1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for 'CFS'.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 11th November 2024 is here.
    Dismiss Notice
  3. Welcome! Read the Core Purpose and Values of our forum.
    Dismiss Notice

United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

Discussion in 'Regional news' started by Sly Saint, Sep 8, 2022.

Tags:
Page 7 of 9
  1. Yann04

    Yann04 Senior Member (Voting Rights)

    Messages:
    799
    Location:
    Switzerland (Romandie)
    Ah yes Myalgic Encephalomyelitis/Cerebral Spinal Fluid
     
    Yann04, Jul 21, 2024
    #121
    Nightsong, Kiristar, Ash and 8 others like this.
  2. Nightsong

    Nightsong Senior Member (Voting Rights)

    Messages:
    658
    Nightsong, Jul 22, 2024
    #122
    Kiristar, Sean, Hutan and 2 others like this.
  3. Nightsong

    Nightsong Senior Member (Voting Rights)

    Messages:
    658
    Charles Shepherd letter in iNews regarding Long COVID:
     
    Nightsong, Aug 7, 2024
    #123
    Kitty, Sean, Peter Trewhitt and 2 others like this.
  4. Kiristar

    Kiristar Senior Member (Voting Rights)

    Messages:
    146
    Kiristar, Aug 7, 2024
    #124
    Kitty, Sean, Peter Trewhitt and 2 others like this.
  5. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,937
    Location:
    UK
    Last edited by a moderator: Aug 15, 2024
    Sly Saint, Aug 9, 2024
    #125
    Peter Trewhitt, Kitty, oldtimer and 1 other person like this.
  6. MeSci

    MeSci Senior Member (Voting Rights)

    Messages:
    4,902
    Location:
    Cornwall, UK
    Starts at 1.05.15. Finishes at 1.30.54.
     
    Last edited: Aug 15, 2024
    MeSci, Aug 15, 2024
    #126
    Peter Trewhitt, Ash, Kitty and 3 others like this.
  7. Nightsong

    Nightsong Senior Member (Voting Rights)

    Messages:
    658
    In the Times today - "I was picked for Team GB. Then long Covid dashed my Olympic dream", about Oonagh Cousins:

    https://www.thetimes.com/uk/healthcare/article/link-long-covid-me-dzdxtp206

    https://archive.is/20240816080129/h...althcare/article/link-long-covid-me-dzdxtp206
     
    Nightsong, Aug 16, 2024
    #127
    Peter Trewhitt, Ash, boolybooly and 14 others like this.
  8. Nightsong

    Nightsong Senior Member (Voting Rights)

    Messages:
    658
    The Guardian: "Fifth of patients at two north of England surgeries have long Covid, study finds":
    https://www.theguardian.com/society...orth-england-surgeries-long-covid-study-finds

    The report referenced appears to be this one, entitled Navigating the Long Haul: Understanding Long Covid in Northern England, published by Health Equity North and which is part of Newcastle University's "COVID Recovery Analytics" project:
    https://www.manchester.ac.uk/about/news/regional-inequalities-in-long-covid-rates-revealed/

    PDF available here:
    https://www.healthequitynorth.co.uk/app/uploads/LONG-COVID-REPORT-2024-FINAL.pdf
     
    Nightsong, Aug 23, 2024
    #128
    Peter Trewhitt, Starlight, Kitty and 7 others like this.
  9. MeSci

    MeSci Senior Member (Voting Rights)

    Messages:
    4,902
    Location:
    Cornwall, UK
    https://www.bbc.co.uk/news/articles/cy0rwzd0r1do

    By Lili Sheppard
    BBC News, Somerset

    • Published
      7 hours ago
    An ex-nurse is attempting to set a new world record by travelling from John O’Groats to Land's End in 45 days using a standard wheelchair.

    Army veteran Lexi Chambers has fibromyalgia and complex regional pain syndrome (CRPS) - with the latter resulting in her leg being amputated three years ago.

    She has four world records to her name and hopes to add another in her upcoming fundraiser called End 2 End The Rugby Relay.

    "My goal is to inspire by demonstrating that despite adversity, achieving dreams is possible," said Ms Chambers.
     
    MeSci, Aug 23, 2024
    #129
    Peter Trewhitt and Kitty like this.
  10. rvallee

    rvallee Senior Member (Voting Rights)

    Messages:
    13,697
    Location:
    Canada
    rvallee, Aug 23, 2024
    #130
    Peter Trewhitt, Ash, MEMarge and 7 others like this.
  11. Dolphin

    Dolphin Senior Member (Voting Rights)

    Messages:
    5,819
    Dolphin, Aug 24, 2024
    #131
    Peter Trewhitt, Ash, Hutan and 2 others like this.
  12. Trish

    Trish Moderator Staff Member

    Messages:
    55,566
    Location:
    UK
    As I understand it The Chronic Collaboration was basically Steve Topple and his partner.

    From MEpedia:
    https://me-pedia.org/wiki/The_Chronic_Collaboration
    The Chronic Collaboration was founded in August 2021 to advocate for improved treatment of chronically ill patients including people with ME/CFS, and against the use of psychologization.[1][2] It was created in response to "the recent refusal of NICE to publish the much awaited ME/CFS guideline" and to protest about this, as well as "the years of medical neglect & mistreatment" patients have experienced.

    Edit to add:
    Not to be confused with Chronic Illness Inclusion, which I notice has a very similar logo.
    https://www.s4me.info/threads/uk-news-from-chronic-illness-inclusion.24752/
     
    Trish, Aug 24, 2024
    #132
    Peter Trewhitt, packhorse5, Ash and 2 others like this.
  13. Hutan

    Hutan Moderator Staff Member

    Messages:
    29,461
    Location:
    Aotearoa New Zealand
    Transcript of the spoken message on the tweet:
    Much respect for the effort the people involved in the Chronic Collaboration have put in over the years. However, I do hope that they will think carefully about their documentary. Just because it is a doctor who has said something, that doesn't make it correct. That is of course true for the BPS brigade, but it's also true for others who are offering unevidenced biologically-based theories about ME/CFS as facts. Both sides can harm people with ME/CFS, including by damaging the credibility of people with ME/CFS. As journalists, I hope that the Chronic Collaboration will carefully consider views contrary to the views of people such as Dr Weir and Dr Myhill.
     
    Hutan, Aug 24, 2024
    #133
    Peter Trewhitt, MrMagoo, Ash and 6 others like this.
  14. Trish

    Trish Moderator Staff Member

    Messages:
    55,566
    Location:
    UK
    I fear it will be a jumble of individual doctors' idiosyncratic views, rather than a useful contribution to knowledge about ME/CFS.
     
    Trish, Aug 24, 2024
    #134
    Colette, Peter Trewhitt, MrMagoo and 4 others like this.
  15. Adam pwme

    Adam pwme Senior Member (Voting Rights)

    Messages:
    702
    Adam pwme, Aug 27, 2024
    #135
    Peter Trewhitt, Ash, MEMarge and 2 others like this.
  16. Braganca

    Braganca Senior Member (Voting Rights)

    Messages:
    353
    Last edited by a moderator: Aug 27, 2024
    Braganca, Aug 27, 2024
    #136
    Peter Trewhitt, Ash, JellyBabyKid and 5 others like this.
  17. Dolphin

    Dolphin Senior Member (Voting Rights)

    Messages:
    5,819
    Dolphin, Sep 3, 2024
    #137
    Hutan and Peter Trewhitt like this.
  18. Sarah

    Sarah Senior Member (Voting Rights)

    Messages:
    1,510
    ‘I grieve for the person I was before' - Covid inquiry to begin new phase
    Jim Reed, Nat Wright
    9 September 2024, 01:10 BST
    Updated 6 hours ago
    https://www.bbc.com/news/articles/crrlv0enpeno
     
    Sarah, Sep 9, 2024
    #138
    Hutan, bobbler, Ash and 3 others like this.
  19. SNT Gatchaman

    SNT Gatchaman Senior Member (Voting Rights)

    Messages:
    5,792
    Location:
    Aotearoa New Zealand
    SNT Gatchaman, Sep 9, 2024
    #139
    Hutan, bobbler, Ash and 3 others like this.
  20. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    14,915
    Location:
    UK West Midlands
    Layla Moran was chair of the LC APPG I believe
     
    NelliePledge, Sep 9, 2024
    #140
    Hutan, bobbler, Ash and 4 others like this.
Page 7 of 9

Share This Page