2018

Cognitive behaviour therapy for distress in people with inflammatory bowel disease: A benchmarking study First published: 11 September 2018 https://doi.org/10.1002/cpp.2326 https://onlinelibrary.wiley.com/doi/full/10.1002/cpp.2326 so it was tried before and it made no difference, but the...

So what's happening with the MAGENTA trial? I’ll be in Bristol later this week for the CFS/ME Research Collaborative’s annual conference. I was not welcome last year, since I was at that point engaged in harshly criticizing the organization for its unwillingness to acknowledge that its deputy...

http://voicesfromtheshadowsfilm.co.uk/paediatric-mecfs/ Two videos, 12 and 14 minutes. The link also lists other resources for Pediatric ME/CFS. ME/CFS in children and young people Part 1 - diagnosis, symptoms and controversies Part 2 - management. Thanks to @Tom Kindlon for flagging this up...

Chronic fatigue syndrome patients have alterations in their oral microbiome composition and function Taiwu Wang , Lei Yu , Cong Xu, Keli Pan, Minglu Mo, Mingxiang Duan, Yao Zhang , Hongyan Xiong Published: September 11, 2018 https://doi.org/10.1371/journal.pone.0203503...

Unraveling the Molecular Determinants of Manual Therapy: An Approach to Integrative Therapeutics for the Treatment of Fibromyalgia and Chronic Fatigue Syndrome/Myalgic Encephalomyelitis Received: 2 July 2018 / Revised: 4 September 2018 / Accepted: 7 September 2018 / Published: 9 September 2018...

http://www.mdpi.com/2075-4418/8/3/64

Julia M Terman, Jessica M Awsumb, Joseph Cotler, Leonard A Jason http://journals.sagepub.com/doi/abs/10.1177/1359105318796906

#MEAction: NIH Update: Collins Will Meet With #MEAction Representatives! The persistent dedication of our community to fight for our lives continues to yield results. We are pleased to announce #MEAction has secured a meeting with Dr. Francis Collins, Director of the National Institutes of...

Prevalence and incidence of myalgic encephalomyelitis/chronic fatigue syndrome in Europe—the Euro-epiME study from the European network EUROMENE: a protocol for a systematic review https://bmjopen.bmj.com/content/8/9/e020817

Acceptance and Commitment Therapy for MuScle Disease (ACTMuS): Protocol for a two-arm randomised controlled trial of a brief guided self-help ACT programme for improving quality of life in people with Muscle diseases Trudie Chalder et Al From above: "ACT is a newer type of cognitive...

This starts with some Action for ME video that I've seen before. Then it goes on to discuss the young woman's case, and progression to full-time work!!! There is also a link to the NHS page which still recommends CBT and GET... Station: TeessideLive / AfME Date: September 2, 2018 WebTV...

This is the kind of article I hate. Trying to be sympathetic but perpetuating the psychological myth. https://www.thetimes.co.uk/article/kirsty-young-must-go-softer-on-herself-during-break-from-desert-island-discs-2pkjdbfbn Includes: I worry, though, that Young’s affliction is a form of...

RSM The NHS at 70 Podcast: Episode 8: Prof Sir Simon Wessely, President of the RSM - The Challenges for Mental Health In this episode, Professor Sir Simon Wessely, Regius Professor of Psychiatry & Past President of the Royal College of Psychiatrists, discusses the changing attitude towards...

(I'm not on Facebook so I don't know any more than this) Source: ME Association Date: August 31, 2018 URL: ME/CFS Workshop | Clinical Learning 2 | Thursday 4 October 4.00-5.00pm ---------------------------------------------------------- Key messages for primary care on the diagnosis and...

Source: Journal of the American Medical Association (JAMA) Vol 320, #8, p 750 Date: August 28, 2018 URL: https://jamanetwork.com/journals/jama/article-abstract/2698504 Chronic Fatigue Care -------------------- Bridget Kuehn, MSJ A new CDC website aims to improve the diagnosis and care of...

This is all that is currently available, presumably the PubMed page will be updated once publication occurs. https://www.ncbi.nlm.nih.gov/pubmed/30151552?dopt=Abstract

Open access at https://www.hindawi.com/journals/prm/2018/9014232/

Source: Solve ME/CFS Initiative Date: September 13, 2018 Time: 15:00-16:00 UTC URL: https://register.gotowebinar.com/register/7863577812392103170 Appropriately and Accurately Assessing Symptoms in Patients with ME ---------------------------------------------------------- Join Leonard A...

Professor Edwards' Letter to MRC's Fiona Watt Professor Edwards signed the open letter to The Lancet. He originally wrote his own letter to Professor Watt in confidence. Since she has now strongly endorsed PACE in her letter to The Times, he has given me permission to post what he wrote.

Trial By Error: Another Letter to BMJ's Dr Godlee Last week, The Times ran an article about the open letter to The Lancet concerning the PACE trial, quickly followed by a piece in The BMJ. This morning, I e-mailed the following letter to Fiona Godlee, editor-in-chief of The BMJ and editorial...