Recent Activity
Activity stream for all registered members at Science for ME.
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Sean liked Hutan's post in the thread Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review.
The committee sent a letter to Cochrane which you can find here. S4ME: 2023 Open Letter to Cochrane - request for action on the ME/CFS...
May 21, 2024 at 10:45 AM -
Sean liked Trish's post in the thread Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review.
In out latest letter to Cochrane about harms we also formally presented the petition, including the list of organisations supporting the...
May 21, 2024 at 10:45 AM -
Sean liked Joan Crawford's post in the thread What are the necessary conditions and criteria for a theoretical model of ME/CFS?.
This is the overwhelming presentation in clinic. Patients repeatedly try and do x or y. Endlessly. Doom loop of try, fail. Rest up...
May 21, 2024 at 10:44 AM -
Lou B Lou liked Trish's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
A question on duration and scope of the project and funding: The orginal announcement of the project by the MEA, dated May 2023, says...
May 21, 2024 at 10:40 AM -
JellyBabyKid liked Trish's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
A question on duration and scope of the project and funding: The orginal announcement of the project by the MEA, dated May 2023, says...
May 21, 2024 at 10:39 AM -
Trish replied to the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
A question on duration and scope of the project and funding: The orginal announcement of the project by the MEA, dated May 2023, says...
May 21, 2024 at 10:37 AM -
Lou B Lou liked rvallee's post in the thread UK House of Lords/ House of Commons Questions.
None of this really takes into account the fact that the professional associations have declared their hostile intent and refusal to...
May 21, 2024 at 10:36 AM -
MEMarge liked Tony's post in the thread UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 (including PIP consultation).
This whole thing is based on a lie anyway. All other disabled based benefits have been disappearing year by year as they rolled them...
May 21, 2024 at 10:35 AM -
Lou B Lou liked SNT Gatchaman's post in the thread UniteToFight2024 Long Covid and ME/CFS conference, 15th and 16th May 2024.
One of the talks was pre-recorded and posted a couple of weeks ago. Dr Tom Molmans: "Addressing psychic trauma in Long COVID and...
May 21, 2024 at 10:35 AM
