United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

bobbler · Jun 6, 2024

Trish said: ↑

The video is a talk Katie Johnstone gave to the Local ME network.
Edit: correction - the ME Local Network.

I started trying to watch this but the sound quality and my elderly hearing are such that I couldn't follow what she was saying, so I read the YouTube transcript. She picks up key point about problems with BACME's materials, particularly their claim that ME/CFS is caused by the vague term dysregulation. Also their approach to treatment being still the same as before, just with GET adapted to graded activity, with the usual find your baseline then gradually add activities, and their claim that you can overcome sensory sensitivities by gradual exposure to desensitise. And they call PEM a form of fatigue.

Here's her list of references:
Click to expand...

JUst a thought. One note Katie makes is that BACME's literature, specifically this 'guideline' have not been peer reviewed.

How does peer review work? Could eg someone from Workwell, someone from @PhysiosforME , David Putrino etc be asked for their review on this, and then maybe their other literature?

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United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

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United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

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