2018

  1. Andy

    The Effect of Curcumin on Patients with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis: An Open Label Study, 2018, Visser et al

    Open access at http://www.scirp.org/journal/PaperInformation.aspx?PaperID=84389&#abstract
  2. Sly Saint

    Meta-analysis investigating post-exertional malaise between patients and controls, 2018, Jason and Brown

    Meta-analysis investigating post-exertional malaise between patients and controls First Published July 5, 2018 http://journals.sagepub.com/doi/full/10.1177/1359105318784161
  3. Indigophoton

    Intracranial compliance is associated with symptoms of orthostatic intolerance in chronic fatigue syndrome, Finkelmeyer et al, 2018

    http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0200068
  4. Dolphin

    Latent class analysis of a heterogeneous international sample of patients with myalgic encephalomyelitis/chronic fatigue syndrome (Leonard Jason team)

    https://www.tandfonline.com/doi/full/10.1080/21641846.2018.1494530
  5. Andy

    Are ME/CFS Patient Organizations “Militant”?, 2018, Blease and Geraghty

    Paywalled at https://link.springer.com/article/10.1007/s11673-018-9866-5
  6. Andy

    Insights into myalgic encephalomyelitis/chronic fatigue syndrome phenotypes through comprehensive metabolomics, 2018, Lipkin et al

    Open access at https://www.nature.com/articles/s41598-018-28477-9
  7. W

    Gene activation precedes DNA demethylation in response to infection in human dendritic cells.

    Gene activation precedes DNA demethylation in response to infection in human dendritic cells Alain Pacis, Florence Mailhot-Leonard, Ludovic Tailleux, Haley E Randolph, Vania Yotova, Anne Dumaine, Jean-Christophe Grenier, Luis B Barreiro doi: https://doi.org/10.1101/358531 This article is a...
  8. R

    Dr Myhill’s complaint to GMC about PACE authors.

    Full letter (very long) and template for patients to submit their own complaints can be found here: https://t.co/YPXTiR7Vsc Dear Sir Terence ‘THE PACE STUDY AUTHORS COMPLAINT’ COMPLAINT RE AUTHORS OF PACE STUDY [Reference 1] I am referring such authors of the PACE TRIAL [Reference 1 below]...
  9. H

    The "Biology-First" Hypothesis: Functional disorders may begin and end with biology-A scoping review (2018)

    https://www.ncbi.nlm.nih.gov/pubmed/29956418 http://sci-hub.tw/https://onlinelibrary.wiley.com/doi/abs/10.1111/nmo.13394
  10. Barry

    UK: Strategies for contacting your MP about PACE, NICE and a parliamentary debate.

    This thread was created by moving posts from this thread. Several posts suggesting and agreeing to the move have been deleted or edited. My wife and I did in fact attend one of our MP's surgery appointments today. We had been allocated 10 mins and were in there more like 25 mins. Our MP is a...
  11. Andy

    Member comments wanted: Third section (What the guideline will cover) of the NICE ME/CFS guidelines draft scope

    The consultation for the draft scope closes 26 July 2018 at 5pm. Therefore, we need members to look at each section of the draft scope and provide feedback, in order to inform any comment that S4ME may make on the draft. So please read the below and comment away! (Full document can be found...
  12. Andy

    Member comments wanted: Second section (Who the guideline is for) of the NICE ME/CFS guidelines draft scope

    The consultation for the draft scope closes 26 July 2018 at 5pm. Therefore, we need members to look at each section of the draft scope and provide feedback, in order to inform any comment that S4ME may make on the draft. So please read the below and comment away! (Full document can be found...
  13. Andy

    Member comments wanted: First section (Why the guideline is needed) of the NICE ME/CFS guidelines draft scope

    The consultation for the draft scope closes 26 July 2018 at 5pm. Therefore, we need members to look at each section of the draft scope and provide feedback, in order to inform any comment that S4ME may make on the draft. So please read the below and comment away! (Full document can be found...
  14. Sly Saint

    MAGENTA (Managed Activity Graded Exercise iN Teenagers and pre-Adolescents) - Esther Crawley

    https://bmjopen.bmj.com/content/6/7/e011255 " Study design This study started in September 2015 and recruitment is expected to finish in August 2016. This is a feasibility RCT with integrated qualitative methods." " Ethical considerations GET, CBT and activity management are recommended as...
  15. Indigophoton

    Application of head scraping combined with five-tone therapy in CFS of liver qi stagnation, Meiling et al, 2018

    From the google translation of the paper, which is in the Journal of Clinical and Pathological Research, http://lcbl.amegroups.com/article/view/25451 I presume head scraping is this procedure applied to the head: https://en.wikipedia.org/wiki/Gua_sha?wprov=sfla1 While five-tone therapy is...
  16. C

    BBC News: MP Carol Monaghan leads campaign for new ME treatment

    Pretty good article on BBC news website about recent parliamentary debate “Chronic fatigue syndrome, or ME, is incorrectly treated, lacks sufficient funding and is poorly understood by many in the medical profession - according to an MP who has been campaigning in Parliament to change...
  17. Sasha

    Dysautonomia International Conference 2018 (Nashville, TN)

    Merged threads - MEAction are tweeting from the conference. Here's their Twitter thing: https://twitter.com/MEActNet This is some big dysautonomia conference and might be very interesting.
  18. E

    Rochdale Online: MP calls for “much more to be done to tackle ME”

    Rochdale Online: MP calls for “much more to be done to tackle ME” http://www.rochdaleonline.co.uk/news-features/2/news-headlines/119844/mp-calls-for-much-more-to-be-done-to-tackle-me Liz McInnes, Member of Parliament for Heywood and Middleton, has called for “much more to be done to tackle ME”...
  19. Andy

    Review: Magnesium and stress, 2018, Cuciureanu and Vink

    Full text at https://www.ncbi.nlm.nih.gov/books/NBK507250/
  20. Andy

    Effects of a short-term aquatic exercise intervention on symptoms and exercise capacity in individuals with CFS/ME, 2018, Broadbent et al

    Paywalled at https://link.springer.com/article/10.1007%2Fs00421-018-3913-0
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