2019

Trial By Error: My Letter about MUS to the British Journal of General Practice http://www.virology.ws/2019/05/06/trial-by-error-my-letter-about-mus-to-the-british-journal-of-general-practice/ 6 May 2019 By David Tuller, DrPH Reuters reporter Kate Kelland informed me in January that my habit...

Only the abstract is available for time being. Endometriosis as a Comorbid Condition in Chronic Fatigue Syndrome (CFS): Secondary Analysis of Data from a CFS Case-Control Study Conclusions. We found that more than a third of women with CFS reported endometriosis as a comorbid condition. The...

Free full text: https://ir.library.osaka-u.ac.jp/repo/ouka/all/71746/ohs_05_055.pdf

Open access at https://journals.sagepub.com/doi/full/10.1177/2055102919840614

They take the LP study seriously and the authors are from UCL and Great Ormond Street Hospital - this was enough for me to post in Psychosocial Research sub-forum rather than Biomedical. Paywall...

Source: Clinical Therapeutics Preprint Date: May 1, 2019 URL: https://www.sciencedirect.com/science/article/abs/pii/S0149291819301638 Searching for serum antibodies to neuronal proteins in patients with Myalgic Encephalopathy/Chronic Fatigue Syndrome...

Epstein-Barr Virus dUTPase Induces Neuroinflammatory Mediators: Implications for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. https://www.ncbi.nlm.nih.gov/pubmed/?term=Williams PhD MV[Author]&cauthor=true&cauthor_uid=31040055 Abstract PURPOSE: Neuroinflammation is a common feature in...

https://www.surveymonkey.co.uk/r/afmebigsurvey Just to highlight this bit So Action for ME, a charity that are meant to represent pwME, have created a survey with so many questions that they put a warning on it that it might be too much for pwME to complete. Something seems wrong with that...

Might be more appropriate in Other Health News and Research sub-forum, especially considering who the authors are, but thought it could start here. https://www.sciencedirect.com/science/article/pii/S0889159119301333

http://www.virology.ws/2019/04/29/trial-by-error-my-latest-letter-to-bristols-legal-department/

https://www.facebook.com/CornellMECFSCenter/posts/1052010814990357 Final slide https://neuroimmune.cornell.edu/videos/NIH_ME-CFS_April2019_AlexMandarano.mp4 ETA: If you can't get the video to play, check what browser you are using. For some reason, this video won't play in Chrome, but will...

By Open Medicine Foundation full article here: https://www.sanluisobispo.com/news/state/california/article229756099.html [have looked at the link but can't find the published paper?] eta: link now works this one takes you to where it's listed...

Crawley's team churn another paper out. Open access at https://bmcmedresmethodol.biomedcentral.com/articles/10.1186/s12874-019-0730-z

Open access at https://journals.sagepub.com/doi/full/10.1177/2055102919838907

I thought that this was interesting and would be interesting to do with ME so we target our education efforts better. I was wondering whether it Can be incorporated into #MISSINGMILLIONS when our people are on the streets , perhaps giving out an information leaflet alongside? Tbh I suspect few...

Paywall, https://bjgp.org/content/early/2019/04/22/bjgp19X702425 Currently not available via Sci-hub.

Open access at https://molmed.biomedcentral.com/articles/10.1186/s10020-019-0083-4

The recently revised Auckland clinical guidance document is not officially available to the public (just medical professionals) but has been circulated by some advocates; this is how I first obtained a copy of the document. Some of the issues are: Name: Chronic Fatigue Syndrome - does not give...

Paywall, https://www.sciencedirect.com/science/article/pii/S0022399918307244?via%3Dihub Sci Hub, https://sci-hub.se/10.1016/j.jpsychores.2019.03.017