2018

Finally received email confirmation of this: Dear Colleague, NICE guideline: Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and management (Oct 2020) https://www.nice.org.uk/guidance/indevelopment/gid-ng10091 Guideline scoping workshop on Friday 25 May...

There are three posts on Emerges FB in reverse order. This is the correct order: Video 1 Video 2 Video 3 note: you might need to turn the sound on. hope this works, if not FB page is here https://www.facebook.com/EmergeAustraliaInc/

https://doi.org/10.1371/journal.pone.0193672

Discussion about the BACME conference prior to it starting is on this thread. https://www.s4me.info/threads/bacme-national-conference-14-15th-march-2018-‘changing-times’.1767/ It seems there was a BACME meeting this week 14-15 March. It included presentations from Ann McArdle on muscle...

From twitter Hit link.to see thread

Info here:

This is my letter in the lastest edition of Nature: https://www.nature.com/articles/d41586-018-03055-1 I wonder if I should have pushed for stronger language, but sometimes it is necessary to turn down the volume in order to be heard. And I’m pleased to have been able to raise concerns about...

Citation Picariello F, Moss-Morris R, Macdougall IC, et al Cognitive-behavioural therapy (CBT) for renal fatigue (BReF): a feasibility randomised-controlled trial of CBT for the management of fatigue in haemodialysis (HD) patients BMJ Open 2018;8:e020842. doi: 10.1136/bmjopen-2017-020842...

A step towards a new delimitation of functional somatic syndromes: A latent class analysis of symptoms in a population-based cohort study 2018 Marie Eliasen, Andreas Schröder, Per Fink, Svend Kreiner, Thomas Meinertz Dantoft, Chalotte Heinsvig Poulsen, Marie Weinreich Petersen, Lene Falgaard...

Exerpt: More at the link https://www.hippocraticpost.com/integrative/integrative-approach-me/ There is an opportunity for comments.

Caroline C. Kingdon, Erinna W. Bowman, Hayley Curran, Luis Nacul, Eliana M. Lacerda https://link.springer.com/article/10.1007%2Fs41669-018-0071-6

Emerge has just posted this on FB. "SBS is looking for people to go on camera who are severely affected with ME/CFS and have had difficulties with the NDIS. The Feed, a daily news and current affairs program on SBS Viceland, is making a 10-15 documentary about the latest research around ME/CFS...

Bateman Horne Center Published on Mar 10, 2018 BHC hosted the first annual ME/CFS Clinicians' Summit at the BHC Education Center on March 2-3, 2018. Clinicians from all over the country joined us to discuss treatment options and what research they would like to see to combat this devastating...

This thread has been split from this thread Afme joined this forum a few days ago.

The new paper mentioned later on in this thread, authored by Frank Comhaire, @ME/CFS, has been published, http://www.medical-hypotheses.com/article/S0306-9877(18)30105-1/fulltext

http://www.clinsci.org/content/132/5/523

Behav Sci (Basel). 2017 Aug 11;7(3). pii: E52. doi: 10.3390/bs7030052. FITNET's Internet-Based Cognitive Behavioural Therapy Is Ineffective and May Impede Natural Recovery in Adolescents with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. A Review. Ghatineh S1, Vink M2. Author information...

Well written exhaustive article about ME/CFS, lack of funding, politics, advocacy and current research. Includes an excellent chronology of ME/CFS since 1934. http://www.asbmb.org/asbmbtoday/201803/Feature/ME/

http://www.bbc.co.uk/programmes/p05x8dbm#playt=02h10m30s (Direct link) From yesterday Features a pwme, and Charles Shepherd. Unrest clip and mention of Q&A in Lincoln(?) Haven't listened to it all as v foggy Couldn't see another thread

...according to today's announcement about the CMRC's new purpose, objectives and values: https://www.s4me.info/threads/cmrc-agree-on-a-new-purpose-objectives-and-values-which-replace-its-previous-charter-march-2018-ec-also-to-leave-the-board-of-the-cmrc.2809/#post-50325 Should be interesting...