awareness

https://www.thesun.co.uk/fabulous/10615282/eight-years-convince-docs-me-unrecognisable/ eta: I wish they would get away from this thing that the 'pain' side of things is Fibro; ie ME causes pain too.

https://www.examinerlive.co.uk/news/west-yorkshire-news/picture-hides-illness-can-make-17432787 I feel sorry for the author

https://www.edinburghlive.co.uk/news/uk-world-news/tesco-sings-up-sunflower-lanyard-17367389 (could be good but not sure it will be that discreet if everyone knows what it stands for)

I haven't seen this posted. It's a personal account by a UK pwME who participated in a study, pre-PACE, using GET/CBT. Very unfortunately, and fairly predictably the author of this story worsened from this treatment. She notes that some others in the study did not have symptoms like hers...

write up on AfME website: https://www.actionforme.org.uk/news/bella-magazine-please-believe-me/ includes link to scan of article: https://www.actionforme.org.uk/uploads/images/2019/09/bella-please-believe-me.pdf still saying CBT is perfectly acceptable hmm Clare Ogden AfME double hmm

full article here https://www.booktrust.org.uk/news-and-features/features/2019/september/canaries-in-the-coalmine-why-marcus-sedgwick-is-writing-about-chronic-fatigue-and-illnesses-we-all-need-to-understand-better/

Our social media post... :) We really would welcome any feedback at any time! n.b. The website might look a little familiar with those that visited the 20000Missing.nz site that was used around May 2019 Awareness week in NZ (and set up by two parents of young adults with ME based in...

full blog here http://www.broadagenda.com.au/home/millionsmissing-gender-bias-adds-to-the-burden-of-disease/

"Dr. Rosamund Vallings Talks The Irish ME/CFS Association is pleased to announce that it has arranged for Dr Ros Vallings, a leading international ME expert from New Zealand, to give 5 ME/Chronic Fatigue Syndrome talks in Ireland this May. The talks will include questions-and-answers sessions."...

"Servando Castello, AKA “Low Battery Man" patient activist Servando Castello is taking to the streets of Spain and Portugal to raise awareness of ME/CFS and fundraise to support OMF’s research programs. Servando’s creativity is inspirational. " https://lowbatteryman.com/ Yandex translation.

Australia: International Awareness Day for Chronic Immunological and Neurological Diseases (CIND) including myalgic encephalomyelitis (ME) / chronic fatigue syndrome (CFS) Sandgate Town Hall will be lit up Blue for International Awareness Day for Chronic Immunological and Neurological Diseases...

People in the UK may have seen a lot of adverts recently for Versus Arthritis; I only found out just now that Versus Arthritis was formed in 2018 following a merger of Arthritis Care and Arthritis Research UK. (Arthritis Research UK are on the CMRC). Although I thought the earlier ads were a...

https://www.westerntelegraph.co.uk/news/17284361.walk-a-mile-in-my-shoes-trying-on-cwtchs-chronic-illness-symptom-suit/

from the Ulster Herald: " A BRAVE Omagh boy who has ME hopes his upcoming appearance on Children in Need will help inspire young people to ‘live life to the fullest’. Even though Mark McAnulla is only 13-years-old, he has courageously battled the side-effects of his ‘myalgic encephalomyelitis’...

Adam Bandt 19 September at 16:53 · The effects of myalgic encephalomyelitis, or ME for short, are devastating enough to leave 25 per cent of sufferers housebound or bedbound and an estimated 75 per cent unable to work. But, there are no government programs supporting ME awareness in Australia...

ME/CFS Awareness part 2 (note part 1 is also at the link below) " Our Story We were a normal everyday family, doing all the things that families do. It wasn’t until my daughter fell ill at twelve years old, that everything fell apart. It would start by her sleeping for two weeks at a time. It...

Sally DohertySaturday 25 Aug 2018 2:06 pm " I wake late, drag myself out from under my duvet and stumble to the kitchen. It would be a relief to have breakfast in bed but my husband works full time. He’s left me a bowl and a spoon on the side, and a sandwich awaits me in the fridge for lunch...

" Atlanta (CNN)Every morning, I shave, brush my teeth, and swallow a dozen pills. I look in the mirror and thank God I can even walk out the door. Since 2007, I've lived with an incurable disease known as chronic fatigue syndrome. Internationally, doctors call it myalgic encephalomyelitis, or...

HI everyone there is a feature on bbc radio five live about severe me today.with Charles shepherd ,a severe me person and also be a phone in . from 3pm. I''m severe / very severe and struggling today - so its on the me association website if any body could put up a link etc and if anyone...