awareness

Saw this shared by the ME Association on Facebook... https://www.mirror.co.uk/news/real-life-stories/sufferer-spent-seven-years-bed-12952123

Great video interview "From Fit Nurse To ME Warrior With Ashanti Daniel" by Valentine Ewudo: https://thinkalpha.net/fit-nurse-to-me-warrior-ashanti-daniel/

http://ldifme.org/2018/05/18/whats-up-tv-wants-your-voice-for-me/

I used that headline to point out the power of marketing...How to get attention My name is Anthony Ross. I am a former Wimbledon player, psychologist, and before becoming ill the head of a tennis psychology company where I learned the power of marketing in the years leading to my illness. I am...

Bustle: "You may have noticed the hashtag #MillionsMissing trending on social media, or may have seen some landmarks lighting up blue over the past few days. That's because May 12 is International Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Awareness Day, and the folks posting in...

" A young mum who described herself as a party animal adrenaline junkie was left unable to cook, clean or wash herself by a disease some doctors don't think is real. Chantelle Parry, 31, fell ill with glandular fever two years ago. This set in motion a downward spiral that eventually led her...

" LOUGHBOROUGH MP Nicky Morgan has said she will work in Parliament to raise awareness of the devastating illness, ME. She spoke after joining viewers at a town screening of Unrest, an Oscar-shortlisted film by Harvard graduate Jen Brea which documents her life as a patient with Myalgic...

Interesting that this is another AfME initiative this time with University of Sussex " The annual call for day diaries by the Mass Observation Archive will take on a special significance this year, as it seeks to raise awareness of a debilitating neurological condition documented by previous...

" THIS week marks ME Awareness Week, culminating in a campaign day called ‘Millions Missing’ in cities across the world. Leamington and Stratford Observer deputy editor Laura Kearns is using this as a chance to speak out about her battle with the illness and talk to others with the condition...

http://www.somersetcountygazette.co.uk/news/16203102.Woman_tells_of_ME_experience_after_GP_said___pull_yourself_together_/ Good for her - the pictures alone capture the impact. Edit: added link.

Podcast Near FM - interview with Irish ME/CFS Association volunteer (2018) Debbie Mc Mahon speaks to Gerard Lawlor who is a volunteer with ME/CFS Association & he also suffers from ME. Gerard will talking about the work they do in the association & also about his life living with ME for the...

So many things I don't like about this article but thought I would leave it up to Australian advocates to pick up on. " Running to raise awareness Shepparton chronic fatigue sufferers have joined forces and will take part in a weekly parkrun event ahead of a national awareness day next...

"M.E awareness: Liberal Democrats look to kick-start campaign on the hidden disease In a motion to Council on the 22nd March, Liberal Democrat Councillors are looking to kick-start a campaign to raise awareness on the often overlooked and hidden disease; Myalgic Encephalomyelitis, otherwise...

"Date/Time: June 16, 2018 @ 7:30 pm Location: Marpole United Church (1296 West 67th Ave. Vancouver) Join the award-winning singers of Opera Mariposa and the Mariposa Theatre Wing for a gala concert in support of the ME/FM Society of BC! In Mariposa's sixth annual benefit show...

"Fibromyalgia/CFS patients fighting for awareness of career-ending illness For years medical profession has questioned if fibromyalgia or chronic fatigue syndrome are real Peter Dawe says fibromyalgia and chronic fatigue syndrome — diseases that can cause debilitating exhaustion, joint and...

The Solve ME/CFS Initiative will be returning to Washington DC for the second annual ME/CFS Advocacy Day on Tuesday, May 15, 2018. Save the date! More details and a link to register will be available soon. ME/CFS Advocacy day is a full-day on Capitol Hill bringing people with ME/CFS and their...

As the title explains, we are looking for suggestions on how S4ME might be able to join in with and promote May 12th and/or May ME Awareness Month, so please suggest away. It also looks like MillionsMissing are aiming to generate protests on the 12th May as well, so ideas around this are...

Article by Caroline Christian " Yesterday I woke to a blue rose. I should have known something was wrong when there was very little activity in my favorite ME/CFS groups on Facebook. Blue rose days are like that. The community retreats in silence and grief on these days. We are afraid to admit...

The programme will feature Cerys who was diagnosed with M.E. and describes how the illness has impacted her life. not listened to it yet: http://www.bbc.co.uk/programmes/b09k0n8y eta: I got this from the MEA twitter; from what I've just heard the girl has not actually been diagnosed with ME...

http://www.cnn.com/SPECIALS/cnn.heroes/2018/nominations/ Next years nominations are open. The visibility of gaining a top ten slot and also the final winner of the prestigious CNN Heroes Award would be a huge win for ME awareness. Who would you like to see in the public spotlight that could...