What big research questions do people with M.E., their carers and clinicians want answered? You are invited to a free workshop on Tuesday 10...
In my experience it can be difficult to get non-sufferers to properly engage with M.E. advocacy efforts. There can be many reasons for this....
#MEAction UK has a new project called "Take ME Seriously" Update: Anyone can join in this advocacy action. It is not just for UK residents. They...
A friend on mine (Evelien) has succeeded in getting a petition on ME accepted by the EU Parliament [link below*]. The petition highlights the...
The Solve M.E. group is organizing another ME/CFS Advocacy Week this year for April 19 – 26, 2020. ME/CFS Advocacy week returns from April 19 –...
MEAction has an article reporting on their "Cards to Koroshetz" campaign. They asked folks to send holiday cards to Dr. Koroshetz, Director of...
I love this art project about ME using book titles! #MEAction tweeted about this artist recently, which is how I discovered it, but here's a link...
It thought this was an idea worth considering, as online presence seems like one of the most powerful assets of the ME/CFS community. As I...
I'm looking for suggestions for (non-UK*) European speakers who could be good to give talks to ME/CFS patient groups in English. Medical doctors...
A new Canadian initiative has been launched to reach out and educate our new MPs post-election. We hope you'll consider downloading the letter,...
Activism and new ways of getting input from a much wider range of patients and communities are needed to advance patient and public partnership in...
ME Association: Speak Up for M.E. in the General Election: Contact Your Candidates!| 19 November 2019...
An excerpt from today's ME Action email about the #NotEnough4ME campaign: On Nov. 4th, NINDS Institute director, Dr. Walter Koroshetz, responded...
After a brief pause the "Postcards to Doctors" project has been relaunched as of Oct. 1. The aim of this project is to have patients (as well as...
After attending a very successful fundraiser over the weekend (I just attended it, did not organize it!) I thought it would be good to have a...
News about Evelien's testimony to Parliament has already been posted on the thread about the EU Petition but I thought the testimony deserved its...
The title pretty much says it all but I'll waffle a bit more. The idea is to provide a document that either provides those things that we have...
#MEAction advocate, Terri Wilder, and #MEAction board member, Ryan Prior, are co-presenting at the Stanford MEDx conference this weekend about how...
Apart from helping to guide NICE guidelines development & the Nina Muirhead higher education work The new physio professionals group Is...
Moderator note: This discussion has been moved from this thread: Concerns about craniocervical instability surgery in ME/CFS [MEDIA] [MEDIA]
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