Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

Not surprised...

https://twitter.com/user/status/1353974475608510465

Code:

https://twitter.com/trishgreenhalgh/status/1353974475608510465

 

"time for an RCT"?

How exactly are you gonna do that

 

Ask some experts in Norway?

Expertise in doing a feasbility study an RCT on Music Threapy could also help?

 

https://twitter.com/user/status/1353974475608510465


She also limited comments on that tweet to people she follows. She knows that if she didn't, she would get comments explaining how we already had many RCTs in ME/CFS that showed it doesn't lead to recovery.

 

It could be that some long covid patients will benefit from GET but it seems unlikely that it will be the subset with an illness resembling ME/CFS which is what Paul Garner seems to have had (according to himself).

If GET is to be tested in LC, the people involved need to have a good understanding of the history of GET in ME/CFS so that mistakes aren't repeated. Trisha Greenhalg so far has come across as not the right person for this (according to herself, she doesn't know much about ME/CFS and thinks PACE is good science).

 

Hahahah!

Well they did the right thing in Norway now, and understood an RCT is impossible, and made a rigged stepped wedge design study with a 6 month follow up and no objective endpoints. What can go wrong when the course holder has a gigantic economical conflict of interest, participants are being hand picked by her, and while supressing their experience of symptoms are going to report their functioning level in subjective questionnaires. Does not sound rigged at all does it?! Oh and by the way - state funded, and ethically approved as good science by the regional ethics commitee! Welcome to the upside down world of good science, where the best scientists manufacture results for an easy payday!

 

It's good to see that all that money spent in the 50's in researching mind control wasn't wasted. Remind me. What was the early career of one of the founders of NLP.

If you come across a Manchurian candidate, let us know.

 

https://twitter.com/user/status/1353869597267517440

 

OH FOR FUCK'S SAKE

I thought we had gained him to our side. Oh my god. For fuck's sake.

 

This is a massive blow, to all long covid patients and me/cfs patients.

 

Apparently Paul Garner's sister has ME. I wonder how she feels about his claim that you can recover if you just apply yourself and think happy thoughts?

With Trisha Greenhalgh clearly endorsing this nonsense, the irony is that the Lightning Process might be included as a recommended treatment in the Long Covid NICE guideline yet explicitly ruled out in the ME/CFS guideline.

 

That's what I thought too!

 

I'm really gutted, this is such a massive blow.

 

From Jen Brea's tweet:

There's a right way?

 

I'm not so sure. These people were never going to be a force for progress.

I think maybe this time Garner and Greenhalgh have said so many ill-considered things that the absurdity of it all will emerge. I certainly think that there is going to be a lot of dollies thrown out of the Long Covid pram over this. I am still thinking about doing a reply but have some other things I need to do today first.

 

Exactly the point made here:

https://blogs.bmj.com/bmj/2021/01/25/paul-garner-on-his-recovery-from-long-covid/#comment-5241787266