar and Kristian Borg, also a rehab specialist.

"Everyone affected by post-covid should be offered multimodal specialised rehabilitation. We also call for specific investments in rehabilitation research." ME is mentioned.

Alla patienter med postcovid bör erbjudas multimodal rehabilitering
https://lakartidningen.se/opinion/d...covid-bor-erbjudas-multimodal-rehabilitering/

Google Translate, English
 
Only high risk people in high risk settings will qualify for publicly funded PCR tests here. Otherwise, if you have symptoms and are fully vaccinated, assume you have it and isolate for 5 days

Canada’s new guidelines are going to make it impossible for people who become disabled from LC to get benefits and thrown into the psychosomatic bin.
 
I've been noticing a growing trend in long haulers and it's how returning to normal activity, especially exercise, is by far what most attribute as the cause of their chronic illness, so many wonder if they hadn't done that whether they would still be ill. It doesn't mean that it's 100% correct but it's become so dominant over time it's impossible to ignore. Especially as it's consistent with what with know of ME.

This is especially important as there is still a trend in health care services to not just continue with the exercise rehabilitation, but of trying to target it as soon as possible, which if evidence suggests is the exact worst thing to do.

The trend has been noticeable for a while but is really growing as people share their experience, especially the cycles of relapses many have gone through.
 
rvallee said:
I've been noticing a growing trend in long haulers and it's how returning to normal activity, especially exercise, is by far what most attribute as the cause of their chronic illness, so many wonder if they hadn't done that whether they would still be ill.
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I didn't exercise or push myself for 7-8 years during PVFS, when I started feeling better I exercised and got PEM. So resting, taking it easy didn't prevent ME. I could have rested for 20 more years and my guess is that the minute I went over I would experience delayed PEM.
 
When did Fauci come to hold the view that all ME/CFS was always a post viral syndrome? In the 1980s and 90s he always gave the impession that he thought it was a psychiatric problem when he supported Straus.

EDIT It reminds one that only the future is certain. The past is always changing.
 
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not a very good article in the FT,; no mention of ME, and it says
"Women, people with obesity, and those who were on invasive mechanical ventilation are all more likely to develop long Covid.".
Long Covid: why do some people have symptoms months after infection?

Long Covid is another public health crisis hidden inside the pandemic, medical experts have warned, with estimates of the patients suffering from the debilitating disease stretching to more than 100m worldwide.

Scientists are in the early stages of hunting for treatments that could ease symptoms, target the still unclear causes, and get people healthy enough to return to work.

A meta-analysis of studies by Penn State researchers found more than half of the 236m people who had Covid-19 when the paper was published — which has since risen to 275m — had symptoms lasting more than six months.
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Sir Stephen Holgate, University of Southampton professor and co-founder of Synairgen, a company that is creating Covid-19 antiviral medication, said MRI scans had also shown inflamed organs.

“The body turns on itself as a result of all this inflammation during the Covid period and attacks its own tissue.”

There may be a genetic predisposition that determines who is most likely to suffer this kind of immune response, so researchers are conducting large genome-wide association studies that try to locate genes that patients have in common.

Another hypothesis is that the virus attacks the cells’ energy reserves, mitochondria. Sub-groups could be suffering for different reasons — or both hypotheses could be true at once.
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Bill Hinshaw, chief executive of Boston-based biotech Axcella Therapeutics, said there were few products in the pipeline for long Covid — and even fewer targeting muscle fatigue and weakness. Axcella and Oxford university are developing a drug to reduce inflammation and restore mitochondrial function. They hope to have clinical trial data in the middle of this year.

“You have a certain amount of energy in the battery,” said Hinshaw. “The virus comes in and takes over the battery and . . . damages it so the battery can no longer hold the charge properly.”
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https://www.ft.com/content/ed89cad2-6f82-44f0-b01d-c4490e4a7372
 
The Guardian - Opinion piece Could micro clots help explain the mystery of long Covid? by professor Resia Pretorius

quotes:

A recent study in my lab revealed that there is significant microclot formation in the blood of both acute Covid-19 and long Covid patients. With healthy physiology, clots may form (for instance, when you cut yourself). However, the body breaks down the clots efficiently by a process called fibrinolysis.

We found high levels of various inflammatory molecules trapped in the persistent microclots, including clotting proteins like plasminogen, fibrinogen and Von Willebrand factor (VWF), and also Alpha-2 antiplasmin (a molecule that prevents the breakdown of microclots).

...

We urgently need to invest in more research and clinical trials to better understand and further confirm the link between abnormal blood clotting, hypoxia and vascular dysfunction in patients with long Covid. Even those without long Covid could benefit from such research, as symptoms noted in long Covid patients show many similarities to those seen in chronic and viral-related illnesses including myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) – another disease that has been dismissed as “psychological” for decades. Just because we have not yet identified a biomarker for long Covid does not mean biomarkers do not exist. We just need to look harder.
 
The forum software 'helpfully' automagically transforms some web addresses, including links to Medium articles. If anybody needs a copy-and-paste URL for the article, it is
Code: 
https://medium.com/@saralaskowski/covid-wasnt-my-first-rodeo-e04c5753c4d2

Otherwise just click on the title of the article in the image in Kalliope's post immediately above this post.
 
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