USA: News from the Bateman Horne Center

How the Basics of PT & OT Can Help People with ME/CFS
Sallie Rediske and Tahlia Ruschioni presented the new medical education series at the Reflections of ME/CFS, FM, and Long COVID awareness event on May 9th. We invited Sallie to write this guest post to accompany her presentation. Click here to view the video recording.

Bio

Sallie Rediske, MPT was in private practice for 18 years prior to ME/CFS requiring her medical retirement. She was nationally board certified in women’s health physical therapy and specialized in the treatment of complex chronic conditions.



A group of physical and occupational therapists came together to establish the PT/OT Collaborative Group for ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome). Each member of our group either has or cares for someone with ME/CFS.

We established this group because physical and occupational therapists have not been informed about PEM/PESE (post-exertional malaise/post-exertional symptom exacerbation) and are unintentionally making symptoms worse for their patients who have ME/CFS and Long COVID (LC). The good news is that PTs and OTs are already trained with the appropriate skillset, enabling them to be the ideal partners for people living with ME/CFS and LC. In order to be the ideal partner they must learn about and adhere to the limitations imposed by PEM/PESE and ensure they do not push patients further into a crash cycle.
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How the Basics of PT & OT Can Help People with ME/CFS - Bateman Horne Center
 
Thursday June 15 Lunch & Learn – Virtual Event
https://batemanhornecenter.org/event/lunch-learn-virtual-event-40/

1:30 PM ET/6:30 PM in Great Britain & Ireland
Find the time in your time zone here:
https://www.timeanddate.com/worldcl...15+online+event&iso=20230615T1130&p1=220&ah=2

Presentation Topic: “The Things I’ve Learned and the Ways I’ve Grown With This Condition”

Agenda
– 15 to 20 minute presentation by a community participant on an illness-related topic
– Announce the “get to know you” question
– Separate into virtual break-out rooms for introductions and discuss the “get to know you” questions
 

Bateman Horne Center of Excellence
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#MedEdMonday Continued and repeated episodes of PEM are associated with worsened long-term functional capacity for individuals with ME/CFS and Long COVID. As part of our education series for rehab professionals, we developed this handout to show providers the types of exertion that can lead to PEM and how the "push-crash cycle," when left unchecked, can lead to a worsened disease state.
https://bit.ly/43YkMVi

Please share it with your networks to make PEM common knowledge.


"Key Takeaway:AVOID pushing clients into PEM/PESE"
 
@SlySaint Thanks for the link to the 2-page handout! (that last link in your post)

I don't think the #MedEdMonday works without a LinkedIn account. Just like twitter, LinkedIn is not letting folks search unless they are logged in.

Bateman Horne used to do Med Ed Monday posts on their blog (on their website) but it looks like they are only doing that on social media now.
Bateman Horne Center said:
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ahimsa said:
I don't think the #MedEdMonday works without a LinkedIn account.
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I'm still getting over the news that people use LinkedIn in 2023 – I thought that had long gone the way of Britpop and Palm Pilots.

ahimsa said:
Bateman Horne used to do Med Ed Monday posts on their blog (on their website) but it looks like they are only doing that on social media now.
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This is disappointing, especially when you can't even view content without an account.
 
ahimsa said:
@SlySaint Thanks for the link to the 2-page handout! (that last link in your post)

I don't think the #MedEdMonday works without a LinkedIn account. Just like twitter, LinkedIn is not letting folks search unless they are logged in.

Bateman Horne used to do Med Ed Monday posts on their blog (on their website) but it looks like they are only doing that on social media now.
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I should have maybe put the whole post in quotes as I got it from their website (can't find the exact link now).
 
Brain Fog in ME/CFS and Long COVID

https://batemanhornecenter.org/brain-fog-in-me-cfs-and-long-covid/

(short quote from the blog post, line breaks added)
Bateman Horne Center said:
This week our paper about possible causes of brain fog in ME/CFS and Long COVID was published in Frontiers of Neuroscience.

This study included a large group of ME/CFS patients, Long COVID patients, and matched healthy controls.

We hypothesized that cognitive impairment characterized by slower reaction time was caused by blood pressure and heart rate disturbances of orthostatic intolerance.

This paper is based on the findings of a unique ME/CFS population we’ve studied over the past 4 years. Half of the 150 ME/CFS patients have been sick for <4 years and the other half were sick for >10 years.

We believe that the closer to onset we study ME/CFS, the more likely we are to identify possible pathways that are causing the symptom(s) that can be targeted with treatment.

This study was strengthened by the addition of Long COVID patients who had been sick for 1-2 year and met ME/CFS criteria to compare to both the <4 year and >10 year ME/CFS patients.

These 3 disease groups were compared to each other and to healthy controls.
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This blog post by Bateman Horne Center is about the study discussed in this thread:

https://www.s4me.info/threads/cogni...-hemodynamic-changes-2023-vernon-et-al.33847/
 
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Tuesday, July 18 free-professionally-facilitated online support group
https://batemanhornecenter.org/event/online-support-group-51/

3 PM ET/8 PM in Great Britain & Ireland

Find the time in your time zone here
https://www.timeanddate.com/worldcl...ine+support+group&iso=20230718T13&p1=220&ah=1

Support Group Format

The first 30-minutes will focus on a predetermined topic followed by a general discussion for the last half of the hour. Both of the monthly support groups are designed to include people with ME/CFS, FM, Long COVID, and co-existing conditions. We also welcome supporters and loved ones.

These sessions are led by Meredith Mehner, LCSW, who has personal experience navigating life while living with a complex chronic illness.
 
Lunch & Learn – Virtual Event
July 20 @ 11:30 am - 1:30 pm MDT Free

Registration page: https://batemanhornecenter.org/event/lunch-learn-virtual-event-46/

1:30 PM ET/6:30 PM in Great Britain & Ireland

Find the time in your time zone here
https://www.timeanddate.com/worldclock/fixedtime.html?msg=July+20+Lunch+&+Learn+–+Virtual+Event&iso=20230720T1130&p1=220&ah=2

Presentation Topic: Can even small amounts of joy and imagination benefit health?

Agenda
– 15 to 20 minute presentation by a community participant on an illness-related topic
– Announce the “get to know you” question
– Separate into virtual break-out rooms for introductions and discuss the “get to know you” questions


Comment: I think that finding joy with this illness is a worthy aim by itself. If this was someone selling, I probably wouldn't highlight it but that doesn't look like it's the case.
 
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Dolphin said:
Lunch & Learn – Virtual Event
July 20 @ 11:30 am - 1:30 pm MDT Free
1:30 PM ET/6:30 PM in Great Britain & Ireland

Find the time in your time zone here
https://www.timeanddate.com/worldclock/fixedtime.html?msg=July+20+Lunch+&+Learn+–+Virtual+Event&iso=20230720T1130&p1=220&ah=2

Presentation Topic: Can even small amounts of joy and imagination benefit health?

Agenda
– 15 to 20 minute presentation by a community participant on an illness-related topic
– Announce the “get to know you” question
– Separate into virtual break-out rooms for introductions and discuss the “get to know you” questions


Comment: I think that finding joy with this illness is a worthy aim by itself. If this was someone selling, I probably wouldn't highlight it but that doesn't look like it's the case.
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Lunch and Learn July 20th registration page: https://batemanhornecenter.org/event/lunch-learn-virtual-event-46/
 
"The Cost of ME/CFS: An OT’s Lived Experience"

https://batemanhornecenter.org/the-cost-of-me-cfs-an-occupational-therapists-lived-experience/

I found it a bit interesting that this person who was an OT themselves still had difficulty adapting.

Edited to add:
Extract:
"It was counterintuitive to all my training and experience what true rest as well as pre-emptive rest meant. The rehabilitation philosophy of incrementally training and graded exercise was also not effective and in fact harmful to me."
 
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"Haley Southwick recently completed a 330 hour training rotation at Bateman Horne Center for her doctorate of nursing program. She shares the highlights of her training experience in this":

- 3-minute video

- Guest blog https://batemanhornecenter.org/an-incredible-lifelong-impact/

"ME/CFS is this center puzzle piece that has all these surrounding conditions like POTS, dysautonomia, MCAS, CCI, fibromyalgia, and more. All these conditions are so intermixed with the symptom presentation and helping our patients was truly an art form to experience and learn from."
 
Tom Kindlon said:
ME/CFS is this center puzzle piece that has all these surrounding conditions like POTS, dysautonomia, MCAS, CCI, fibromyalgia, and more. All these conditions are so intermixed with the symptom presentation and helping our patients was truly an art form to experience and learn from.
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That is, sadly, not a very good advert for a centre of excellence.
Medicine was an art form forty years ago but we hoped that had changed.
 
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