Chandelier
Senior Member (Voting Rights)
Easily, I only post selected news that offer new insights as all those reports about individuals with LC become quite repetitive.
News from Germany
- Thread starter TiredSam
- Start date
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- Tags
- germany me/cfs news regional thread
as a German I can confirm it’s more like a couple every day -if you count smaller media and newspaper as well.
it does it’s part for acceptance and recognition- but neurologists like Deutsche Gesellschaft für Neurologie still won’t listen and there are still people that have never really heard of ME/CFS.
Chandelier
Senior Member (Voting Rights)
From Twitter, machine translation:
You have ME and are highly positive and resilient, so people say, “It can’t be that bad—perhaps you are also trying to take advantage of some of the benefits of the illness.”
You are psychologically suffering as a result of the situation, so people say, “You see, it really is psychological after all.”
You object to therapies that could leave you bedridden, so you are labelled aggressive.
You inform healthcare professionals about the current state of the scientific evidence, so you are said to have a fundamentally negative and critical attitude.
You die as a result of harmful treatment, and people say, “No one could have known any of this since 1969—it is all completely new.”
This is how stigma works.
But this is also how manipulation works.
#MECFS is one of the few fields in which psychopaths, narcissists, and sadists can still torture people to death without having to fear the slightest consequences.