1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for 'CFS'.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 4th November 2024 is here.
    Dismiss Notice
  3. Welcome! Read the Core Purpose and Values of our forum.
    Dismiss Notice

UK 21 June 2018 | 3-hour ME debate in Westminster Hall, secured by Carol Monaghan

Discussion in 'General ME/CFS news' started by Sasha, Jun 6, 2018.

Tags:
Page 15 of 22
  1. Binkie4

    Binkie4 Senior Member (Voting Rights)

    Messages:
    2,581
    Ed Davey ( Libdem) was there and made the first speech after Carol's. A strong, strategic speech which hopefully will give the Dept of Health pause for thought. He was interested enough to rearrange his schedule to be there and to be briefed the day before.
     
    Binkie4, Jun 21, 2018
    #281
    It's M.E. Linda, MEMarge, MeSci and 16 others like this.
  2. Binkie4

    Binkie4 Senior Member (Voting Rights)

    Messages:
    2,581
    Thanks @strategist. An excellent strategic speech.
     
    Binkie4, Jun 21, 2018
    #282
    alktipping, MEMarge, Simone and 4 others like this.
  3. Trish

    Trish Moderator Staff Member

    Messages:
    55,414
    Location:
    UK
    Thank you @Binkie4 for briefing him so well.
     
    Trish, Jun 21, 2018
    #283
    It's M.E. Linda, alktipping, MEMarge and 18 others like this.
  4. Esther12

    Esther12 Senior Member (Voting Rights)

    Messages:
    4,393
    Fun quote from Monaghan here:

    Also, does anyone have a copy of this briefing from Sharpe? If so I'd love a copy, via pm if it's not meant to be public yet.
     
    Esther12, Jun 21, 2018
    #284
    It's M.E. Linda, alktipping, MEMarge and 17 others like this.
  5. Stewart

    Stewart Senior Member (Voting Rights)

    Messages:
    238
    I wonder how long Sharpe spent putting together that briefing? Am I right in thinking this was this the only time during the debate that it was referred to? Either way, it doesn't seem as though it was time well spent...
     
    Stewart, Jun 21, 2018
    #285
    alktipping, MEMarge, Simone and 10 others like this.
  6. Esther12

    Esther12 Senior Member (Voting Rights)

    Messages:
    4,393
    Especially if it's another written source of misrepresentations we can pick apart!
     
    Esther12, Jun 21, 2018
    #286
    alktipping, MEMarge, mango and 10 others like this.
  7. dave30th

    dave30th Senior Member (Voting Rights)

    Messages:
    2,447
    Yes I would also love to see the briefing.
     
    dave30th, Jun 21, 2018
    #287
    alktipping, MEMarge, mango and 14 others like this.
  8. Daisymay

    Daisymay Senior Member (Voting Rights)

    Messages:
    686
    Quite so and I wonder, did anyone else from PACE submit a briefing, or NICE, MRC?

    Are briefings made public does anyone know?
     
    Daisymay, Jun 21, 2018
    #288
    alktipping, MEMarge, Simone and 6 others like this.
  9. chicaguapa

    chicaguapa Senior Member (Voting Rights)

    Messages:
    107
    That's my daughter. I've been in regular contact with Steve Brine as my MP and keeping him up to date with how she's doing. He's actually been very responsive and interested. I emailed him earlier this week saying I hoped he watched Unrest by now and that I'd be watching today!
     
    chicaguapa, Jun 21, 2018
    #289
    It's M.E. Linda, alktipping, MEMarge and 35 others like this.
  10. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    14,851
    Location:
    UK West Midlands
    oh thats good presumably you can feed back to him that we'd appreciate him being a bit more sceptical about the lines to take he's been given from DoH/NICE/MRC/Medical establishment generally
     
    NelliePledge, Jun 21, 2018
    #290
    It's M.E. Linda, alktipping, MEMarge and 6 others like this.
  11. Barry

    Barry Senior Member (Voting Rights)

    Messages:
    8,420
    Positively vexatious I would say.
     
    Barry, Jun 21, 2018
    #291
    MEMarge, Simone, adambeyoncelowe and 1 other person like this.
  12. Barry

    Barry Senior Member (Voting Rights)

    Messages:
    8,420
    And who written to. Really shows to everyone how little connection he has with the real world.
     
    Barry, Jun 21, 2018
    #292
    MEMarge, EzzieD, adambeyoncelowe and 2 others like this.
  13. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    14,851
    Location:
    UK West Midlands
    I'd just like to say thanks to all the folks on the forum who have contributed to today particularly those who directly lobbied and briefed MPs who spoke in the debate - good to see directly the impact advocacy can have.

    I haven't got anywhere with my MP and she is going to be a bit of a challenge but it has inspired me. I will be phoning her constituency office to get a meeting booked trying my best to influence her to attend when (hopefully) the Commons Chamber debate comes along in a few months time.
     
    NelliePledge, Jun 22, 2018
    #293
    It's M.E. Linda, alktipping, MEMarge and 23 others like this.
  14. Barry

    Barry Senior Member (Voting Rights)

    Messages:
    8,420
    'Shame' is exactly the right word, even though the person is probably genetically incapable of such an emotion.
     
    Barry, Jun 22, 2018
    #294
    alktipping, MEMarge, MeSci and 6 others like this.
  15. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    14,851
    Location:
    UK West Midlands
    i wouldnt allow him the let out of blaming it on his genes
     
    NelliePledge, Jun 22, 2018
    #295
    alktipping, MEMarge, MeSci and 9 others like this.
  16. Barry

    Barry Senior Member (Voting Rights)

    Messages:
    8,420
    That's a neat little double play there by CM :). On the one hand playing a well known little strategy to not name him out loud, but I suspect on the other had offering him a side swipe, telling him he is very unmemorable ... not good for his ego. And he thought he know all about word play. I think he may have some lessons to learn.

    Edit: Realise I got this out of context.
     
    Last edited: Jun 22, 2018
    Barry, Jun 22, 2018
    #296
    alktipping, MEMarge, NelliePledge and 1 other person like this.
  17. Barry

    Barry Senior Member (Voting Rights)

    Messages:
    8,420
    Not quite my point :)
     
    Barry, Jun 22, 2018
    #297
    alktipping, MEMarge and adambeyoncelowe like this.
  18. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    14,851
    Location:
    UK West Midlands
    this was one of her SNP colleague - CM did name him a couple of times
     
    NelliePledge, Jun 22, 2018
    #298
    alktipping, MEMarge, adambeyoncelowe and 1 other person like this.
  19. Barry

    Barry Senior Member (Voting Rights)

    Messages:
    8,420
    Reminds me of a very rude Bette Midler joke, about a man with a very long tongue.
     
    Barry, Jun 22, 2018
    #299
    alktipping and adambeyoncelowe like this.
  20. Sean

    Sean Moderator Staff Member

    Messages:
    8,064
    Location:
    Australia
    I can feel a crowd funding coming on for the first case.
     
    Sean, Jun 22, 2018
    #300
    alktipping, mango, Dolphin and 8 others like this.
Page 15 of 22

Share This Page