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USA: News from the Bateman Horne Center

Discussion in 'News from organisations' started by ahimsa, Mar 4, 2022.

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  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    How the Basics of PT & OT Can Help People with ME/CFS

    How the Basics of PT & OT Can Help People with ME/CFS - Bateman Horne Center
     
    Sly Saint, May 31, 2023
    #41
    Kitty, Louie41, Wilhelmina Jenkins and 4 others like this.
  2. Dolphin

    Dolphin Senior Member (Voting Rights)

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    Dolphin, Jun 7, 2023
    #42
    Kitty, ahimsa, Hutan and 2 others like this.
  3. Dolphin

    Dolphin Senior Member (Voting Rights)

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    Dolphin, Jun 9, 2023
    #43
    Kitty, ahimsa, Peter Trewhitt and 1 other person like this.
  4. Dolphin

    Dolphin Senior Member (Voting Rights)

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    Thursday June 15 Lunch & Learn – Virtual Event
    https://batemanhornecenter.org/event/lunch-learn-virtual-event-40/

    1:30 PM ET/6:30 PM in Great Britain & Ireland
    Find the time in your time zone here:
    https://www.timeanddate.com/worldcl...15+online+event&iso=20230615T1130&p1=220&ah=2

    Presentation Topic: “The Things I’ve Learned and the Ways I’ve Grown With This Condition”

    Agenda
    – 15 to 20 minute presentation by a community participant on an illness-related topic
    – Announce the “get to know you” question
    – Separate into virtual break-out rooms for introductions and discuss the “get to know you” questions
     
    Dolphin, Jun 9, 2023
    #44
    Kitty, ahimsa, Peter Trewhitt and 1 other person like this.
  5. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Location:
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    [​IMG]
    Bateman Horne Center of Excellence
    267 followers

    1d


    #MedEdMonday Continued and repeated episodes of PEM are associated with worsened long-term functional capacity for individuals with ME/CFS and Long COVID. As part of our education series for rehab professionals, we developed this handout to show providers the types of exertion that can lead to PEM and how the "push-crash cycle," when left unchecked, can lead to a worsened disease state.
    https://bit.ly/43YkMVi

    Please share it with your networks to make PEM common knowledge.


    "Key Takeaway:AVOID pushing clients into PEM/PESE"
     
    Sly Saint, Jun 21, 2023
    #45
    AknaMontes, bobbler, RedFox and 9 others like this.
  6. ahimsa

    ahimsa Senior Member (Voting Rights)

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    @SlySaint Thanks for the link to the 2-page handout! (that last link in your post)

    I don't think the #MedEdMonday works without a LinkedIn account. Just like twitter, LinkedIn is not letting folks search unless they are logged in.

    Bateman Horne used to do Med Ed Monday posts on their blog (on their website) but it looks like they are only doing that on social media now.
     
    ahimsa, Jun 21, 2023
    #46
    Kitty, Trish and Peter Trewhitt like this.
  7. Kitty

    Kitty Senior Member (Voting Rights)

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    I'm still getting over the news that people use LinkedIn in 2023 – I thought that had long gone the way of Britpop and Palm Pilots.

    This is disappointing, especially when you can't even view content without an account.
     
    Kitty, Jun 22, 2023
    #47
    shak8, Trish, Peter Trewhitt and 1 other person like this.
  8. ahimsa

    ahimsa Senior Member (Voting Rights)

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    I think it's only the search links that won't work if you aren't logged in, same as with twitter.

    That first link in @Sly Saint 's post worked for me.
     
    ahimsa, Jun 22, 2023
    #48
    Kitty, Trish and Peter Trewhitt like this.
  9. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    I should have maybe put the whole post in quotes as I got it from their website (can't find the exact link now).
     
    Sly Saint, Jun 22, 2023
    #49
    Kitty, ahimsa, Peter Trewhitt and 1 other person like this.
  10. ahimsa

    ahimsa Senior Member (Voting Rights)

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    Brain Fog in ME/CFS and Long COVID

    https://batemanhornecenter.org/brain-fog-in-me-cfs-and-long-covid/

    (short quote from the blog post, line breaks added)
    This blog post by Bateman Horne Center is about the study discussed in this thread:

    https://www.s4me.info/threads/cogni...-hemodynamic-changes-2023-vernon-et-al.33847/
     
    Last edited: Jul 1, 2023
    ahimsa, Jul 1, 2023
    #50
    Starlight, Hutan, Kitty and 6 others like this.
  11. Dolphin

    Dolphin Senior Member (Voting Rights)

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    Dolphin, Jul 5, 2023
    #51
    Hutan, Kitty, RedFox and 2 others like this.
  12. Dolphin

    Dolphin Senior Member (Voting Rights)

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    Tuesday, July 18 free-professionally-facilitated online support group
    https://batemanhornecenter.org/event/online-support-group-51/

    3 PM ET/8 PM in Great Britain & Ireland

    Find the time in your time zone here
    https://www.timeanddate.com/worldcl...ine+support+group&iso=20230718T13&p1=220&ah=1

    Support Group Format

    The first 30-minutes will focus on a predetermined topic followed by a general discussion for the last half of the hour. Both of the monthly support groups are designed to include people with ME/CFS, FM, Long COVID, and co-existing conditions. We also welcome supporters and loved ones.

    These sessions are led by Meredith Mehner, LCSW, who has personal experience navigating life while living with a complex chronic illness.
     
    Dolphin, Jul 7, 2023
    #52
    Hutan, Kitty, ahimsa and 3 others like this.
  13. Dolphin

    Dolphin Senior Member (Voting Rights)

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    Lunch & Learn – Virtual Event
    July 20 @ 11:30 am - 1:30 pm MDT Free

    Registration page: https://batemanhornecenter.org/event/lunch-learn-virtual-event-46/

    1:30 PM ET/6:30 PM in Great Britain & Ireland

    Find the time in your time zone here
    https://www.timeanddate.com/worldclock/fixedtime.html?msg=July+20+Lunch+&+Learn+–+Virtual+Event&iso=20230720T1130&p1=220&ah=2

    Presentation Topic: Can even small amounts of joy and imagination benefit health?

    Agenda
    – 15 to 20 minute presentation by a community participant on an illness-related topic
    – Announce the “get to know you” question
    – Separate into virtual break-out rooms for introductions and discuss the “get to know you” questions


    Comment: I think that finding joy with this illness is a worthy aim by itself. If this was someone selling, I probably wouldn't highlight it but that doesn't look like it's the case.
     
    Last edited: Jul 8, 2023
    Dolphin, Jul 8, 2023
    #53
    Hutan, Kitty, Sean and 3 others like this.
  14. shak8

    shak8 Senior Member (Voting Rights)

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    Lunch and Learn July 20th registration page: https://batemanhornecenter.org/event/lunch-learn-virtual-event-46/
     
    shak8, Jul 8, 2023
    #54
    Hutan, Kitty, Peter Trewhitt and 2 others like this.
  15. Dolphin

    Dolphin Senior Member (Voting Rights)

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    Dolphin, Jul 8, 2023
    #55
    Kitty, shak8 and Peter Trewhitt like this.
  16. mango

    mango Senior Member (Voting Rights)

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    mango, Jul 10, 2023
    #56
    ahimsa, Kitty, Peter Trewhitt and 1 other person like this.
  17. Dolphin

    Dolphin Senior Member (Voting Rights)

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    "The Cost of ME/CFS: An OT’s Lived Experience"

    https://batemanhornecenter.org/the-cost-of-me-cfs-an-occupational-therapists-lived-experience/

    I found it a bit interesting that this person who was an OT themselves still had difficulty adapting.

    Edited to add:
    Extract:
    "It was counterintuitive to all my training and experience what true rest as well as pre-emptive rest meant. The rehabilitation philosophy of incrementally training and graded exercise was also not effective and in fact harmful to me."
     
    Last edited: Jul 19, 2023
    Dolphin, Jul 19, 2023
    #57
    Starlight, Hutan, Kitty and 9 others like this.
  18. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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    "Haley Southwick recently completed a 330 hour training rotation at Bateman Horne Center for her doctorate of nursing program. She shares the highlights of her training experience in this":

    - 3-minute video

    https://www.youtube.com/watch?v=wDieL_rLNG4




    - Guest blog https://batemanhornecenter.org/an-incredible-lifelong-impact/

    "ME/CFS is this center puzzle piece that has all these surrounding conditions like POTS, dysautonomia, MCAS, CCI, fibromyalgia, and more. All these conditions are so intermixed with the symptom presentation and helping our patients was truly an art form to experience and learn from."
     
    Tom Kindlon, Jul 22, 2023
    #58
    Kitty, Trish and Peter Trewhitt like this.
  19. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    Location:
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    That is, sadly, not a very good advert for a centre of excellence.
    Medicine was an art form forty years ago but we hoped that had changed.
     
    Jonathan Edwards, Jul 22, 2023
    #59
    Ron, alktipping, FMMM1 and 8 others like this.
  20. mango

    mango Senior Member (Voting Rights)

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    But whyyyyyy?! :eek::nailbiting:
    bhc knifework.png
     
    mango, Jul 23, 2023
    #60
    shak8 and Ash like this.
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