2019

http://healthinsightuk.org/2019/04/22/the-claim-that-the-cure-for-the-crippling-fatigue-of-mecfs-was-to-change-your-mind-always-seemed-bizarre-now-it-really-is-on-the-way-out/ So glad he has taken up the mantle and run with it!

Another one from the symposium that I found interesting - https://mecfsconference.org.au/videos/paulfisher/ Final slide to give an idea of the contents of the presentation.

https://redcap.rti.org/mecfs/surveys/?s=94JADKFCPC

Can't actually find this paper, but the abstract has been posted at Bath and I thought it might be of interest, even though they don't really say much: https://researchportal.bath.ac.uk/en/publications/physical-activity-patterns-among-children-and-adolescents-with-mi (Edit: Open access...

https://retractionwatch.com/2019/04/17/plos-one-pulls-highly-cited-mindfulness-paper-over-undeclared-ties-other-concerns/ Chalk another one up for James Coyne. I'm in two minds about Professor Coyne: his abrasive approach is quite often detrimental, in my view, especially for a patient...

Paywalled at https://www.tandfonline.com/doi/abs/10.1080/14680777.2019.1595694 Sci Hub, https://sci-hub.se/10.1080/14680777.2019.1595694

Register at https://register.gotowebinar.com/register/6221975071436912643

https://2tired.weebly.com/home/dismissal-of-young-people-with-me-by-nhs-professionals

Interview with prof. Komaroff by Dylan Murphy #MEAction: Professor Anthony Komaroff In your opinion, what needs to be done by public health authorities to bring about better health outcomes for people suffering from ME? One of the greatest causes of suffering among people with ME/CFS is that...

Copy and paste link https://youtu.be/8WlTkH_Wnsg Quite nice timing. I'm due to, finally, do my Q&A with Sadie later this month, if this video inspires a question you'd like me to ask her then add it to this thread...

https://www.meaction.net/2019/04/11/celebrating-our-wins-for-me/

https://www.efna.net/new-brain-mind-and-pain-book-of-evidence-released-for-the-2019-2024-eu-mandate/ Direct link to document (PDF), http://www.brainmindpain.eu/wp-content/uploads/2019/04/BMP-Book-of-Evidence-%E2%80%93-2019-2024-web.pdf

https://www.telegraph.co.uk/science/2019/04/10/irritable-bowel-syndrome-psychological-new-study-shows/ https://www.dailymail.co.uk/health/article-6909319/Talking-therapy-cure-IBS-better-drugs-study-reveals.html...

https://www.mdpi.com/2075-4418/9/2/41

https://translate.google.com/translate?hl=en&sl=da&u=https://dagensmedicin.dk/nok-er-nok-lad-laegerne-vaere-laeger/ Rest behind a paywall. Can anyone get access to the full article?

The Register of Interests for the NICE Guideline Committee has been published. [PDF] https://www.nice.org.uk/guidance/gid-ng10091/documents/register-of-interests Link to documents page: https://www.nice.org.uk/guidance/indevelopment/gid-ng10091/documents

https://journals.plos.org/ploscompbiol/article?id=10.1371/journal.pcbi.1006967 (I haven't a clue what any of this means but figured someone might find it of interest)

https://www.bacme.info/sites/bacme.info/files/BACME%20CFS%20ME%20National%20services%20survey%20March19.pdf