2018

  1. Andy

    Cerebral blood flow and heart rate variability predict fatigue severity in patients with chronic fatigue syndrome, 2018, Staud et al

    Paywalled at https://link.springer.com/article/10.1007%2Fs11682-018-9897-x
  2. Andy

    Circadian rhythm abnormalities and autonomic dysfunction in patients with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis, 2018, Cambras et al

    Open access at http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0198106
  3. Indigophoton

    NHS: The Improving Access to Psychological Therapies Manual, June 2018

    I'm not sure if this has been posted yet. Just published with the topic 'Mental Health'. (Emphasis added). https://www.england.nhs.uk/publication/the-improving-access-to-psychological-therapies-manual/
  4. Indigophoton

    OMF/Mark Davis Research Update, June 2018

    The latest update from OMF, about 9 minutes long. Summary: Their interest is T lymphocytes, which are prime movers of the immune system and come in several different flavours. They have been studying them for 35 years. Have seen evidence of major T cell activity in the blood of ME/CFS...
  5. Andy

    Operationalizing Substantial Reduction in Functioning Among Young Adults with Chronic Fatigue Syndrome, 2018, Jason et al

    Paywalled at https://link.springer.com/article/10.1007%2Fs12529-018-9732-1
  6. E

    David Tuller: Trial By Error: A Letter to Health Officials About BMJ’s Lax Editorial Standards

    Trial By Error: A Letter to Health Officials About BMJ’s Lax Editorial Standards http://www.virology.ws/2018/06/06/trial-by-error-an/ 6 June 2018 By David Tuller, DrPH I am not sure what is going on at BMJ and why editors there seem incapable of acknowledging their flawed decision-making...
  7. Sasha

    UK 7 June 2018 | MSPs discuss ME treatment on Holyrood Live

    https://www.bbc.co.uk/news/live/uk-scotland-scotland-politics-44355292 There are four items on the summary of what will be discussed, and the first is: The petition committee takes evidence from a young ME sufferer calling for a review of treatment I think there might be another thread on...
  8. Sasha

    UK Tues 5 June 2:30 pm - live on Parliament TV - Carol Monaghan to ask for debate on ME

    Only just seen this: Edit: Here's a link to it online (it was earlier this afternoon), which starts just as the discussion begins: https://parliamentlive.tv/event/index/50fb53f3-c6ea-4848-8e5d-c00d6a52f005?in=14:30:20 Thanks to @Andy for that link.
  9. John Mac

    Article: The State of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome Research in 2018

    https://patientworthy.com/2018/06/04/state-chronic-fatigue-syndrome-research-2018/ Comments are allowed. Perhaps people could thank the author and add to the information in the article.
  10. Kalliope

    Briefing paper for parliamentary debate.

    This post and some others following have been moved from another thread. A bit disturbing Facebook post from Invest in ME just now... Apparently a debate in parliament is happening today with Carol Monaghan picking up the thread from her previous debate. However, the document from which she is...
  11. Daisymay

    Journal of IiME Research, May 2018

    http://www.investinme.org/Documents/Journals/Journal%20of%20IiMER%20Vol%2012%20Issue%201.pdf Journal of IiME Research, Volume 12, Issue 1, May 2018
  12. Andy

    Solve ME/CFS Initiative Webinar: "Crossroad of the immune response and the microbiome: Impact on ME/CFS" with Derya Unutmaz, Thurs 19th July 2018

    Register for the livestream here, https://register.gotowebinar.com/register/8156426135278094337 I'm sure it will also appear on YouTube shortly afterwards.
  13. Indigophoton

    Deconstructing post-exertional malaise in myalgic encephalomyelitis/ CFS: A patient-centered, cross-sectional survey, Chu et al, 2018

    http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0197811
  14. Sly Saint

    Two-Year Follow-Up of Impaired Range of Motion in Chronic Fatigue Syndrome - Peter C. Rowe ,MD +

    THE JOURNAL OF PEDIATRICS " Performing the ROM examination was more likely to provoke increased fatigue and other abnormal symptomatic responses in those with CFS (40vs 4%;P<.001).19 Subsequent work has shown that in response to a 15-minute passive straight leg raise maneuver, individuals with...
  15. Andy

    Hair and salivary cortisol in a cohort of women with chronic fatigue syndrome, 2018, Roerink et al

    Paywalled at https://www.sciencedirect.com/science/article/pii/S0018506X1730569X
  16. Andy

    Structural brain changes versus self-report: machine-learning classification of CFS patients, 2018, Staud et al

    Paywalled at https://link.springer.com/article/10.1007%2Fs00221-018-5301-8
  17. Simone

    Decreased Expression of TRPM3 and mAChRM3 in the Small Intestine in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (2018) Staines et al

    Authors: Marshall-Gradisnik, Fretel, Eaton, Cabanas, Balinas, Gopalan, Petersen, Passmore, Tang, Haque, Lam, and Staines Journal: International Journal of Clinical Medicine (May, 2018) ABSTRACT Introduction Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) is often associated with...
  18. Indigophoton

    Comparing Post-Exertional Symptoms Following Serial Exercise Tests, Mateo et al, 2018

    Mark VanNess, PhD presented at the annual meeting of the American College of Sports Medicine. Lariel Mateo presented at the University of the Pacific’s Undergraduate Research and Creativity Conference. http://www.workwellfoundation.org/research-and-latest-news/
  19. Binkie4

    Forward ME Group minutes 1st May 2018

    http://www.forward-me.org.uk/1st May 2018.htm Long agenda with some interesting topics: 1. Carol Monaghan becomes deputy Chair 2. Afme's new advocacy member based in Geneva is introduced 3. An ME patient, Mrs Nina Muirhead was introduced by CS. She is a doctor, a surgeon, did not cover ME in...
  20. MeSci

    Closed meeting June 28, 2018 at National Institutes of Health

    Source: U.S. Federal Register Vol. 83, #105, p 25025 Date: May 25, 2018 URL: https://www.federalregister.gov/documents/2018/05/31/2018-11722/center-for-scientific-review-notice-of-closed-meetings https://www.gpo.gov/fdsys/pkg/FR-2018-05-31/pdf/2018-11722.pdf [A Notice by the National...
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