UK 21 June 2018 | 3-hour ME debate in Westminster Hall, secured by Carol Monaghan

I think I went to the last ME debate in Westminster Hall in 2011. There are rows of seats at the side just through the door from memory for visitors. Problem is that large groups of students or tourists visiting the building can swoop in and take them all.

https://hansard.parliament.uk/Commons/2011-02-02/debates/11020245000001/MyalgicEncephalomyelitis

 

I hope that removal of CBT/GET from the guidelines before 2020 is one of them, or at the very least a warning about exercise and stopping use of the CFS 'directive' version of CBT (as Emma described very well in the Scottish Parliament.....manipulative I think was how she put it).

Did Carol Monaghan get the breakdown of the Ministers statement from the last Westminster Hall debate? Would be good if she were able to come back on any of usual non-answers the Govt come up with.

 

https://www.s4me.info/threads/analysis-of-minister’s-response-in-westminster-hall-pace-debate.2674/

 

According to the official calendar, https://calendar.parliament.uk/calendar/Commons/All/2018/6/21/Daily, the debate is under both Carol's and Nicky Morgan's name.

 

The parliament tv site now has a link for the live video of the debate on thursday,

https://parliamentlive.tv/Event/Index/3d63c39d-18f3-4cd7-8509-c91785dced98

 

My impression is that this is a good format for the next stage of awareness raising in Parliament. A debate in the House itself would have been under pressure of time and would have been hijacked by party political issues. Moreover, since there would be nothing to vote on in practical terms there would be sense that 'the House has debated it - let's move on'. In contrast, with a Westminster Hall debate there is an opportunity to air a lot of relevant material and time to expect meaningful responses and all this will go into Parliamentary records. But there will be no sense that the topic has had its turn and can be put to bed. The material raised in WH can be quoted in health related debates from there on.

An interesting aspect of this is that Labour and Conservative parties are equally to blame for the mess we are in. That is presumably why it is being raised by a Scottish National MP and supported by a major Liberal Democrat (Cable) although he was in government during the critical period too.

 

I have been in correspondence with Nicky Morgan and don't think she can be there. She has a royal visit to her constituency that day but "will be there in spirit." Is obviously still supporting the issue.
Anyone know who will be supporting Carol in the debate?

My MP, Ed Davey, has a Chair commitment but will see what can be done for part of it. No firm commitment but a lot of support. I am at sea (ha,ha) so may be unable to respond.

 

Just to ask again- does anyone know who will be supporting Carol in the debate? It's 3 hours so there is a lot more time for other MPs to speak. Not sure what the format is. Anyone?
She is deputy Chair of Forward for ME now. Is there support for her in the Commons from there?
She had taken on a big issue and I hope we can support her all we can.
Has anyone any info about this? I am sorry that Nicky Morgan is unable to be there.

ETA: replace from for 'for' in para 2. Second time, second sentence.

 

https://twitter.com/user/status/1008701111593816065

 

https://twitter.com/user/status/1009029357053063168

 

I have the impression that Carol Monaghan is doing a good job trying to assimilate a lot of information in a short space of time about ME alongside her other responsibilities but I wonder if she would be helped by a quiet think with someone knowledgeable to really tease out with some clarity what the priority issues are

 

Yes, I did offer but got no reply.

Pressing Hunt for funding may backfire because Sir Simon will pop up and say yes we are greatly increasing funding for treatment with the new injection of cash from the Prime Minister - with IAPT. Hunt will be able to say that all is in hand, Carol, we already thought of it.

 

Oh jeez, u can't be up to these guys. I have butterflies in my stomach about Thursday...I won't be watching but I will be lighting a candle and hoping to God that it goes well.

 

I think I may be able to go on Thursday. I need to find out the procedure and how early to get there.

 

@Sunshine3 I'm feeling a bit tense about it too

 

I was with Charles last week and I think he said he was going. He reckoned on getting there about an hour before. I think I will email him.

 

shame Carol can't wear a little earpiece ( like in spy films ) so you can prompt her from afar.