Andy
Retired committee member
Finally received email confirmation of this:
Dear Colleague,
NICE guideline: Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and management (Oct 2020)
https://www.nice.org.uk/guidance/indevelopment/gid-ng10091
Guideline scoping workshop
on Friday 25 May 2018 at 10:00 – 13:00 with refreshments available from 09.30
To be held at Avonmouth House, 6 Avonmouth Street, London, SE1 6NX
I am inviting you to a workshop that will help us develop the scope of this guideline. We are contacting you because your organisation is registered as a stakeholder. The scope defines what the guideline will and will not cover, and we would like to hear your views on this.
After the workshop, a formal consultation on the draft scope will begin on Thursday 21 June 2018 and end on Thursday 19 July 2018. Your organisation will be invited to comment again at this stage.
We want to hear as wide a range of views from as many organisations as possible, so we only have space for 2 persons from each organisation.
If your organisation represents people using services, carers, or a community affected by the guideline topic, the person attending should have a good understanding of the topic from a patient, carer or community point of view.
If someone from your organisation would like to attend, please register by Friday 13 April 2018 by emailing the attached form to CFSME@nice.org.uk. If you have any special requirements (for example, if you need a hearing loop or wheelchair access) please use the form to notify us in advance. We unfortunately are not able to provide access to anyone who wishes to attend this workshop remotely or via teleconference.
At least 3 weeks before the workshop, we will confirm whether we have been able to allocate a place to you. We will also send an agenda, the draft scope, venue map and further information on how to use the expenses system. Information about the Committee recruitment process will be given at the workshop.
IMPORTANT: to ensure that your expenses claim is directed to the correct team at NICE, please submit the claim for this meeting using the reason code ‘CCP Stakeholder Scoping Workshop’. Please note that because workshops are optional meetings that always start after 10.00 a.m., we will only cover accommodation costs in exceptional circumstances. These must be agreed with us before the meeting and should be in line with our travel and subsistence policy (attached). Flights must be agreed with NICE before booking. We will not cover locum costs or loss of earnings.
NOTE: If necessary, please disclose any past or current, direct or indirect links to, or funding from, the tobacco industry on the attached form. Please be advised that should you have anything to declare, this will be included as part of the workshop papers on the day.
We hope that someone from your organisation will be able to attend the workshop.
NICE guideline: Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and management (Oct 2020)
https://www.nice.org.uk/guidance/indevelopment/gid-ng10091
Guideline scoping workshop
on Friday 25 May 2018 at 10:00 – 13:00 with refreshments available from 09.30
To be held at Avonmouth House, 6 Avonmouth Street, London, SE1 6NX
I am inviting you to a workshop that will help us develop the scope of this guideline. We are contacting you because your organisation is registered as a stakeholder. The scope defines what the guideline will and will not cover, and we would like to hear your views on this.
After the workshop, a formal consultation on the draft scope will begin on Thursday 21 June 2018 and end on Thursday 19 July 2018. Your organisation will be invited to comment again at this stage.
We want to hear as wide a range of views from as many organisations as possible, so we only have space for 2 persons from each organisation.
If your organisation represents people using services, carers, or a community affected by the guideline topic, the person attending should have a good understanding of the topic from a patient, carer or community point of view.
If someone from your organisation would like to attend, please register by Friday 13 April 2018 by emailing the attached form to CFSME@nice.org.uk. If you have any special requirements (for example, if you need a hearing loop or wheelchair access) please use the form to notify us in advance. We unfortunately are not able to provide access to anyone who wishes to attend this workshop remotely or via teleconference.
At least 3 weeks before the workshop, we will confirm whether we have been able to allocate a place to you. We will also send an agenda, the draft scope, venue map and further information on how to use the expenses system. Information about the Committee recruitment process will be given at the workshop.
IMPORTANT: to ensure that your expenses claim is directed to the correct team at NICE, please submit the claim for this meeting using the reason code ‘CCP Stakeholder Scoping Workshop’. Please note that because workshops are optional meetings that always start after 10.00 a.m., we will only cover accommodation costs in exceptional circumstances. These must be agreed with us before the meeting and should be in line with our travel and subsistence policy (attached). Flights must be agreed with NICE before booking. We will not cover locum costs or loss of earnings.
NOTE: If necessary, please disclose any past or current, direct or indirect links to, or funding from, the tobacco industry on the attached form. Please be advised that should you have anything to declare, this will be included as part of the workshop papers on the day.
We hope that someone from your organisation will be able to attend the workshop.
