2018

  1. T

    "Passive standing tests for the office diagnosis of postural tachycardia syndrome: New methodological considerations" (Peter Rowe team 2018)

  2. H

    Loss of Transient Receptor Potential Melastatin 3 ion channel function in natural killer cells from CFS/ME (2018) Cabanas, Marshall-Gradisnik et al

    https://www.ncbi.nlm.nih.gov/pubmed/30134818 https://molmed.biomedcentral.com/articles/10.1186/s10020-018-0046-1
    • hixxy
    • Thread
    • 2018 calcium channels marshall-gradisnik me/cfs natural killer cells ncned paper staines
    • Replies: 4
    • Forum: ME/CFS research
  3. Esther12

    Canary/Topple on GMC not investigating PACE: The UK’s General Medical Council just threw 250,000 disabled people under a bus

    https://www.thecanary.co/opinion/2018/08/22/the-uks-general-medical-council-just-threw-250000-disabled-people-under-a-bus/ I was going to complain about another piece using the 'all in the head' line, but it seems like this is tied up to personal things with his partner who has EDS III: Good...
  4. Kalliope

    Sweden - RME news

    Several threads have been merged ME-conferences in Sweden Oct 17th and 18th 2018 RME, the Swedish patient organisation, invites once again to two conferences about ME this autumn. Some of the programme is in English, and some in Swedish. (I have translated the Swedish parts for this post)...
    • Kalliope
    • Thread
    • 2018 2019 2020 2021 betsy keller conference komaroff me/cfs nilsson organisation pem rme ron davis scandinavia sommerfelt sweden video virtual conference
    • Replies: 68
    • Forum: News from organisations
  5. Kalliope

    David Tuller: Trial By Error: FITNET-NHS Recruitment Ad Promotes ''Recovery''

    Trial By Error: FITNET- NHS Recruitment Ad Promotes "Recovery" A British medical education company has recently disseminated a recruitment ad for a high-profile pediatric study of treatment for what it calls CFS/ME. The recruitment ad’s headline describes the intervention being investigated as...
  6. Kalliope

    "The effect of a person-centred and strength-based health intervention on recovery among people with chronic illness", 2018, Heggdal et al

    The effect of a person-centred and strength-based health intervention on recovery among people with chronic illness Am not able to read this study today, but browsed it, and when I found this, decided to post it here in case someone here can and will go through this more thoroughly. Beyond...
  7. Sly Saint

    USA - Mayo clinic

    This thread has been formed by merging several threads about the Mayo clinic and it's approach to treating ME/CFS Supposed treatments for ME CFS - plus overview by Mayo clinic https://www.drugs.com/condition/chronic-fatigue-syndrome-cfs.html Content supplied by Mayo clinic...
    • Sly Saint
    • Thread
    • 2018 2019 2021 cbt central sensitization david tuller get mayo clinic me/cfs motivational treatment trial by error usa video website
    • Replies: 160
    • Forum: USA clinics and doctors
  8. Sly Saint

    CBT for MUS therapist training day, Bolton, UK, 21st August 2018

    Moderator note: This post and several subsequent posts have been moved from this thread. Posts requesting the move have been deleted. CPD Chronic Fatigue Syndrome 21 August @ 09:00 - 16:30 The University of Bolton now offers a variety of Continuing Professional Development (CPD) events in...
  9. Sly Saint

    Cardiopulmonary Exercise Test Methodology for Assessing Exertion Intolerance in ME/CFS, 2018, Stevens et al

    Provisionally accepted. Cardiopulmonary Exercise Test Methodology for Assessing Exertion Intolerance in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Staci Stevens1, Chris Snell1, Jared Stevens1, Betsy keller2 and J. Mark VanNess3* 1Workwell Foundation, United States 2Department of...
    • Sly Saint
    • Thread
    • 2018 cpet exercise exercise physiology mark vanness me/cfs paper pem stevens symptoms workwell
    • Replies: 20
    • Forum: ME/CFS research
  10. Sly Saint

    The expression signature of very long non-coding RNA in myalgic encephalomyelitis/chronic fatigue syndrome, 2018, Chin-An Yang et al

    The expression signature of very long non-coding RNA in myalgic encephalomyelitis/chronic fatigue syndrome Chin-An YangView ORCID ID profile, Sandra Bauer, Yu-Chen Ho, Franziska Sotzny, Jan-Gowth Chang† and Carmen Scheibenbogen...
    • Sly Saint
    • Thread
    • 2018 chin-an yang immunology me/cfs metabolism paper rna
    • Replies: 15
    • Forum: ME/CFS research
  11. Andy

    Longitudinal associations of lymphocyte subsets with clinical outcomes in chronic fatigue syndrome, 2018, Schmaling et al

    Paywalled at https://www.tandfonline.com/doi/abs/10.1080/21641846.2018.1426371?journalCode=rftg20
    • Andy
    • Thread
    • 2018 immunology me/cfs paper schmaling
    • Replies: 0
    • Forum: ME/CFS research
  12. Andy

    Home-based family focused rehabilitation for adolescents with severe Chronic Fatigue Syndrome, 2018, Burgess et al (inc Chalder)

    Paywalled at http://journals.sagepub.com/doi/abs/10.1177/1359104518794764?journalCode=ccpa
  13. Andy

    Cytotoxic Profiling of Endogenous Metabolites Relevant to CFIDS on p53 Variant Human Colon Carcinoma Cell Lines, 2018, Vukmirovic et al

    Full title: Cytotoxic Profiling of Endogenous Metabolites Relevant to Chronic Fatigue Immune Dysfunction Syndrome (CFIDS) on p53 Variant Human Colon Carcinoma Cell Lines Open access at http://journals.sagepub.com/doi/10.1177/1559325818790999
    • Andy
    • Thread
    • 2018 cancer immunology me/cfs paper vukmirovic
    • Replies: 4
    • Forum: ME/CFS research
  14. Esther12

    Petrie & Rief (2018) Psychobiological Mechanisms of Placebo and Nocebo Effects: Pathways to Improve Treatments and Reduce Side Effects

    I didn't think that this was that interesting but as there's often discussion about differing views on placebo/nocebo effects, and Petrie wrote a poor quality attempt at semi-defending PACE, I thought I'd post it. The paper was largely about just self-reported symptoms, and this little bit...
  15. Indigophoton

    Metabolic features and regulation of the healing cycle—A new model for chronic disease pathogenesis and treatment, Robert K Naviaux, 2018

    Not specifically about ME, but includes CFS in the list of conditions considered. https://www.sciencedirect.com/science/article/pii/S1567724918301053#tf0005
    • Indigophoton
    • Thread
    • 2018 allostatic load antipurinergic therapy cell danger response chronic illness healing cycle integrated stress response m0 m1 m2 mitochondria metabokines metabolic memory mitochondria mitochondrial nexus naviaux purinergic signaling
    • Replies: 71
    • Forum: Other health news and research
  16. MeSci

    SMCI webinar Lisette Duarte, August 30, 2018, on children/schools

    Pasted as received apart from formatting: Source: Solve ME/CFS Initiative Date: August 30, 2018 Time: 17:00-28:00 UTC URL: https://register.gotowebinar.com/register/141286537318847234 Ref: https://www.youtube.com/user/SolveCFS Back to School Part 1: 504 Education Plans and Medical...
  17. Joh

    Event: BACCH: "Navigating the minefield: MUS and FII", 7th Dec. 2018

    Agenda: Safeguarding children with CFS, Pervasive refusal syndrome, Gathering evidence – the police experience
  18. Hoopoe

    Dry eye syndrome and the subsequent risk of CFS — a prospective population-based study in Taiwan (2018) Tse-Yen Yang et al

    Background and Aim The clinical association between dry eye syndrome (DES) and chronic fatigue syndrome (CFS) remain unclear with less evidences. We aimed to investigate the relationship between CFS and DES using a national insurance and prospective cohort study. Methods Data from the...
    • Hoopoe
    • Thread
    • 2018 dry eye syndrome me/cfs paper symptoms taiwan
    • Replies: 22
    • Forum: ME/CFS research
  19. Kalliope

    Netflix "Afflicted" - ME included

    Netflix has today launched a new series about seven people with chronic illnesses. One of these seven is ME patient Jamison Hill. (And did I spot dr. Jarred Younger in the trailer?) Here is presentation of the series, interview with Jamison Hill and trailer from #MEAction Netflix Launches...
  20. ahimsa

    Medscape: "New Clinical Practice Guidelines, August 2018 Edition"

    I saw this on the Medscape website today. I think it's just a summary of recent changes posted on CDC website but I'm not sure. Full article (may require Medscape registration/login) - https://reference.medscape.com/viewarticle/900291_5
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