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Advocacy Projects and Campaigns

Page 12 of 16
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  1. Sly Saint

    How to get 'Voices from the Shadows' viewed by more people

    Sly Saint, Jun 7, 2018 ... 2
    Replies:
    26
    Views:
    4,725
    Sly Saint
    Jul 24, 2021
  2. Andy

    Discussion of suggestions for the ME/CFS Priority Setting Partnership, deadline 5th July - extended to 7th July.

    Andy, Apr 23, 2021 ... 3 4 5
    Replies:
    94
    Views:
    9,759
    Medfeb
    Jul 28, 2021
  3. Tara Green

    New Light Aware Card

    Tara Green, Aug 26, 2021
    Replies:
    3
    Views:
    1,146
    MeSci
    Aug 27, 2021
  4. Andy

    "Patient's Charter for ME/CFS/PVFS"

    Andy, Oct 7, 2021 ... 2
    Replies:
    20
    Views:
    2,578
    rvallee
    Oct 16, 2021
  5. Sly Saint

    #MEAction: Tell your Doctor that GET is gone

    Sly Saint, Nov 10, 2021
    Replies:
    7
    Views:
    1,808
    Sly Saint
    Dec 12, 2021
  6. NelliePledge

    small advocacy project: replacement for CFS/ME clinic patient manual

    NelliePledge, Jun 3, 2018
    Replies:
    7
    Views:
    2,204
    Sly Saint
    Dec 17, 2021
  7. Sly Saint

    ME/CFS sites promoting the Lightning Process

    Sly Saint, Jul 25, 2018
    Replies:
    2
    Views:
    2,195
    Sly Saint
    Dec 17, 2021
  8. Esther12

    [Time for commenting has passed]Birmingham UK CCG DRAFT Policy for the treatment of Chronic Fatigue Syndrome (CFS) / Myalgic Encephalomyelitis (ME)

    Esther12, Jul 30, 2018
    Replies:
    3
    Views:
    1,810
    Sly Saint
    Dec 17, 2021
  9. Cinders66

    Lancet photo competition for “original photographs that bring a fresh focus to a health story” -potential opportunity for awareness?

    Cinders66, Oct 22, 2019
    Replies:
    4
    Views:
    1,863
    Sasha
    Jan 5, 2022
  10. Jaybee00

    Expert source list for journalists on Long COVID. Compiled by Fiona Lowenstein and Betsy Ladyzhets

    Jaybee00, Nov 5, 2021
    Replies:
    1
    Views:
    1,089
    Jaybee00
    Jan 17, 2022
  11. PeterW

    A Picture of_ME: media images of ME

    PeterW, Feb 16, 2022
    Replies:
    7
    Views:
    1,256
    Trish
    Feb 19, 2022
  12. FMMM1

    Lobbying European Community for funding for ME/CFS Research

    FMMM1, Jan 4, 2019
    Replies:
    8
    Views:
    1,876
    FMMM1
    Mar 31, 2022
  13. Andy

    [National Institute of Health] Community Advisory Committee – Guidelines for the Design of Clinical Studies in ME/CFS

    Andy, Apr 15, 2022
    Replies:
    3
    Views:
    1,481
    Samuel
    Apr 20, 2022
  14. Wyva

    Help needed: Send messages to Hungarian pwME for my ME Awareness Day project

    Wyva, Apr 27, 2022 ... 2
    Replies:
    23
    Views:
    2,187
    Sarah
    May 8, 2022
  15. Andy

    Webinar: Challenging Disbelief and Disregard in relation to Medicine, Chronic Illness and Disability, 24th May 2022

    Andy, May 10, 2022
    Replies:
    1
    Views:
    1,111
    Arnie Pye
    May 10, 2022
  16. Phoebe

    ‘descriptions: a patient-led description of ME, composed from the words of people with ME’, a found poem by Alec Finlay

    Phoebe, May 20, 2022
    Replies:
    0
    Views:
    1,377
    Phoebe
    May 20, 2022
  17. Andy

    UK: Priority Setting Partnership for ME/CFS

    Andy, Mar 10, 2020 ... 10 11 12
    Replies:
    232
    Views:
    30,190
    bobbler
    May 21, 2022
  18. Sly Saint

    USA: #MEAction: Email Doctor Unger about the Misinformation at CDC

    Sly Saint, May 28, 2022
    Replies:
    0
    Views:
    1,040
    Sly Saint
    May 28, 2022
  19. Tara Green

    Help with Advocating - responding to claims that ME is a psychological illness

    Tara Green, May 25, 2022
    Replies:
    16
    Views:
    2,025
    Tara Green
    May 31, 2022
  20. Andy

    Exploration of the idea of a register of patient advocates

    Andy, May 27, 2022 ... 2
    Replies:
    23
    Views:
    2,424
    MSEsperanza
    Jun 7, 2022
Showing threads 221 to 240 of 309

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