News about Long Covid including its relationship to ME/CFS 2020 to 2021

https://twitter.com/user/status/1476482698751397897

 

I added tweet threads about the preprint of the autopsy study that found evidence of persistent Covid infection in various areas of the body in last week's thread that linked directly to that study. Amy Proal tweeted out a lengthy thread about it, and then she followed up with this:

https://twitter.com/user/status/1474139384165376005

 

Don't know if this has been linked previously.
You need an account to access

https://www.economist.com/science-and-technology/2021/04/29/researchers-are-closing-in-on-long-covid

 

Opinion piece in the journal of the Swedish Medical Association, by ME doctor/researcher (bps) Indre Bileviciute-Ljungar and Kristian Borg, also a rehab specialist.

"Everyone affected by post-covid should be offered multimodal specialised rehabilitation. We also call for specific investments in rehabilitation research." ME is mentioned.

Alla patienter med postcovid bör erbjudas multimodal rehabilitering
https://lakartidningen.se/opinion/d...covid-bor-erbjudas-multimodal-rehabilitering/

Google Translate, English

 

Only high risk people in high risk settings will qualify for publicly funded PCR tests here. Otherwise, if you have symptoms and are fully vaccinated, assume you have it and isolate for 5 days

Canada’s new guidelines are going to make it impossible for people who become disabled from LC to get benefits and thrown into the psychosomatic bin.

 

I've been noticing a growing trend in long haulers and it's how returning to normal activity, especially exercise, is by far what most attribute as the cause of their chronic illness, so many wonder if they hadn't done that whether they would still be ill. It doesn't mean that it's 100% correct but it's become so dominant over time it's impossible to ignore. Especially as it's consistent with what with know of ME.

This is especially important as there is still a trend in health care services to not just continue with the exercise rehabilitation, but of trying to target it as soon as possible, which if evidence suggests is the exact worst thing to do.

The trend has been noticeable for a while but is really growing as people share their experience, especially the cycles of relapses many have gone through.

 

I didn't exercise or push myself for 7-8 years during PVFS, when I started feeling better I exercised and got PEM. So resting, taking it easy didn't prevent ME. I could have rested for 20 more years and my guess is that the minute I went over I would experience delayed PEM.

 

https://twitter.com/user/status/1477081015310950402

https://twitter.com/user/status/1477081879320805377

 

When did Fauci come to hold the view that all ME/CFS was always a post viral syndrome? In the 1980s and 90s he always gave the impession that he thought it was a psychiatric problem when he supported Straus.

EDIT It reminds one that only the future is certain. The past is always changing.

 

https://twitter.com/user/status/1469224782382174211

 

Interesting thread
https://twitter.com/user/status/1477727474003894274

 

Another interesting thread with some data links re LC

https://twitter.com/user/status/1478058813873799169

 

not a very good article in the FT,; no mention of ME, and it says
"Women, people with obesity, and those who were on invasive mechanical ventilation are all more likely to develop long Covid.".
Long Covid: why do some people have symptoms months after infection?

https://www.ft.com/content/ed89cad2-6f82-44f0-b01d-c4490e4a7372

 

https://www.emoryhealthcare.org/your-fantastic-mind/season-three/episode-segments/ep2-segment-1.html

Last night, Georgia Public Broadcasting aired an episode of "Your Fantastic Mind" on Long COVID. At the 11-minute mark, they highlighted the connection between Long COVID and other diseases, specifically mentioning ME.

 

ME Action highlight of Medium article

 

The Guardian - Opinion piece Could micro clots help explain the mystery of long Covid? by professor Resia Pretorius

quotes:

A recent study in my lab revealed that there is significant microclot formation in the blood of both acute Covid-19 and long Covid patients. With healthy physiology, clots may form (for instance, when you cut yourself). However, the body breaks down the clots efficiently by a process called fibrinolysis.

We found high levels of various inflammatory molecules trapped in the persistent microclots, including clotting proteins like plasminogen, fibrinogen and Von Willebrand factor (VWF), and also Alpha-2 antiplasmin (a molecule that prevents the breakdown of microclots).

...

We urgently need to invest in more research and clinical trials to better understand and further confirm the link between abnormal blood clotting, hypoxia and vascular dysfunction in patients with long Covid. Even those without long Covid could benefit from such research, as symptoms noted in long Covid patients show many similarities to those seen in chronic and viral-related illnesses including myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) – another disease that has been dismissed as “psychological” for decades. Just because we have not yet identified a biomarker for long Covid does not mean biomarkers do not exist. We just need to look harder.

 

Could you give the link to the Medium article, please. I can't find it.

 

Here it is. Worth reading:

 

The forum software 'helpfully' automagically transforms some web addresses, including links to Medium articles. If anybody needs a copy-and-paste URL for the article, it is

Code:

https://medium.com/@saralaskowski/covid-wasnt-my-first-rodeo-e04c5753c4d2

Otherwise just click on the title of the article in the image in Kalliope's post immediately above this post.

 

Thank you, @Kalliope and @Andy