United Kingdom: Science Media Centre (including Fiona Fox)

brilliant, it'll take me some time to read that but it looks like a useful article thanks Dolphin

 

Haha YES! that is exactly what i was thinking of thank you
I did search the forum but i obviously didnt use the right search terms. I never have much luck with that

 

They want us to feel f'cked, part of their ploy, but don't let them win!

They're running scared, this fact sheet was a different tone from usual I think, full of mis-information and lies but the focus was more on covering their asses I think.

Let's focus on the paper when it comes out not on this fake news.

 

No, it’s an “alternative facts” sheet, the likes of which would give Kellyanne Conway a run for her money.

 

I completely agree. PACE may be the GET/CBT’s jewel in the crown, but there is still a large body of similarly (though perhaps not as egregiously) flawed work left standing once PACE has gone. That’s why I wrote this PEM/GET primer, focussing on the flaws in the GET research as a whole, not just GET.
https://emerge.org.au/wp-content/uploads/2018/02/PEM-GET-Primer-December-2017.pdf

 

I'm having trouble figuring out their priorities...

 

Thank you. Helping to plan #MillionsMission in London with #STOP GET as main message. Can we use Executive Summary & cite reference to primer in a leaflet? Thanks.

 

Yes! So long as you acknowledge me as author, go for it!

 

Thank you.

Will absolutely reference you whenever we use & give link to full article.

 

My response (if i had the ability) would be however in ME/CFS GET worsens patients physical condition and trying to brainwash them into believing they are not ill is not legitimate medicine nor considered ethical behaviour by most medical systems.
Telling MS patients to believe they don't have MS would likely lead to an ethics board meeting in many countries much as it would if you told a cancer patient to pretend they don't have cancer and should by extension shun chemotherapy because they are not actually ill.

 

May be off topic but this is why countering the narrative is so important
https://twitter.com/user/status/976589454285725697

 

As awful as the fact sheet is, I detect a change in the way they’ve framed CBT and GET. Perhaps not quite so willing to blantantly display how they’ve been used in ME/CFS, and sounding much more reasonable in order to claim their critics are the unreasonable ones. The CBT and GET described in the fact sheet are not as they were described in PACE. It’s a considered ploy to note how these are used in other illnesses without saying how differently they are applying them in ME/CFS.

 

I am hoping that this is not one of the children mentioned pre Christmas

 

They can reframe in public all they want, as far as we know they are still using the same lies and snake oil in treatments. They still abduct children from their families for forced "treatment", they still lock up adults against their will, they still fight to deny benefits to patients who are disabled. Until this changes its only lipstick on a pig. That what we need to remind the public.

 

Absolutely agree. I don’t believe they’ve changed their position at all, they’re just trying to make it sound more reasonable, and we need to make sure the public know exactly what we’re dealing with.