2018

https://www.meaction.net/2018/08/08/july-2018-scientific-studies/

Source: Brighton & Hove Independent Date: August 7, 2018 Author: Amy Horsfield URL: https://www.brightonandhoveindependent.co.uk/news/health/scientist-joins-sussex-me-society-s-advisory-team-1-8593430 Scientist joins Sussex ME Society's advisory team...

This paper was mentioned on another thread here.

" Myalgic Encephalomyelitis, chronic fatigue syndrome, CFS/ME. These are just a few terms to describe one of the most destructive illnesses known to man. Manifesting as unrelenting fatigue and profound pain, ME/CFS is destroying the lives of 250,000 people in the UK. One in four are so...

Open access at http://journals.sagepub.com/doi/10.1177/2055102918792648

https://www.ncbi.nlm.nih.gov/pubmed/30076265 http://jpet.aspetjournals.org/content/early/2018/08/03/jpet.118.250845 (full PDF available)

Phoenix Rising: August 8th, 2018: Understanding and Remembrance Day for Severe ME https://phoenixrising.me/archives/29564 August 4, 2018 Have you heard of our Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance? Please join Jody Smith in observing this day and honoring the...

There might be things in these reporting guidelines that can be used to criticise someone ME/CFS trials. Free full text: https://trialsjournal.biomedcentral.com/articles/10.1186/s13063-018-2733-1 Reporting randomised trials of social and psychological interventions: the CONSORT-SPI 2018...

There might be things in these reporting guidelines that can be used to criticise someone ME/CFS trials. Free full text: https://trialsjournal.biomedcentral.com/articles/10.1186/s13063-018-2735-z CONSORT-SPI 2018 Explanation and Elaboration: guidance for reporting social and psychological...

Perhaps there is something interesting or more likely annoying (!) in this. Free full text: https://bjgp.org/content/early/2018/07/30/bjgp18X698321 Research Patients’ perspectives on GP interactions after cognitive behavioural therapy for refractory IBS: a qualitative study in UK primary and...

https://www.ncbi.nlm.nih.gov/pubmed/30063870 I wasn't sure whether to put this here or in the BPS forum so mods, please move it if BPS would be more suitable.

This is all I know so far - anyone know more? Programme: Helen Blaby Station: BBC Radio Northampton Datum: August 1, 2018 Time: 12:00 WebRadio: https://www.bbc.co.uk/programmes/p06cdjnv Item: Charles Shepherd and a phone-in

My good friend Catherine Hale who is lead researcher with Chronic Illness Inclusion Project has alerted me to this survey if anyone wishes to take part: https://mailchi.mp/c4d5906abe71/take-our-survey-on-chronic-illness-and-disability Ps. I have not yet taken the survey myself so can’t...

The CDC's Update for Healthcare Providers Last summer, the US Centers for Disease Control removed graded exercise therapy and cognitive behavior therapy from its website as recommendations for treatment of the illness it was by then calling ME/CFS. Its stated explanation for the change–that...

Just came upon this, published 10 May 2018: https://sandwellandwestbhamccg.nhs.uk/publications/harmonised-treatment-policies/1713-draft-policy-for-treatment-of-cfs-me-engagement-09-05-2018/file Their public engagement page says that the time for commenting has passed, so maybe not worth posting...

https://spoonseeker.com/2018/07/29/probing-the-holes-in-mus/

Don't know if ME will be a theme, but might be of interest nevertheless for some to be aware of: Medical stories and the public 12 November 2018 at Royal Society of Medicine, London For this special event, Stephen Fry, esteemed comedian, actor, writer, presenter, activist and expert...

Paywalled at https://www.medical-hypotheses.com/article/S0306-9877(18)30364-5/fulltext

Moderator note: This thread is for submissions made and submitted by various stakeholders on the draft scope for the NICE ME/CFS Guidelines Review. Discussions on the draft scope can be found in these threads: Discussion of first section of draft scope (members only) Discussion of second...

I was surprised that there doesn't seem to be a thread on this paper given it discusses a few times the survey that was run here. In this case, I found it difficult to know whether to put this in the biomedical or psychosocial research section. I didn't think it was a good fit for either...