United Kingdom: Action for ME (AfME) news

From Facebook

Recording now available!

We’re pleased to announce that the recording for the ‘You’re not imagining it: Long Covid, Me and invisible illnesses in South Asian communities’ online event is now available!

This event was held in July, supported by Action for ME, and organised by South Asian Heritage Trust. It was hosted by BBC radio broadcaster Asma Yonnus with expert clinicians Dr Binita Kane and Dr Sanjay Gupta.

Watch the recording now



#MECFS #pwME #MyalgicE #MyalgicEncephalomyelitis #LongCovid
 
Trish said:
Has anyone watched this?
Click to expand...
It looks like they did a good job with the video description:

​
Invisible illnesses can be some of the hardest conditions to live with—not only because of the symptoms, but because so many people struggle to be believed.​
In this South Asian Heritage Month webinar, host Asma Younus is joined by leading Long COVID specialists *Dr Binita Kane* and *Dr Sanjay Gupta* to explore Long COVID, ME/CFS, POTS and other invisible illnesses, with a particular focus on the experiences of South Asian communities.Together they discuss:​
  • What Long COVID actually is—and why it's more than one condition.
  • Why many patients receive normal test results despite experiencing debilitating symptoms.
  • The health inequalities affecting South Asian communities.
  • The importance of listening to patients and recognising invisible illness.
  • Practical advice on diagnosis, symptom management and where to seek support.
  • The latest thinking on treatment, recovery and holistic care.

Whether you're living with persistent symptoms, supporting a loved one, or simply want to better understand these conditions, this conversation offers expert insight, practical guidance and, above all, reassurance that your experiences matter.​
Nobody should have to fight to be believed.​
​

 
From Facebook

The recording of Action for ME’s Annual General Meeting (AGM) 2026 is now available!

Our AGM took place online on Tuesday 22 September and was led by our Chief Executive, Sonya Chowdhury.

Watch the recording on our YouTube channel to hear about our activities and achievements over the past year, and learn more about our priorities for the future



Our 2025-2026 Annual Report is also now available on our website

Action for ME Annual Report 2025-2026

www.actionforme.org.uk www.actionforme.org.uk

#MECFS #pwME #MyalgicE #MyalgicEncephalomyelitis
 
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