2018

MPs demand more biomedical research for cruel ‘death sentence’ disease | 22 June 2018 http://www.meassociation.org.uk/2018/06/mps-demand-more-biomedical-research-funding-for-cruel-death-sentence-disease-22-june-2018/ ME Association Press Release, By John Siddle, 21 June 2018. MPs demanded...

Two important actions in the #MEAction report on yesterday's Westminster debate: Thank the MPs who attended We need your help to keep the momentum going. Now more than ever, it’s crucial we have the capacity to sustain and grow the impact of this work. Donate today to our crowdfunding...

https://www.tandfonline.com/doi/abs/10.1080/09638288.2018.1481149?journalCode=idre20

Email from NICE. NICE consultation page is here, https://www.nice.org.uk/guidance/indevelopment/gid-ng10091/consultation/html-content-3 and direct link to the draft scope is https://www.nice.org.uk/guidance/GID-NG10091/documents/draft-scope-2 NICE committee recruitment page is here...

https://spoonseeker.com/2018/06/20/a-morass-of-mus/

http://researchbriefings.parliament.uk/ResearchBriefing/Summary/CDP-2018-0155#fullreport

For years dismissed as 'laziness', but now cruel disease is finally getting attention it deserves Rochdale News: "Now a three-hour Westminster Hall debate on Thursday afternoon (21 June, 1.30 to 4.30 pm), supported by the ME Association and other charities, will discuss treatments and research...

http://www.meassociation.org.uk/2018/06/the-me-association-to-fund-six-student-bursaries-for-2018-cmrc-research-conference-19-june-2018/

http://www.pbs.org/independentlens/blog/2017-18-independent-lens-audience-award-survey/ No need for any login, just select Unrest and click the vote button. Post from the Unrest Facebook page

Full paper (via sci-hub)

As a NICE stakeholder, S4ME can have input on this update process. I can't imagine that there is much, if any, interest here, we've got lots of other things to be getting on with, but just in case somebody wants to look at it...

The Royal Australasian College of Physicians Annual Congress was held in May in Sydney https://www.racp.edu.au/fellows/resources/congress-presentations-2018 There was a Tuesday session on 'Medically Unexplained Symptoms - Is it all in your head?' with four speakers. Professor Lorimer Mosely -...

Put this in the biomed ME sub-forum as ME is one of the articles tags and one of the authors is De Meirleir. Paywalled at https://www.sciencedirect.com/science/article/pii/S0955286318301761?via%3Dihub

Exploring more ways to take advantage of children. Open access at http://bmjopen.bmj.com/content/8/6/e022894

https://www.actionforme.org.uk/uploads/images/2018/05/Draft_Chair_approved_mins_24.4.18.pdf I don't know if this has already been published, it's the April CMRC minutes. I looked it up to see what was most recent. It seems Sonya chowdhurys time and salary is largely devoted to her role and work...

Source: Zeitschrift fur Gastroenterologie Vol 56, #6, pp 573-577 Date: June 2018 URL: https://www.thieme-connect.de/products/ejournals/abstract/10.1055/a-0596-7981 Severe eosinophilic colitis caused by neuropathic agents in a patient with chronic fatigue syndrome and functional abdominal...

Hello from the Solve ME/CFS Initiative. We want to share our latest news and research with you, but we also want to respect your space and not spam the forums. In order to do that, we are starting a monthly thread where will we add all of the latest news from SMCI. Throughout the month we plan...

Communication just received from NICE

[I'm not impressed with the way the abstract for this study is written] https://www.tandfonline.com/doi/full/10.1080/21641846.2018.1477034 Original Articles Double-blinded placebo-controlled cross-over pilot trial of naltrexone to treat Gulf War Illness Kori L. Brewer...

your thoughts, please ? https://medicine-program.uq.edu.au/project/managing-chronic-fatigue-using-scientific-insights-n-1-studies