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But surely if a recognised name/term exists for a particular 'illness' then that is what they should use, along with specifying the diagnostic criteria they are using to identify patients. What if instead of using RA they used chronic joint pain (CJP) and then applied the findings to RA...

As I posted elsewhere, I don't get why researchers are allowed to use abstract terms for illnesses that do not officially exist (ie on the WHO ICD-10/11). This paper (as far as we are able to read it) uses CF (chronic fatigue), Crawley uses CDF. so therefore this is not only misleading but...

I am reminded of a comment at the other place (a long time ago) from @Lucibee "the only tool a statistician should use on the CFQ is a sharp stick"

CBT’s House of Cards? 14th Aug 2019 http://www.cbtwatch.com/ (Dr Mike Scott)

I thought they *were* 'the experts'......or at least the SMC keeps making out that they are. Or was the 'expert advice' from the same person/people who deduced that half the working population had a score under 85?

A Biopsychosocial framework for clinical practice- 14- 15 March 2020 by University College of Osteopathy https://www.eventbrite.co.uk/e/a-biopsychosocial-framework-for-clinical-practice-14-15-march-2020-tickets-54641040824

MA Photography student's work on display at ME conference https://flexible.falmouth.ac.uk/about/news-and-events/view,ma-photography-students-work-on-display-at-me-conference_270.htm The Royal Photographic Society’s 2019 Science Photographer Of The Year Shortlist...

NOTICE OF ANNUAL GENERAL MEETING NOTICE is hereby given that the 2019 Annual General Meeting of EMERGE AUSTRALIA INCORPORATED will be held at Ross House, 247-251 Flinders Lane, Melbourne on Thursday 21 November 2019 commencing at 6.00 pm...

that is just a 'fun example' see video on twitter https://twitter.com/ThePeoplesTrial egs eta: Professor Declan Devane outlines the project in a brief radio interview (from Aug8)...

Access the papers Using qualitative evidence synthesis to inform guideline scope and develop qualitative findings statements (led by Soo Downe) Using qualitative evidence synthesis findings to inform evidence-to-decision frameworks and recommendations (led by Simon Lewin) Using qualitative...

full details here https://www.evidentlycochrane.net/peoples-trial-fun-online-trial/ see also: https://thepeoplestrial.ie/about-us/ any way we can use this?

bodily distress syndrome (BDS)....... except this is not a recognised 'disorder' (apart from Per Fink) Can anyone just make up a name for an illness and publish research on it? (am thinking of Esther Crawleys CDF as well)

The mystery of screaming schoolgirls in Malaysia 11 August 2019 full article here https://www.bbc.co.uk/news/world-asia-48850490

BABCP Conference Programme Schedule 4th and 5th September 2019 Wednesday 4th September Symposia, 09.00 - 11.00 ACT for long term conditions Chair: Trudie Chalder, King’s College London Speaker: Chris Graham, School of Psychology, Queen's University Belfast Trudie Chalder, King’s College London...

Am posting this because it is apparently a common and treatable condition that might be 'overlooked' in an ME patient. https://vestibular.org/understanding-vestibular-disorders/types-vestibular-disorders/benign-paroxysmal-positional-vertigo NHS info...

A different article A bold decision to back a plan for a breakthrough full article https://www.eqt.com.au/about-us/media-centre/news-items/whats-new/a-bold-decision-to-back-a-plan-for-a-breakthrough

Contibutions from Dr Sarah Jarvis, Charles Shepherd (MEA), Sonia Chowdhury(AfME), Leonard Jason. although they do say it's not just 'tiredness' they do seem to focus on it! at least they didn't ask Michael Sharpe for his opinion.. full article here...

I live on my own. I was initially off work with what I thought was a flu bug for 5 days. I didn't have anyone to care for me so I had no option but to get out of bed, feed myself etc I attempted to returned to work but was sent home the same day. I was then diagnosed with pneumonia. Again, I...

Presumably the new Australian MEBiobank will be based on the UK one. @Simone it might be useful for you and others in Australia to watch the two Q&A sessions with members of the Cure ME / UK MEBiobank see thread here...

nice quote for tweeting etc