2019

https://www.mdpi.com/1660-4601/16/7/1247/pdf @Michiel Tack

(Not a recommendation) Chalder is one of the authors I can see it all here: https://books.google.ie/books?hl=en&lr=lang_en&id=_r-PDwAAQBAJ&oi=fnd&pg=PA455&dq="chronic+fatigue+syndrome"&ots=KEVN6RDnzd&sig=GjpKvzZRWoxdUaxLyRiFgSPhKDQ&redir_esc=y#v=onepage&q="chronic fatigue syndrome"&f=false...

Paywalled at https://www.clinicaltherapeutics.com/article/S0149-2918(19)30114-6/fulltext Not available at Sci-hub at time of posting.

Hi everyone, greetings from Germany the situation here in Germany is still pretty bad, even some MPs are now familiar or at least involved with ME/CFS organisations. The following petition still needs more signatures so we can make more pressure to the Health Ministry.... its all in german but...

Paywalled at https://journals.sagepub.com/doi/abs/10.1177/1359104519838584?journalCode=ccpa Sci Hub, https://sci-hub.se/10.1177/1359104519838584

https://www.frontiersin.org/articles/10.3389/fped.2019.00104/full

Agenda Introduction and Apologies Introduction of Professor Helen Dawes’ Research Discussions and questions relating to survey results Minutes of meeting held on 21st November NICE Guideline Development Group progress RCGP conference report and future arrangements DWP, IAS, Capita...

https://www.frontiersin.org/articles/10.3389/fimmu.2019.00796/abstract Full, open access, text here, https://www.frontiersin.org/articles/10.3389/fimmu.2019.00796/full ETA: Link to full text.

Paywalled at https://www.clinicaltherapeutics.com/article/S0149-2918(19)30112-2/fulltext

B-Lymphocyte Depletion in Patients With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Randomized, Double-Blind, Placebo-Controlled Trial https://annals.org/aim/article-abstract/2729813/b-lymphocyte-depletion-patients-myalgic-encephalomyelitis-chronic-fatigue-syndrome-randomized...

I haven't looked at this, but it sounds interesting and relevant. It is accepted by the CBT-GET promoters that there are biological changes in patients with ME. A key part of their argument has always been that psychotherapy can bring about or reverse biological changes. Here is a study that...

https://www.eventbrite.co.uk/e/new-frontiers-in-me-transforming-patient-safety-care-tickets-58827518692

We met with senior executives from the National Disability Insurance Agency, who administer the NDIS. Here’s what happened in the meeting: https://meaustralia.net/2019/03/30/disability-agency-consults-on-me-and-cfs/

This is a nursing qualitative research paper from Spain. Paywalled. Fibromyalgia, Chronic Fatigue Syndrome, and Multiple Chemical Sensitivity: Illness Experiences Abstract Fibromyalgia, chronic fatigue syndrome/myalgic encephalomyelitis, and multiple chemical sensitivity can be considered...

(Sorry if this has already been posted.) A MUS conference; Medically Unexplained Symptoms / Somatic Symptom Disorder Improving the Primary Care Response Wednesday 3 July 2019 The Novotel Conference Centre, Bristol "Improve your understanding of the breadth and diversity of PPS and MUS...

Source: Frontiers in Pediatrics Preprint Date: March 19, 2019 URL: https://www.frontiersin.org/articles/10.3389/fped.2019.00131/abstract Advances in ME/CFS: Past, Present and Future -------------------------------------------- Kenneth J. Friedman1 - Kenneth J. Friedman, Medical School...

A few minutes ago, Carol Monaghan asked a question in the House about children ( with ME) being removed from loving families . I didn’t get the whole of her question - sound was off and I had to quickly turn it up- but Prime Minister answered something to the effect that she wasn’t aware of...

SMCI Ramsay Award recipient and new researcher to the field. https://solvecfs.org/hector-bonilla/

https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0213724

http://www.virology.ws/2019/03/25/trial-by-error-the-cdcs-pathetic-response-to-reuters/