United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

JUst a thought. One note Katie makes is that BACME's literature, specifically this 'guideline' have not been peer reviewed.

How does peer review work? Could eg someone from Workwell, someone from @PhysiosforME , David Putrino etc be asked for their review on this, and then maybe their other literature?

 

Then again - if someone can explain, does even a bad peer review 'legitimise' as 'been reviewed' vs 'not been reviewed' without very significant changes having to be made? which seems a terribly flawed system if so.

 

https://bacme.info/event/severe-and-very-severe-me-cfs-workshop/

Upcoming event: Severe and Very Severe ME/CFS workshop

Facilitated by Dr Melissa Sargaison (specialist physician and BACME Board member), Ceri Rutter (BACME PPI Lead) Anna Gregorowski (Consultant Nurse and BACME Chair); Sue Luscombe (specialist dietician), and Helen Baxter (25% Group).

Through presentation and discussion, this workshop aims to work towards a better understanding of severe and very severe ME/CFS; help attendees recognise red flags and how to respond; and signpost to resources; We are very pleased to have specialist dietician Sue Luscombe and Helen Baxter from the 25% group share their expertise in meeting the nutritional needs of people living with severe/ very severe ME/CFS. From this workshop, there will be an invitation to join in reviewing the current BACME severe guide in a future meeting.

 

May be of interest to @Jonathan Edwards apologies if not

 

The problem with the BACME events is that they are always members only.

 

@MBailey has anyone from ForwardME been invited?

 

It is of interest but I will be in Peru and I suspect I am not invited anyway.
It is interesting to see the range of people involved including Helen Baxter and Sue Luscombe, together with AG from UCLH and also MS from the homeopathic hospital. She seems to be in to Yoga (for those who haven't tried it).

 

I'm afraid I don't know @MEMarge . Since MEAction UK stopped being a member of Forward-ME I don't get to see minutes or hear meeting reports any longer.

@PeterW might be able to give some confirmation if Forward-ME is involved or not?

 

This is an internal event; they usually have something every month. I doubt there will be anyone attending except BACME clinicians.