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USA: News from the Bateman Horne Center

Discussion in 'News from organisations' started by ahimsa, Mar 4, 2022.

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Page 5 of 6
  1. Dolphin

    Dolphin Senior Member (Voting Rights)

    Messages:
    5,317
    October 24 Online Support Group
    https://batemanhornecenter.org/event/online-support-group-61/

    15:00 ET/20:00 in Great Britain & Ireland

    Find the time in your time zone here:
    https://www.timeanddate.com/worldcl...ine+support+group&iso=20231024T13&p1=220&ah=1

    Topic: Comparison

    The first 30-minutes will focus on a predetermined topic followed by a general discussion for the last half of the hour. Both of the monthly support groups are designed to include people with ME/CFS, FM, Long
    COVID, and co-existing conditions. We also welcome supporters and loved ones.

     
    Dolphin, Oct 11, 2023
    #81
    Peter Trewhitt and ahimsa like this.
  2. Dolphin

    Dolphin Senior Member (Voting Rights)

    Messages:
    5,317
    November 14 @ 1:00 pm - 2:00 pm MST FREE Bateman Horne Center Online Support Group

    https://batemanhornecenter.org/event/online-support-group-58/

    3 PM Eastern Time/8 PM in Great Britain & Ireland

    Find the time in your time zone here: https://www.timeanddate.com/worldcl...ine+support+group&iso=20231114T13&p1=220&ah=1

    Topic: Communication & Relationships when Chronically Ill (Talking to caregivers and loved ones about wants, needs, experiences) Support Group Format

    Both monthly support groups are designed to include people with ME/CFS, FM, Long COVID, and co-existing conditions. We also welcome supporters and loved ones.

    These sessions are led by a licensed professional who has personal experience navigating life while living with a complex chronic illness. Each session includes a topic and guided discussion. Participants are encouraged to participate to their comfort level which may include listening, communicating in the chat box, and/or sharing verbally with the group.

    We strive to foster an inclusive and accepting environment for all!

    Advance Registration Required.

     
    Dolphin, Nov 2, 2023
    #82
    RedFox, Trish, Peter Trewhitt and 2 others like this.
  3. Dolphin

    Dolphin Senior Member (Voting Rights)

    Messages:
    5,317
    Thursday, November 16
    https://batemanhornecenter.org/event/lunch-learn-virtual-event-44/

    Presentation topic: Anti-Inflammatory Nutrition

    Agenda
    – 15 to 20 minute presentation by a community participant on an illness-related topic
    – Announce the “get to know you” question
    – Separate into virtual break-out rooms for introductions and discuss the “get to know you” questions

    1:30 PM ET/6:30 PM in Great Britain & Ireland.

    Find the time in your time zone here https://www.timeanddate.com/worldcl...–+Virtual+Event&iso=20231116T1130&p1=220&ah=2

     
    Dolphin, Nov 8, 2023
    #83
    Sean, ahimsa, RedFox and 1 other person like this.
  4. Dolphin

    Dolphin Senior Member (Voting Rights)

    Messages:
    5,317
    Tuesday, November 21: Free, professionally-facilitated online support group
    https://batemanhornecenter.org/event/online-support-group-57/

    3 PM ET/8 PM in Great Britain & Ireland

    Find the time in your time zone here:
    https://www.timeanddate.com/worldcl...ine+support+group&iso=20231121T13&p1=220&ah=1

    Topic: Self-trust

    (Navigating chronic illness by learning to have confidence in your own experiences)


    Both monthly support groups are designed to include people with ME/CFS, FM, Long COVID, and co-existing conditions. We also welcome supporters and loved ones.

    These sessions are led by a licensed professional who has personal experience navigating life while living with a complex chronic illness. Each session includes a topic and guided discussion. Participants are encouraged to participate to their comfort level which may include listening, communicating in the chat box, and/or sharing verbally with the group.

    We strive to foster an inclusive and accepting environment for all!

     
    Dolphin, Nov 10, 2023
    #84
    shak8, Peter Trewhitt, Trish and 1 other person like this.
  5. Mij

    Mij Senior Member (Voting Rights)

    Messages:
    8,678
    Mij, Nov 15, 2023
    #85
    Peter Trewhitt, shak8, oldtimer and 2 others like this.
  6. Dolphin

    Dolphin Senior Member (Voting Rights)

    Messages:
    5,317
    Free Bateman Horne Center Online Support Group
    https://batemanhornecenter.org/event/online-support-group-60/


    Tuesday, December 5 @ 1:00 pm - 2:00 pm MST
    3pm ET/8 PM in Great Britain & Ireland

    Find the time in your time zone here:
    https://www.timeanddate.com/worldcl...ine+support+group&iso=20231205T13&p1=220&ah=1

    Topic: Improving the Holiday Moments While Ill

    (Strategies for keeping the holidays fulfilling)

    Support Group Format

    Both monthly support groups are designed to include people with ME/CFS, FM, Long COVID, and co-existing conditions. We also welcome supporters and loved ones.

    These sessions are led by a licensed professional who has personal experience navigating life while living with a complex chronic illness. Each session includes a topic and guided discussion. Participants are encouraged to participate to their comfort level which may include listening, communicating in the chat box, and/or sharing verbally with the group.

    We strive to foster an inclusive and accepting environment for all!

    Advance Registration Required.

     
    Dolphin, Dec 1, 2023
    #86
    Peter Trewhitt, ahimsa and Trish like this.
  7. ahimsa

    ahimsa Senior Member (Voting Rights)

    Messages:
    2,692
    Location:
    Oregon, USA
    ahimsa, Dec 2, 2023
    #87
    Dolphin, Peter Trewhitt and Trish like this.
  8. Dolphin

    Dolphin Senior Member (Voting Rights)

    Messages:
    5,317
    Free online event: Lunch & Learn
    https://batemanhornecenter.org/event/lunch-learn-virtual-event-47/

    Thursday, December 14
    11:30 AM MST/1:30 PM ET/6:30 PM in Great Britain & Ireland

    Find the time in your time zone here:
    https://www.timeanddate.com/worldcl...h+&+learn&iso=20231214T1130&p1=220&ah=1&am=30

    Presentation Topic: My Favorite Things

    Agenda
    15-20 minute presentation by community participant on an illness-related topic
    -Announce the get know you" question
    -Separate into virtual break-out rooms for introductions and discuss
    the 'get to know you" questions
     
    Dolphin, Dec 4, 2023
    #88
    ahimsa and Peter Trewhitt like this.
  9. ahimsa

    ahimsa Senior Member (Voting Rights)

    Messages:
    2,692
    Location:
    Oregon, USA
    Latest blog post from Bateman Horne Center:
    Long COVID Treatment Trial, by Suzanne D. Vernon

    https://batemanhornecenter.org/long-covid-treatment-trial/
    (line breaks added)
    Study requires five in-person visits to the Bateman Horne Center (in Utah).

    For anyone interested in participating in the trial here's the link:

    https://redcap01.brisc.utah.edu/ccts/redcap/surveys/?s=H4WD4D8WNPD8DJKL

    Or contact them via email ( research@batemanhornecenter.org ) or phone (801-532-8311).
     
    ahimsa, Dec 10, 2023
    #89
    Amw66, NelliePledge, RedFox and 2 others like this.
  10. Dolphin

    Dolphin Senior Member (Voting Rights)

    Messages:
    5,317
    Dolphin, Dec 22, 2023
    #90
    RedFox, shak8 and Peter Trewhitt like this.
  11. Dolphin

    Dolphin Senior Member (Voting Rights)

    Messages:
    5,317
    Free, professionally-facilitated online support group Tuesday, January 9 https://batemanhornecenter.org/event/online-support-group-62/

    1PM MST/3 PM ET/8 PM Great Britain & Ireland

    Find the time in your time zone here: https://www.timeanddate.com/worldclock/fixedtime.html?msg=Tuesday,+January+9+online+support+group&iso=20240109T13&p1=220&ah=1

    Topic: Hopelessness & Suicidality (Navigating Chronic Illness)

    Support Group Format

    Both monthly support groups are designed to include people with ME/CFS, FM, Long COVID, and co-existing conditions. We also welcome supporters and loved ones.

    These sessions are led by a licensed professional who has personal experience navigating life while living with a complex chronic illness. Each session includes a topic and guided discussion. Participants are encouraged to participate to their comfort level which may include listening, communicating in the chat box, and/or sharing verbally with the group. We strive to foster an inclusive and accepting environment for all!

    Advance Registration Required.
     
    Last edited: Jan 2, 2024
    Dolphin, Jan 2, 2024
    #91
    ahimsa, shak8, Trish and 1 other person like this.
  12. Dolphin

    Dolphin Senior Member (Voting Rights)

    Messages:
    5,317
    Topic: Respecting & Nourishing Internal Dialogue
    (Keeping it Psychologically Clean)
    Support Group Format

    Tuesday, January 16

    13:00 MST/15:00 ET/20:00 Great Britain & Ireland
    Find the time in your time zone here:
    https://www.timeanddate.com/worldcl...ine+support+group&iso=20240116T13&p1=220&ah=1

    Both monthly support groups are designed to include people with
    ME/CFS, FM, Long COVID, and co-existing conditions. We also welcome
    supporters and loved ones.

    These sessions are led by a licensed professional who has personal
    experience navigating life while living with a complex chronic
    illness. Each session includes a topic and guided discussion.
    Participants are encouraged to participate to their comfort level
    which may include listening, communicating in the chat box, and/or
    sharing verbally with the group.

    We strive to foster an inclusive and accepting environment for all!

    Advance Registration Required
    https://batemanhornecenter.org/event/online-support-group-63/

     
    Last edited: Jan 5, 2024
    Dolphin, Jan 5, 2024
    #92
    Trish, shak8 and Peter Trewhitt like this.
  13. Dolphin

    Dolphin Senior Member (Voting Rights)

    Messages:
    5,317
    Lunch & Learn – Virtual Event January 18

    11:30 MST/13:30 ET/18:30 in Great Britain & Ireland

    Find the time in your time zone here: https://www.timeanddate.com/worldclock/fixedtime.html?msg=January+18+Lunch+&+Learn+–+Virtual+Event&iso=20240118T1130&p1=220&ah=1&am=30

    Presentation Topic: “Fighting for the best available care in an unaware system”

    Agenda – 15 to 20 minute presentation by a community participant on an illness-related topic
    – Announce the “get to know you” question
    – Separate into virtual break-out rooms for introductions and discuss the “get to know you” questions

    Advance Registration Required. https://batemanhornecenter.org/event/lunch-learn-virtual-event-45/

     
    Last edited: Jan 6, 2024
    Dolphin, Jan 6, 2024
    #93
    Peter Trewhitt, Trish and ahimsa like this.
  14. Dolphin

    Dolphin Senior Member (Voting Rights)

    Messages:
    5,317
    Note the date for this has now been changed to Friday, February 16
    Tuesday, February 13 FREE Online Support Group


    1 PM MST/ 3 PM ET/8 PM in Great Britain & Ireland
    Find the time in your time zone here
    https://www.timeanddate.com/worldcl...group+February+13&iso=20240213T13&p1=220&ah=1

    Topic: Minority Survival Skills

    (Navigating & Owning Illness Identity)

    Support Group Format

    Both monthly support groups are designed to include people with ME/CFS, FM, Long COVID, and co-existing conditions. We also welcome supporters and loved ones.

    These sessions are led by a licensed professional who has personal experience navigating life while living with a complex chronic illness. Each session includes a topic and guided discussion. Participants are encouraged to participate to their comfort level which may include listening, communicating in the chat box, and/or sharing verbally with the group.

    We strive to foster an inclusive and accepting environment for all!

    Advance Registration Required.
    https://batemanhornecenter.org/event/online-support-group-64/

     
    Last edited: Feb 8, 2024
    Dolphin, Feb 1, 2024
    #94
    ahimsa, Peter Trewhitt and Trish like this.
  15. poetinsf

    poetinsf Senior Member (Voting Rights)

    Messages:
    289
    Location:
    Western US
    A reminiscence of Montoya's Valtrex trial umpteen years ago that showed stunning result in a proof-of-concept trial, only to quietly disappear from the scene when the double-blind trial failed. This is what I mean by long COVID research repeating what's been going on for the past 40 years in MECFS. So much for starting with clean slate to study post-viral illness in real time. I'm afraid this will go on ad infimum as long as they focus solely on viral/post-viral cause of MECFS.
     
    poetinsf, Feb 1, 2024
    #95
    Peter Trewhitt likes this.
  16. Dolphin

    Dolphin Senior Member (Voting Rights)

    Messages:
    5,317
    Recap notes from our Hopelessness & Suicidality Support Group held Tuesday, January 9th.

    https://batemanhornecenter.org/wp-content/uploads/2024/01/1_9_2024-Support-Group-Recap.pdf

     
    Dolphin, Feb 1, 2024
    #96
    shak8 and Peter Trewhitt like this.
  17. Dolphin

    Dolphin Senior Member (Voting Rights)

    Messages:
    5,317
    Lunch & Learn-Virtual Event
    https://batemanhornecenter.org/event/lunch-learn-virtual-event-48/
    February 15 @ 11:30 AM-1 PM MST
    FREE
    Lunch & Learn
    A Free BHC Community Event Bateman Horne Center
    Presentation Topic: "Refresh Your Home Like an Interior Designer Part 2"
    Agenda 15 to 20 minute presentation by community participant on an illness-related topic
    -Announce the 'get know you question
    - Separate into virtual break-out rooms for introductions and discuss the "get know you" questions


    1:30 PM ET / 6:30 PM in Great Britain & Ireland

    find the time in your time zone here:

    https://www.timeanddate.com/worldcl...ual+Event&iso=20240215T1130&p1=220&ah=1&am=30

     
    Dolphin, Feb 7, 2024
    #97
    Peter Trewhitt and ahimsa like this.
  18. Dolphin

    Dolphin Senior Member (Voting Rights)

    Messages:
    5,317
    Tuesday, February 20.

    Free, professionally-facilitated online support group
    https://batemanhornecenter.org/event/online-support-group-65/

    1 PM MST/3 PM ET/8 PM in Great Britain & Ireland
    Find the time in your time zone here:
    https://www.timeanddate.com/worldcl...ine+support+group&iso=20240220T13&p1=220&ah=1

    Topic: Moving from Shame to Pride: Moving Away from Inappropriate Guilt

    Support Group Format

    Both monthly support groups are designed to include people with ME/CFS, FM, Long COVID, and co-existing conditions. We also welcome supporters and loved ones.

    These sessions are led by a licensed professional who has personal experience navigating life while living with a complex chronic illness. Each session includes a topic and guided discussion. Participants are encouraged to participate to their comfort level which may include listening, communicating in the chat box, and/or sharing verbally with the group.

    We strive to foster an inclusive and accepting environment for all!

    Advance Registration Required.

     
    Last edited: Feb 10, 2024
    Dolphin, Feb 10, 2024
    #98
    Peter Trewhitt, shak8 and ahimsa like this.
  19. Dolphin

    Dolphin Senior Member (Voting Rights)

    Messages:
    5,317
    Last edited: Feb 13, 2024
    Dolphin, Feb 13, 2024
    #99
    Starlight, ahimsa, Sean and 3 others like this.
  20. Dolphin

    Dolphin Senior Member (Voting Rights)

    Messages:
    5,317

    https://www.youtube.com/watch?v=jObP1GwooOw



    New ECHO Recording Available to Watch Now!


    Long COVID and Post-Viral Syndromes ECHO: Pediatric and Young Adults


    What is an ECHO?


    Developed by Dr. Sanjeev Arora in 2003 at The University of New Mexico, Project ECHO (Extension for Community Healthcare Outcomes) is a collaborative medical education and care management model designed to provide best-practice specialty care to more people.


    An ECHO is a forum for health care professionals to come together, creating a network of knowledge, through case-based lectures & didactics.


    Bateman Horne Center and University of Utah Health ECHO teams host this excellent case-based learning series illuminating strategies for assessment and management of Long COVID (PASC), ME/CFS, and related comorbid conditions.


    In this presentation Dr. Alba Azola and Dr. Melanie Hoppers discuss pediatric and young adult cases of Long COVID & ME/CFS.


    • Review recent epidemiological data on Long COVID in the young adult population
    • Describe the proposed pathophysiologic mechanism involved in Long COVID
    • Special considerations for assessment and management of LC in adolescents and young adults (AYA)
    • Case discussions

    Note to community members:

    We advise viewers to always speak with their medical care team prior to making any adjustments or changes to their current care regimen.

     
    Dolphin, Feb 22, 2024
    #100
    ahimsa, Amw66, Sean and 3 others like this.
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