A news article/radio segment (2 minutes, in Swedish), based on the Swedish Covid Association's press release: Ny mätning: Så många svenskar uppger att de har postcovid https://www.sverigesradio.se/artikel/ny-matning-sa-manga-svenskar-uppger-att-de-har-postcovid
Job ad from Karolinska, looking for an överläkare (consultant, director, head physician, senior physician?) for the post-infectious diseases clinic. Överläkare till Mottagningen för postinfektiösa sjukdomar https://karolinska.weselect.com/p/61107-overlakare-till-mottagningen-for-postinfektiosa-sjukdomar (I note several words I don't like, such as "complex", "medical psychology", "behavioural" etc. Psychiatrists are included in the specialities that are welcome to apply. No post-infectious experience required. Hmm... ) Google Translate, English.
Does this mean the Infectious Diseases sort under Behavioural Medicine? Or that this particular position does? Based on the qualifications, it seems like an oncologist could sort under Behavioural Medicine. Which could imply that Infectious Disease does as well. This website from Karolinska has an English definition of Behavioural Medicine: So it seems like they have an entire BPS section! I wonder what isn’t included..
It might be that their research position is at the BPS section. I found this ‘research group’ for Behaviour Medicine which is a part of the Institute for Clinical Neuroscience at Karolinska headed by Rikard Wicksell - a psychiatrist with a thing for ACT. He was involved in Jonsjö’s research on e.g. Sickness Behaviour and ACT: https://www.s4me.info/threads/the-role-of-low-grade-inflammation-in-me-cfs-chronic-fatigue-syndrome-associations-with-symptoms-2019-jonsjö-et-al.13063/ https://www.s4me.info/threads/patients-with-me-cfs-and-chronic-pain-report-similar-level-of-sickness-behavior-as-individuals-injected-with-bacterial-endotoxin-2019-jonsjö-et-al.12938/ https://www.s4me.info/threads/sweden-acceptance-commitment-therapy-for-me-cfs-–-a-feasibility-study-2019-jonsjö-et-al.4684/
(This is big news, so I made a separate thread for it. It's about exhaustion disorder/utmattningssyndrom, Elin Lindsäter of the Oslo Consortium, and more.) Big news from Sweden: Fatigue diagnosis to be disappeared https://www.s4me.info/threads/big-news-from-sweden-fatigue-diagnosis-to-be-disappeared.43190/
News article + short radio segment (1 min). 300 000 personer kan ha postcovid – Martin från Molkom en av alla drabbade https://www.svt.se/nyheter/lokalt/varmland/300-000-personer-kan-ha-postcovid-jag-kunde-inte-ens-ga
The Nordic covid associations in collaboration recently organised a webinar, as part of Long Covid Awareness Month, about the consequences of covid-19 and long covid. A recording is now available to watch online for free. Subtitles available in many languages, including English. Konsekvensene av Covid-19 og long covid https://covidforeningen.no/Nyheter/ID/40/Opptak-av-Webinar-Konsekvensene-av-Covid-19-og-long-covid
The Swedish Covid Association recently held a webinar about long covid and societal norms - the ideal individual, stigma and hope. The recording is now available, as well as a written summary (in Swedish). Postcovid och samhällets normer – idealindividen, stigma och hopp https://covidforeningen.se/lunchweb...allets-normer-idealindividen-stigma-och-hopp/
A new long covid and ME/CFS clinic is set to open in Skåne, Sweden. Ny mottagning ska hjälpa patienter med postcovid https://www.sydsvenskan.se/2025-03-18/ny-mottagning-ska-hjalpa-patienter-med-postcovid-Rg6Ey/ Ny mottagning ska hjälpa patienter med postcovid https://www.hd.se/2025-03-18/ny-mottagning-ska-hjalpa-patienter-med-postcovid/
Rehabilitate them, obviously. Then they will be further rehabilitated. Which can only mean they will be rehabilitated. It's so simple when you can just invent your own reality. "Imagine a world"-based medicine is just like magic, in that it doesn't work and is mostly trickery.
(Not ME specific, but relevant to pwME especially severe and very severe pwME.) Opinion piece about how important communication aids are for some disabled people, and how difficult they are to get because the people in power think they are too expensive. Neka inte människor med funktionsnedsättningar rätten att kommunicera https://www.altinget.se/artikel/nek...funktionsnedsattningar-ratten-att-kommunicera "Don't deny people with disabilities the right to communicate"
From last year, but while looking for something else I came across this opinion piece written by a psychologist who got LC, and at the time of writing she is 8 months post-infection and 80% back at work. Talking about her own (and the rest of healthcare's) negative preconceptions of "fatiguing illness". Though sadly also build up under why this is so by writing a lot about the importance of hope, how saying symptoms are "long"(-lasting) not "chronic" can be helpful in the healing journey, supporting GET and rehab despite not learning anything by going to rehab, and agrees with the doctor that told her people that get long covid are in their busiest part of life and going through a lot of stress. Long covid og utmattelse – ulik grad av stigma Long covid and fatigue – varying degrees of stigma
Ugh, I don’t believe she has a good understanding of LC or ME/CFS at all. It looks a lot like what I thought of both diagnoses after around one year, and I was wrong about pretty much everything. It seems to me like she’s had some kind of PVF based on how she says that she didn’t fit some of the CCC-ME/CFS criteria and how she’s almost recovered at the 1 year mark. She says ‘I might be wrong’ and ‘this might be a coincidence’ many times, but she doesn’t spend any time talking about the alternative interpretations and the implication of being wrong if she actually is wrong. Which is a shame - it would probably have taught her and the readers a lot more than this speculative anecdote does.
The Swedish government is assigning the Swedish Agency for Health and Care Services Analysis to map knowledge management in other countries for diseases or conditions "where knowledge is weak". The aim is "to improve care for these patients in Sweden". They have to present their final report to the Ministry of Social Affairs by 30 April 2026. Press release: Ny kartläggning ska stärka vården för patienter med svårdiagnostiserade tillstånd https://www.regeringen.se/pressmedd...-patienter-med-svardiagnostiserade-tillstand/ Uppdrag till Myndigheten för vård- och omsorgsanalys att kartlägga kunskapsstyrningen i andra länder gällande sjukdomar eller tillstånd med svagt kunskapsläge https://www.regeringen.se/regerings...domar-eller-tillstand-med-svagt-kunskapslage/ This new assigment is in addition to the already ongoing project to produce a new evidence review for post-covid. Forum thread here: https://www.s4me.info/threads/swede...nce-reviews-for-post-covid.42487/#post-585255
Thank you @mango for sharing these news. This sounds promising and I hope NICE's guidelines will play an important part.
Press release by the Swedish Covid Association: Regeringen vill kartlägga postcovidvård i andra länder https://covidforeningen.se/regeringen-vill-kartlagga-postcovidvard-i-andra-lander/
I fear they are just going to perpetuate the bad practices from elsewhere. If you want to learn from others, it might be a good idea to ensure that they know what they are doing. Industry standard doesn’t make it scientifically sound.
Almost no ME/CFS patients return to work "The help we have provided to patients through the welfare and healthcare systems has had little rehabilitative effect," says a researcher. https://www.sciencenorway.no/chroni...ost-no-me/cfs-patients-return-to-work/2482762 A new Norwegian study shows that very few ME/CFS patients return to the workforce after being diagnosed. The findings have sparked debate among both researchers and patients about how ME/CFS is handled in the healthcare system and the workplace. ... "As long as there's no effective treatment, many remain chronically ill. The study suggests that the help patients have received through the welfare and healthcare systems has had little rehabilitative effect," says Tronstad, adding: "It's possible that better facilitation would have yielded somewhat more positive results, but we also need new forms of treatment." No, it isn't. Quite beating that damn dead horse, it's basically nanodust at this point. The study: https://www.s4me.info/threads/what-...-encephalomyelitis-2024-kielland-et-al.41193/.
