2018

The MEAction website has info on how to set up or participate in #MillionsMissing protests on May 12, 2018. https://millionsmissing.meaction.net/get-started/

Spotted from @Tom Kindlon on Twitter Circulating extracellular vesicles as potential biomarkers in CFS/ME: an exploratory pilot study A growing body of evidence suggests that extracellular vesicles (EVs) play a role in cell-to-cell communication, and are involved in both physiological and...

http://www.virology.ws/2018/03/26/trial-by-error-yet-another-go-round-with-bmj-open/ Trish Groves and the BMJ have such an appalling record on CFS. And it's continuing here.

Available as a PDF download here, https://let-me.be/download.php?view.45, or view online here, https://docs.google.com/viewerng/viewer?url=https://let-me.be/request.php?45 Available as a PDF download here, https://let-me.be/download.php?view.45, or view online here...

The Herald: ME sufferers welcome 'unreliable' stamp on exercise report http://www.heraldseries.co.uk/news/16115734.ME_sufferers_welcome_criticism_of_report_that_told_them_to__exercise_more_/

http://gut.bmj.com/content/early/2018/03/17/gutjnl-2018-316133 Uses data generated from this study http://gut.bmj.com/content/65/12/1930

Posted elsewhere but creating a new thread for maximum visibility. Each stakeholder organisation is able to put forward two representatives again, currently S4ME only has Jo Edwards to represent us, so is there anybody who wants to go as our second rep? We would expect our rep to support the...

https://www.ncbi.nlm.nih.gov/pubmed/29562557

Forward ME Letter to The Times: Patients with ME/CFS ‘are not simply “deconditioned” as claimed by many psychiatrists’ | 23 March 2018...

This extensive study from the European Molecular Biology Laboratory (EMBL), examines the effects of more than 1000 human targeted drugs on 40 strains of the most dominant gut microbial species. It is published in the prestigious journal Nature, a reflection of the high quality of the research...

Free full text: https://bmcpsychology.biomedcentral.com/articles/10.1186/s40359-018-0218-3

Trial By Error: Checking in from Melbourne and Canberra… 21 March 2018 By David Tuller, DrPH http://www.virology.ws/2018/03/21/trial-by-error-checking-in-from-melbourne-and-canberra/

Copied direct from message to another ME group: The Dutch CFS-report was published today. Report (Dutch) https://www.gezondheidsraad.nl/sites/default/files/grpublication/kernadvies_me_cvs.pdf Background (Dutch)...

If any journalists would like a copy of this press release and the embargoed paper, just send me an email at tomkindlon at irishmecfs dot org or private message me (but I will need your full name) Please share widely on social media, by email, et cetera

There's nothing new in this article from 17th March 2018. It gives a short introduction to ME and biomedical research, debunks GET and CBT as treatments and writes about the research at Griffith University in Australia. The article was first published last year, and is now published again...

Tomorrow at 20:00 on the "NOS Journaal" (dutch national news): An item on ME/CFS as the Dutch Health Council will publish their long awaited advice/guidelines on ME/CFS tomorrow. Also a radio item on this tomorrow morning between 06:00 and 09:30 on NPO1-radio, I have not yet found the exact...

http://www.pbs.org/video/chronic-fatigue-syndrome-7rquhm/ I can’t find this posted....sorry if it is. It’s around 25 minutes and includes an ME advocate. Ron Davis is mentioned and a brief history of ME, including cluster outbreaks.

Source: Archives of Disease in Childhood Vol 103, Suppl 1, G18 Date: March 2018 URL: http://adc.bmj.com/content/103/Suppl_1/A7.2 Our chronic fatigue syndrome/encephalomyelitis service is nice, but is it patient friendly? experience of going beyond audit...

Source: Archives of Disease in Childhood Vol 103, Suppl 1, G13 Date: March 2018 URL: http://adc.bmj.com/content/103/Suppl_1/A5.3 Prevalence and correlates of low mood, poor quality of life and high symptom impact in adolescents attending a tertiary service for chronic fatigue syndrome/myalgic...

https://www.bbc.co.uk/programmes/p05y3tpw 2:11 in. Very good interview from knowledgeable, sympathetic interviewer and great interview by SC who I usually think is weak, not today. Covers numbers, why not better recognised /funded and cared for, how Sonya became AFME CEO and her son getting...