2018

  1. Indigophoton

    Graded exercise self-help for chronic fatigue syndrome in GETSET, Twisk, 2018

    I don't think this has been posted yet - by @FrankTwisk, http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(18)30673-1/abstract
  2. Sly Saint

    #MillionsMissing 2018 UK

    I know there are already a couple of threads on #Millions Missing for the UK (ie London, Southampton) but as they are all likely to be on the same day (12th May) and the info largely the same thought a general one might be a good idea. #MillionsMissingManchester albert square, manchester 12th...
  3. Allele

    Virology Blog: Can the big ship NIH turn at all?

    http://www.virology.ws/2018/04/05/can-the-big-nih-ship-turn-at-all/
  4. Andy

    KPAX002 as a treatment for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): a prospective, randomized trial, 2018, Montoya et al

    Full article in PDF format here, http://www.ijcem.com/files/ijcem0065685.pdf
  5. V

    Angiotensin II Type 1 Receptor Autoantibodies in Postural Tachycardia Syndrome, 2018, Yu et. al.

    https://www.ncbi.nlm.nih.gov/pubmed/29618472 other authors include Dr. Satish Raj and Dr. Kem of the University of Oklahoma.
  6. Kalliope

    David Tuller lecture: CFS (aka ME) - Challenging the accepted dogma through research journalism

    Video from University of Tasmania of lecture held by David Tuller April 4, 2018 Chronic Fatigue Syndrome (aka ME) - Challenging the accepted dogma through research journalism Duration: 1 hour
  7. Andy

    Lower regulatory frequency for postural control in patients with fibromyalgia and chronic fatigue syndrome, 2018, Stensdotter et al

    Open access at http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0195111
  8. Andy

    SEID/CFS is common in sleep centre patients with hypersomnolence: A retrospective pilot study, 2018, Trotti et al

    Paywalled at https://onlinelibrary.wiley.com/doi/full/10.1111/jsr.12689
  9. Sasha

    Trial By Error: A Terrific Piece about ME/CFS on Australian TV | 4 April 2018 | David Tuller

    Latest blog post: Read the whole thing at: http://www.virology.ws/2018/04/04/trial-by-error-a-terrific-piece-about-me-cfs-on-australian-tv/ I highly recommend watching the video, which is a lot easier to watch on YouTube (thanks, Andy!) - I couldn't control the Oz TV one: In the interview...
  10. Kalliope

    David Tuller - Trial By Error: A Post About Andrew Lloyd

    A Post About Andrew Lloyd I know folks are eager to hear more about what I’m learning in Australia. I’m finding it challenging to have meetings, prepare for talks, conduct interviews, promote the crowdfunding, keep up with my BMJ Open correspondence, and also write posts about what’s happening...
  11. Kalliope

    "It's like being a slave to your own body in a way": a qualitative study of adolescents with CFS

    Spotted a link to this study in a tweet by @Tom Kindlon It is a qualitative study from Norway with interviews of seven adolescents with ME. The names of the authors are unfamiliar to me and I didn't get that much from the abstract, so wasn't sure which forum to put this in but decided to go...
  12. Cheshire

    Tuller, Trial By Error: Our Latest Tango with BMJ Open…

    http://www.virology.ws/2018/04/02/trial-by-error-our-latest-tango-with-bmj-open/
  13. E

    David Tuller: Trial By Error: My Berkeley-Backed Crowdfunding Campaign

    Trial By Error: My Berkeley-Backed Crowdfunding Campaign 2 April 2018 By David Tuller, DrPH http://www.virology.ws/2018/04/02/trial-by-error-my-berkeley-backed-crowdfunding-campaign/
  14. Kalliope

    CFS Research Center at Stanford Second Annual Community Symposium Sept. 29-2018

    Moderator note: for ease of access,, the livestream recording link and links to threads for individual talks are here: (Times for the start of each talk in the lifestream recording hour:minute) Oystein Fluge (0:37) Wenzhong Xiao and Ron Davis OMF studies excluding metabolic trap (Xiao 1:11...
  15. adambeyoncelowe

    The aetiologic relation between disequilibrium and orthostatic intolerance in patients with myalgic encephalomyelitis (CFS), 2018, Miwa & Inoue

    http://www.journal-of-cardiology.com/article/S0914-5087(18)30058-3/fulltext#.WrzVHiFZs-E.twitter
  16. Webdog

    Pediatric chronic fatigue syndrome: current perspectives (Crawley)

    New Crawley publication in the journal Pediatric Health, Medicine and Therapeutics. https://www.dovepress.com/pediatric-chronic-fatigue-syndrome-current-perspectives-peer-reviewed-article-PHMT Edit: Fixed a mistyped date.
  17. Andy

    Scottish MP Carol Monaghan and her work for people with ME/CFS

    Moderation note: Several threads have been merged to create this thread on background and news about Carol Monaghan. Threads on specific events such as parliamentary debates can be found by clicking on the 'Carol Monaghan' tag above. Trial By Error: A Q-and-A with Scottish MP Carol Monaghan...
  18. D

    David Tuller's new crowdfunding campaign (April 1, 2018)

    The soft launch has started. The hard launch is on April 1st--that's when Berkeley formally announces all the campaigns. We're supposed to generate some interest by discretely sharing out links without posting it all over the universe yet. So here's mine...
  19. Kalliope

    David Tuller - Trial By Error: My Time in Canberra

    Trial by Error: My time in Canberra I’m in Sydney now, but last week I had a busy few days in Canberra. My hosts were the wonderful duo of Libby Steeper and Eleanor Flowers. They treated me like royalty and shepherded me around town to the various appointments they and others had organized.
  20. MeSci

    CFS/ME International Conference 2018 in Australia

    https://www.griffith.edu.au/griffith-health/events/ncned-cfsme-2018 CFS/ME International Conference ------------------------------- National Centre for Neuroimmunology and Emerging Diseases 26-27 November 2018 Crowne Plaze, Surfers Paradise, Queensland, Austraia Earlybird Registration...
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