Recent Activity
Activity stream for all registered members at Science for ME.
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Amw66 liked NelliePledge's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
That was my thought at the start of the project- yay let’s get rid of the Chalder questionnaire. But “hey it’s not as bad as Chalder”...
May 21, 2024 at 11:45 PM -
Amw66 liked NelliePledge's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I think it was mentioned a few months ago that the project is taking longer than anticipated.
May 21, 2024 at 11:44 PM -
Amw66 liked Trish's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
A question on duration and scope of the project and funding: The orginal announcement of the project by the MEA, dated May 2023, says...
May 21, 2024 at 11:44 PM -
rvallee liked Hutan's post in the thread Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review.
That's wonderful @Yann04, great work.
May 21, 2024 at 11:41 PM -
rvallee liked NelliePledge's post in the thread Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review.
:thumbup: Great news you can message me :thumbup:
May 21, 2024 at 11:41 PM -
rvallee liked Yann04's post in the thread Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review.
They agreed to sign! Who can I private message to send the proof? And also share some questions they asked me, looks like we might get a...
May 21, 2024 at 11:41 PM -
rvallee liked Hutan's post in the thread News from Germany.
That's a pretty impressive turnout. Numbers like that surely build momentum.
May 21, 2024 at 11:40 PM -
alktipping liked DigitalDrifter's post in the thread The “Permanent Worsening” Phenomenon.
Trish it says long term but not permanent. I've never seen a published paper say permanent. The closest I've seen is this:...
May 21, 2024 at 11:32 PM -
alktipping liked Trish's post in the thread The “Permanent Worsening” Phenomenon.
You're right, but any of us with long term worsening can't see into the future. Some people with very severe ME/CFS for years do...
May 21, 2024 at 11:31 PM -
alktipping liked Dx Revision Watch's post in the thread Lightning Process - discussion thread.
Moved posts https://www.sayer.abel.co.uk/MESNORFOLK/LP.html This web page has been created as a place for people to record, in the...
May 21, 2024 at 11:31 PM -
Trish liked EndME's post in the thread Open John Hopkins Long Covid Study (Survey; Open Worldwide).
I had no problems accessing the survey after completing the "I am not a robot" phase. Took me slightly longer than 30 mins....
May 21, 2024 at 11:31 PM -
alktipping liked Lou B Lou's post in the thread Lightning Process - discussion thread.
2020 Interview about Lightning Process, with ME patient and advocate Joan McParland (Founder and former Chair of Hope 4 ME & Fibro...
May 21, 2024 at 11:31 PM -
alktipping liked DigitalDrifter's post in the thread Lightning Process - discussion thread.
https://www.bbc.com/news/health-69040592.amp Discussed on this thread: BBC: Long Covid course [LP] is ‘exploiting people’, says ex-GB...
May 21, 2024 at 11:30 PM -
alktipping liked Caroline Struthers's post in the thread Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review.
The new Chair of Cochrane Governing Board is Susan Phillips https://www.cochrane.org/news/cochrane-new-board-chair-announcement....
May 21, 2024 at 11:29 PM
