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  1. ArtStu

    Trial of Long Covid treatment - AXA1125 from Axcella Therapeutics, 2021

    I'm quietly hopeful of this working, it seems to fit with my feelings about what is wrong with me.
  2. ArtStu

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Have we a thread about this? https://www.ox.ac.uk/news/2021-10-29-oxford-test-potential-treatment-fatigue-long-covid-patients <blockquote class="twitter-tweet"><p lang="en" dir="ltr">What do you think of Oxford uni being able to trial this drug so quickly for exact same symptoms of exertional...
  3. ArtStu

    [Blog] BACME, NHS ME/CFS clinics shift from deconditioning to dysregulation model of ME/CFS in anticipation of updated NICE Guideline

    Dopamine works wonders for me. Mostly in the expectation of pleasure senario.
  4. ArtStu

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    I achieved what Ben has without any outside help, had I also had a desk job like Ben as opposed to my very physically demanding job in a factory I dare say I could also have got back to doing some work.
  5. ArtStu

    Trial By Error: Professor Jonathan Edwards’ View of ME (includes discussion of exercise and long-term harm)

    That's me, although I'd still describe myself as moderate. I'm lucky that I can prioritise walking above anything else to the benefit of my physical and mental health.
  6. ArtStu

    Trial By Error: Professor Jonathan Edwards’ View of ME (includes discussion of exercise and long-term harm)

    I'll PM you, explaining is always like swimming against a very strong tide, and I'm not a good swimmer.
  7. ArtStu

    Trial By Error: Professor Jonathan Edwards’ View of ME (includes discussion of exercise and long-term harm)

    I'll counter that by saying in some cases exercise helps some sufferers, it has certainly helped me.
  8. ArtStu

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    The link was on this page https://help.thetimes.co.uk/Help_TimesArticleDetail?ArticleNumber=000002047&Category=Times but didn't work, so I removed the extra https:// from the address.
  9. ArtStu

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    God that was hard to find, The Times Free access https://join.thetimes.co.uk/?pc=regacc&ILC=INT-TNL_Header_text_181017&gotoUrl=
  10. ArtStu

    Making payments into your UK State Pension to ensure you get a pension

    That's only partly correct. https://www.gov.uk/employment-support-allowance/eligibility My understanding was that you need to be in the support group and on contribution based ESA. The work related group was time limited to 12 months of contribution then converted to income related. However it...
  11. ArtStu

    Making payments into your UK State Pension to ensure you get a pension

    Worth checking here https://www.gov.uk/employment-support-allowance/types-of-esa
  12. ArtStu

    MEAction UK: Send your MP a message about the #MEdebate

    Done. I wasn't up to sending my MP a message before, wish I'd made the effort now.
  13. ArtStu

    Open Quality of life study

    We've had 3 days of snow cover here in my area of the UK, only about 2 inches or so, today it is mild and more or less all gone. I too love shovelling snow, I'm on a corner so have a fair bit of pavement to clear (not that I'm expected to here in the UK) I also clear the path in front of both my...
  14. ArtStu

    Action for M.E. hosts DWP spotlight training

    I don't understand the maths of that, so if they spent 40 hours a week on it they're earning £480,000 a year :jawdrop:
  15. ArtStu

    Coping with Christmas - start in Sept

    That's what I do, just another day for me.
  16. ArtStu

    ME leads to home repossession

    I obviously don't know all the details but you should be able to keep a hold of your house I'd have thought ? there is support out there https://www.gov.uk/support-for-mortgage-interest/eligibility
  17. ArtStu

    Stamina levels before ME/CFS?

    I did 12 hour shifts in a physical on your feet all day job before I got ill, I used to do 7 a week some weeks, walked to and from work too, no problem
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