awareness

Maybe campaign isn't the right word, it's more of a theme, very close to #MillionsMissing. It's gaining some steam, I've been seeing more of it lately. So basically #NotRecovered on social media with hashtags. Eventually some right combination of words will resonate and gain more presence. And...

Today, March 15, is Long Covid Awareness Day. I thought there should be a thread for news articles, social media posts (hashtag #LongCovidAwarenessDay), etc. I'll post a few links in replies to this thread. If this is already covered in another thread then please move! I searched but did not...

I wasn't sure where to post what will be the 2nd message in this thread, but it made sense to create a thread for it. There have been several substantial efforts so far in Germany, I've seen some in the US, on mass transit and highways, and it would probably be helpful to have a resource for...

This thread has news updates from the BHC. For threads on useful resources provided by BHC see the Resources forum. Ever-Growing Awareness by Lucinda Bateman, MD Mar 2, 2022 https://batemanhornecenter.org/evergrowing-awareness/

Abstract Objective: How can it be that a disease as serious as CFS affecting such a large number of people could be so unknown to the general population? The answer given to this question is based on Pierre Bourdieu’s analyzes of symbolic violence. Method: The “letters to the editor” by CFS...

A thread for article, events and anything else related to ME Awareness Day/Week/Month 2021.

I have started this thread as a lot of advocacy campaigns , and some research utilise online questionnaires to gather info. The James Lind Alliance use this format for their PSPs , and will do so for the ME one. As discussions elsewhere have highlighted , getting input from those severely...

Merged thread: 'Stock photos are terrible at depicting illness' http://www.slate.com/articles/health_and_science/medical_examiner/2017/11/stock_photos_are_terrible_at_depicting_mental_and_physical_illness.html They are particularly deplorable for ME... More threads on this topic Psychosocial...

" A day to remember everyone who is suffering or who has ever suffered from Severe and Very Severe Myalgic Encephalomyelitis. Severe ME Understanding & Remembrance Day : This day aims to bring public attention to the illness for the sake of all those presently suffering from Severe Myalgic...

https://www.cdc.gov/Features/cfsawarenessday/index.html?deliveryName=USCDC_201-DM28478

A life Hidden : This Is Love: An Appeal to Musicians full blog here https://alifehidden.com/2020/05/12/this-is-love/

full article here https://www.sherwoodparknews.com/news/local-news/park-resident-granted-premiers-council-award

Daily Mail: EXCLUSIVE: Barely able to leave the house, told they are exaggerating and even that their ailment does not exist: Three ME patients reveal their daily struggle with the crippling condition...

Merged threads "The charity, reMEmber, for people with ME (Chronic Fatigue Syndrome), has been awarded the grant by the Sussex Community Foundation for its Clinical Network and Children’s Service Project."...

full article here https://metro.co.uk/2020/02/20/woman-models-dances-wheelchair-george-asda-ad-show-ambulatory-wheelchair-users-exist-12262372/

M.E. bit starts around 11.00 https://betterknown.co.uk/2020/02/02/margot-livesey/ @Emsho

full article here https://www.independent.co.uk/life-style/health-and-families/young-carers-charity-support-mental-health-disability-awareness-carers-week-2019-university-a8946801.html

full article here https://www.lancs.live/news/lancashire-news/former-weightlifter-pendle-tells-how-17538569

It thought this was an idea worth considering, as online presence seems like one of the most powerful assets of the ME/CFS community. As I understand it, the main idea is to take one hour per week (Wednesday 8 PM London time), where we all tweet about ME/CFS so that it becomes a trending topic...