United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

Discussion in 'News from organisations' started by Sly Saint, Jan 26, 2020.

  1. Sean

    Sean Moderator Staff Member

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    Which is why I give them no more quarter. There is literally no excuse any more for them to hide behind.

    They know what they are doing.
     
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  2. Trish

    Trish Moderator Staff Member

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    I have used to BACME contact form to send the following request:

     
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  3. Dolphin

    Dolphin Senior Member (Voting Rights)

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  4. Trish

    Trish Moderator Staff Member

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    I have had a reply:

    I am considering a response. I probably don't have the energy to pursue this further. At least the subject has been raised and put on their agenda to consider for future conferences.

    Edit: I have replied thus:

     
    Last edited: May 4, 2024
  5. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    Well done @Trish

    A bit bizarre that they consider two people on Forward ME adequate to tell all the patients about what went on - a bit five loaves and two small fishes it seems.

    This is supposed to be the era of 'collaboaration' much as I am sceptical about the term.

    But the point has been made.
     
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  6. MEMarge

    MEMarge Senior Member (Voting Rights)

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    Maybe we should have joined Forward ME!

    Only joking I know we don't have the capacity.

    I do wonder who is going....
     
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  7. Kitty

    Kitty Senior Member (Voting Rights)

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    I can see why they wouldn't want people with military grade twaddle-spotting apparatus, though, who are also likely to ask highly inconvenient questions.
     
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  8. JemPD

    JemPD Senior Member (Voting Rights)

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    precisely!
     
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  9. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    That will be the catastrophising hysterics wielding SAS grade Swarovski 10x50s with image stabilisation?
     
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  10. Sean

    Sean Moderator Staff Member

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    NATO compliant, I presume?
     
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  11. Lou B Lou

    Lou B Lou Senior Member (Voting Rights)

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    Indeed. Hysterics meets Nato. In 2002 Wessely did actually manage to create a NATO sponsored meeting where he'd invited Elaine Showalter to speak, to discuss 'the social and psychological implications of the new terrorism'.


    Elaine Showalter in 'Hystories Revisited' (taking a break from Literary Criticism and bashing ME and GWS patients).
    Edit correction. Showalter does not mention ME once in this reflection on her book Hystories, amazing, as it was framing ME as mass hysteria that got her all the publicity in 1997. She does however bash GWS patients and predictably plays the victim, Again.


    https://www.jstor.org/stable/j.ctv18dvt2d.5?seq=6

    'On March 25, 2002, I participated in a three-
    day conference on bioterrorism and public policy in Brussels, the first
    ever Advanced Research Workshop co-sponsored by NATO and Russia.
    The workshop had been organized by Professor Simon Wessely (Kings
    College School of Medicine, London) and Professor Valery Krasnov
    (Director, Moscow Research Institute of Psychiatry)'



    'Social and Psychological Consequences of Chemical, Biological and Radiological Terrorism
    NATO-Russia Advanced Research Workshop'
    https://projects.iq.harvard.edu/files/lernerlab/files/nato.pdf


    Not sure this post belongs on this thread but I thought I'd post it while I remembered the bizarre event when Showalter addressed NATO.
     
    Last edited: May 5, 2024
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  12. SNT Gatchaman

    SNT Gatchaman Senior Member (Voting Rights)

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    I mean usually we just get accused of hedging too much in our reports and recommending clinical correlation all the time.
     
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  13. Ash

    Ash Senior Member (Voting Rights)

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    :grinning:
     
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  14. Robert 1973

    Robert 1973 Senior Member (Voting Rights)

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    I think this is unfair. You seem to be forgetting that an individual once heckled Prof Chalder at a seminar, which must have been absolutely terrifying. Maybe they simply can’t afford the security measures that would be necessary to protect these brave clinicians from dangerous militant patients who might ask awkward questions or even stoop so low as to employ sarcasm as part of their advanced asymmetric psychological operations.

    I applaud BACME for its bravery in standing firm in upholding its anti-woke policy of excluding patients and rejecting independent analysis of scientific evidence in decision making. Clinicians Know Best.
     
    Last edited: May 5, 2024
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  15. rvallee

    rvallee Senior Member (Voting Rights)

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    It will never cease to amaze me how Wessely managed to get up so high without ever having actually done anything for it. His roadmap is one of administrating various things, but as a psychiatrist he has contributed absolutely nothing worthwhile, in fact much of it is fraudulent at best, a disaster in many places.

    He probably would have enjoyed being a vulture capitalist then a politician far more than this sorry excuse for a career. He probably would have done less harm this way.
     
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  16. Sean

    Sean Moderator Staff Member

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    And if they are not careful, we shall use sarcasm and poetic irony at the same time!
     
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  17. SNT Gatchaman

    SNT Gatchaman Senior Member (Voting Rights)

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    Gawd. It's some Pythonesque mash-up of French Taunter and Spanish Inquisition.

    "Allo. Whoo is eet?"

    "I am Sir Tiredalot and these are my Knights of the Unsound Vagal. We wish to ask your master about his research."

    "Well I'll ask him but I don't think he'll be very keen. He didn't expect a kind of..."

    "Nobody expects a canny statistician."

    "Mind your own business!"

    "Amongst our weaponry are such diverse elements as... maths, logic, whiteboards, sarcasm and a fanatical devotion to scientific methodology."

    "Run Away!"
     
  18. JellyBabyKid

    JellyBabyKid Senior Member (Voting Rights)

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    :laugh: brilliant
     
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  19. Trish

    Trish Moderator Staff Member

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    The video is a talk Katie Johnstone gave to the Local ME network.
    Edit: correction - the ME Local Network.

    I started trying to watch this but the sound quality and my elderly hearing are such that I couldn't follow what she was saying, so I read the YouTube transcript. She picks up key point about problems with BACME's materials, particularly their claim that ME/CFS is caused by the vague term dysregulation. Also their approach to treatment being still the same as before, just with GET adapted to graded activity, with the usual find your baseline then gradually add activities, and their claim that you can overcome sensory sensitivities by gradual exposure to desensitise. And they call PEM a form of fatigue.

    Here's her list of references:
     
    Last edited: May 10, 2024
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  20. Trish

    Trish Moderator Staff Member

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    Anyone fancy working on a letter to BACME spelling out all the problems with their materials and asking them to update them? Not me at the moment. I'm all out of energy for flogging dead horses.
     

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