United Kingdom: ME Association news

[JellyBabyKid]

MEA Research: Recruiting: The Rosetta Stone study at Imperial College, London - The ME Association

Find out how you can take part in the Rosetta Stone study into ME/CFS and Long Covid, funded by the ME Association at Imperial College London

meassociation.org.uk

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MEA Research: Recruiting: The Rosetta Stone study at Imperial College, London​

October 27, 2026​

Professor Danny Altmann and Professor Rosemary Boyton have been given the green light to begin work on the largest biomedical study into ME/CFS and Long Covid that the ME Association or any other UK charity has commissioned. ​

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The £1.2M project, which is expected to last until the end of October 2028, aims to apply advanced molecular analysis to matched cohorts of people with lived experience of ME/CFS and Long Covid,comparing their results to each other and to those of healthy controls.​

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This is disappointing; shame samples can't be provided to a local GP practice;

Must be able to visit Imperial College in West London in person

DecodeME saliva sample and bowel cancer screening are both done by post.

 

[bobbler]

The MEA board tenure wrangling is still going on

MEA Motion June 2026

UPDATE: 10 November 2026 We submitted our trustee tenure motion to the MEA in June 2026 for consideration at the next available General Meeting, whether AGM or EGM, whichever came soonest. We have repeatedly sought clarification from the MEA about the relevant submission deadlines and any format...

motionmea.wordpress.com

It’s just shifty looking isn’t it

They’ve had a whole year that’s enough excused and they avoided the same way at last years despite them putting a motion in

I guess these rules on trustees and agm are not things they actually want used in the MEA?

Or is there by now any legitimate reason left for heel dragging other than those there wanting more time to sneak whatever they’ve been signing off thru to its end ass seemed to be the case with Riley.

Did they even get a new trustee from eg this groups list of suggestions on board when he left thereby leaving a space for fresh blood?

 

[Kitty]

This is disappointing; shame samples can't be provided to a local GP practice

Maybe there's some technical reason, e.g. that the blood draws have to be processed in the same lab or within the same time frame?

I might be able to do it, but it'd be expensive because London's access facilities are so rubbish and I'd need an overnight stay. I don't feel inclined to spend £300 and give up activities I value for at least a week and possibly two, when there might be enough people who live in London and/or don't need wheelchair access.