2019

  1. Suffolkres

    Claim (PACE) ME/CFS cured by changing mind on way out HealthInsightUK Blog post by Jerome Burne (2019)

    http://healthinsightuk.org/2019/04/22/the-claim-that-the-cure-for-the-crippling-fatigue-of-mecfs-was-to-change-your-mind-always-seemed-bizarre-now-it-really-is-on-the-way-out/ So glad he has taken up the mantle and run with it!
  2. T

    A possible link between recurrent upper respiratory tract infections and lower cytokine production in Q fever fatigue syndrome (Raijmakers et al,2019)

  3. Andy

    Video, Emerge Symposium 2019: Dr Paul Fisher, Specific Mitochondrial Respiratory Defects & Compensatory Changes in ME/CFS Patient Cells

    Another one from the symposium that I found interesting - https://mecfsconference.org.au/videos/paulfisher/ Final slide to give an idea of the contents of the presentation.
    • Andy
    • Thread
    • 2019 cellular stress emerge fisher mitochondria respiratory problems symposium video
    • Replies: 22
    • Forum: ME/CFS research
  4. Andy

    ME/CFS Early Career Investigator Survey

    https://redcap.rti.org/mecfs/surveys/?s=94JADKFCPC
  5. Esther12

    Esther Crawley (2019) Physical activity patterns among children and adolescents with mild-to-moderate CFS / ME [baseline accelerometer MAGENTA data]

    Can't actually find this paper, but the abstract has been posted at Bath and I thought it might be of interest, even though they don't really say much: https://researchportal.bath.ac.uk/en/publications/physical-activity-patterns-among-children-and-adolescents-with-mi (Edit: Open access...
  6. L

    PLOS ONE pulls highly cited mindfulness paper over undeclared ties, other concerns

    https://retractionwatch.com/2019/04/17/plos-one-pulls-highly-cited-mindfulness-paper-over-undeclared-ties-other-concerns/ Chalk another one up for James Coyne. I'm in two minds about Professor Coyne: his abrasive approach is quite often detrimental, in my view, especially for a patient...
  7. Andy

    Duvet woman versus action man: the gendered aetiology of Chronic Fatigue Syndrome according to English newspapers, 2019, Tobbell et al

    Paywalled at https://www.tandfonline.com/doi/abs/10.1080/14680777.2019.1595694 Sci Hub, https://sci-hub.se/10.1080/14680777.2019.1595694
  8. Andy

    Solve ME/CFS Initiative: Webinar, "Paths Forward in Research and Advocacy: Reflections on the 2019 NIH ME/CFS Conference", 25th April 2019

    Register at https://register.gotowebinar.com/register/6221975071436912643
  9. T

    Results of a survey of 151 families with ME on their experiences of the NHS

    https://2tired.weebly.com/home/dismissal-of-young-people-with-me-by-nhs-professionals
  10. Indigophoton

    Professor Anthony Komaroff, articles and videos, 2018 onwards

    Webinar Hot areas in ME/CFS research, 2018 At the link you can get the time for your timezone. https://register.gotowebinar.com/register/4424604504971632643
  11. Andy

    ME/CFS Alert, Episode 106: Interview with Sadie Whittaker, Chief Scientific Officer, Solve ME/CFS Initiative

    Copy and paste link https://youtu.be/8WlTkH_Wnsg Quite nice timing. I'm due to, finally, do my Q&A with Sadie later this month, if this video inspires a question you'd like me to ask her then add it to this thread...
  12. Andy

    #MEAction: Celebrating Our Wins for ME!

    https://www.meaction.net/2019/04/11/celebrating-our-wins-for-me/
  13. Andy

    New Brain, Mind and Pain Book of Evidence released for the 2019-2024 EU mandate

    https://www.efna.net/new-brain-mind-and-pain-book-of-evidence-released-for-the-2019-2024-eu-mandate/ Direct link to document (PDF), http://www.brainmindpain.eu/wp-content/uploads/2019/04/BMP-Book-of-Evidence-%E2%80%93-2019-2024-web.pdf
  14. Esther12

    "Answer to IBS is in the mind" - media coverage of new Chalder/Moss-Morris trial

    https://www.telegraph.co.uk/science/2019/04/10/irritable-bowel-syndrome-psychological-new-study-shows/ https://www.dailymail.co.uk/health/article-6909319/Talking-therapy-cure-IBS-better-drugs-study-reveals.html...
  15. John Mac

    Evidence of Clinical Pathology Abnormalities in People with ME/CFS from an Analytic Cross-Section (2019) Nacul et al.

    https://www.mdpi.com/2075-4418/9/2/41
  16. Hoopoe

    Danish doctors don't like that they can no longer treat ME as functional disorder

    https://translate.google.com/translate?hl=en&sl=da&u=https://dagensmedicin.dk/nok-er-nok-lad-laegerne-vaere-laeger/ Rest behind a paywall. Can anyone get access to the full article?
  17. S

    NICE Guideline Committee Register of Interests, 9 April 2019

    The Register of Interests for the NICE Guideline Committee has been published. [PDF] https://www.nice.org.uk/guidance/gid-ng10091/documents/register-of-interests Link to documents page: https://www.nice.org.uk/guidance/indevelopment/gid-ng10091/documents
  18. Sly Saint

    Recentrifuge: Robust comparative analysis and contamination removal for metagenomics - April 2019 - Jose Manuel Marti

    https://journals.plos.org/ploscompbiol/article?id=10.1371/journal.pcbi.1006967 (I haven't a clue what any of this means but figured someone might find it of interest)
    • Sly Saint
    • Thread
    • 2019 contamination jose manuel marti me/cfs metagenomics paper
    • Replies: 0
    • Forum: ME/CFS research
  19. T

    BACME CFS/ME National Services Survey Feb 2018 (Report Published March 2019)

    https://www.bacme.info/sites/bacme.info/files/BACME%20CFS%20ME%20National%20services%20survey%20March19.pdf
  20. Kalliope

    Update from Ron Davis April 2019 Interview with BenH

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