UK 21 June 2018 | 3-hour ME debate in Westminster Hall, secured by Carol Monaghan

I've contacted my MPs parliamentary secretary to ask if he's going and copied in CM's piece from Politics Today.

Plus contacted his senior advisor with the above plus estimate of how many constituents could be affected and the economic cost to UK annually. Fingers crossed.

 

How do you find out who your MPs parliamentary secretary and senior advisor are and their contact details?

 

I had a face to face conversation with them earlier in the year to try to raise their awareness about my experiences over the years from NHS and DWP.

Unfortunately I've heard today that neither are available to attend.

 

Just bumping this post, as it gives the direct link to the TV coverage.

 

Hashtag for today is #MEdebate (only MEAssociation uses #MEDebateParliament).

Twitterstream: https://twitter.com/hashtag/medebate?f=tweets&vertical=default&src=hash

 

https://twitter.com/user/status/1009690527057563648

 

https://twitter.com/user/status/1009697948643491840

 

https://twitter.com/user/status/1009467465053720576

 

This link works for me

https://parliamentlive.tv/Event/Index/3d63c39d-18f3-4cd7-8509-c91785dced98

 

In the Jubilee café waiting for the debate upstairs. Managed to get here.

 

Not that I'm following him (!) but Charles Shepherd is a few feet away from me so he's here.

 

We're being allowed in at 13:25. We're queuing outside the room.

 

I won't write too much during the session (because you'll no doubt be watching it online) but might chip in with observations here and there.

 

Think I'll be too nervous to watch live, so will wait for the transcript. Really hope it's more of a hammering of PACE (and the failure to respond properly to critics) than an exercise in sympathetic but vague 'awareness raising'.

 

Monaghan has just entered.

 

Going in.

 

Sat down. I'm in a white top. Meeting starts.

 

Not getting video

ETA - appears to be a chrome issue - IE gives video