ethics

  1. Daisymay

    Call for doctors to clearly declare any funding from industry

    In Baroness Julia Cumberlege report on the pelvic mesh etc scandal, calls for doctors to have to clearly declare any funding from industry. If the BPS doctors involvement with the insurance industry, for all these decades, had really been out there, clearly declared for all to see, with all...
  2. G

    Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS

    Note: There is also a members only thread discussing Reddit here Reddit thread on r/philosophy on the ethical questions involved in ME/CFS debate
  3. John Mac

    Correction: CFS/ME is different in children compared to in adults: a study of UK and Dutch clinical cohorts. 2019

    A correction has appeared in BMJ Open for a UK/Dutch study published in 2015. Esther Crawley was one of the original studies authors. https://bmjopen.bmj.com/content/9/11/e008830corr1 The original 2015 study: https://bmjopen.bmj.com/content/5/10/e008830
  4. M

    HRA (Health Research Authority) & Bristol University's report on E. Crawley's CFS/ME Studies over registration to the Research Ethics Committee (2019)

    The following posts have been moved from this thread. Have just noticed this on AfME website: https://www.actionforme.org.uk/news/me-research-hra-reviews-ethical-concerns/ @dave30th @Andy and...
  5. Sly Saint

    M.E., UK Research Ethics-Public Health Journalist Dr. David Tuller & Guests Nov 5 2019

    https://www.eventbrite.co.uk/e/me-uk-research-ethics-public-health-journalist-dr-david-tuller-guests-tickets-75779964915 eta: good date for it! can't wait for the fireworks.:emoji_boom:
  6. E

    Trial By Error: Where Is Bristol’s Review of Professor Crawley’s Ethics Missteps?

    Trial By Error: Where Is Bristol’s Review of Professor Crawley’s Ethics Missteps? http://www.virology.ws/2019/10/02/trial-by-error-where-is-bristols-review-of-professor-crawleys-ethics-missteps/ 2 October 2019 By David Tuller, DrPH I have repeatedly raised concerns about Professor Esther...
  7. rvallee

    Unethical work must be filtered out or flagged (Nature)

    How about paying attention to the people negatively impacted by it? Unfortunately there is no process for that and the victims of such unethical research are often vilified and attacked openly, hence the current problem. Lots more work ahead. Blatantly unethical research is growing in some...
  8. Cheshire

    Journal of Medical Ethics - Blog: It’s Time to Pay Attention to “Chronic Fatigue Syndrome” (2019) O'Leary

    https://blogs.bmj.com/medical-ethics/2019/03/05/its-time-to-pay-attention-to-chronic-fatigue-syndrome/?utm_campaign=shareaholic&utm_medium=twitter&utm_source=socialnetwork
  9. Andy

    Trial By Error: Who Has the School Study Documents?

    http://www.virology.ws/2019/03/04/trial-by-error-who-has-the-school-study-documents/
  10. Andy

    Blog: "Even the Ethics Committee says the PACE authors should share the patient-level data, so why does PLOS ONE not enforce its regulations...

    Full title: Even the Ethics Committee says the PACE authors should share the patient-level data, so why does PLOS ONE not enforce its regulations and compel them to? by some bloke called @JohnTheJack...
  11. Barry

    Ethical classification of ME/CFS in the United Kingdom (2019) Diane O'Leary

    Paywalled at: https://onlinelibrary.wiley.com/doi/full/10.1111/bioe.12559 Full access at: http://sci-hub.tw/10.1111/bioe.12559
  12. Kalliope

    David Tuller: Trial By Error: BMJ and Bristol's Ethics Exemptions

    BMJ and Bristol's Ethics Exemptions Earlier today, I sent the following e-mail to Dr Fiona Godlee, editorial director of BMJ. I cc’d Carol Monaghan MP, Darren Jones MP, and Nicky Morgan MP. I also cc’d Teresa Allen of the Health Research Authority.
  13. Andy

    Times Higher Education supplement: "Where are the ethics in academic publishing?"

    https://www.timeshighereducation.com/blog/where-are-ethics-academic-publishing
  14. Patient4Life

    Scientists, ethicists slam decisions behind gene-edited twins: By John Timmer - ARS Technica

    Scientists, ethicists slam decisions behind gene-edited twins
  15. Kalliope

    David Tuller: Trial By Error: How to Avoid Ethical Review

    How to avoid ethical review I have written many posts about BMJ Open’s 2011 school absence study, which reported that school absence records could be useful in identifying children with chronic fatigue syndrome. However, for reasons not yet adequately explained, the investigators exempted the...
  16. Kalliope

    Journal of Medical Ethics - National Standards for Public Involvement in Research: missing the forest for the trees (McCoy et al - 2018)

    National Standards for Public Involvement in Research: missing the forest for the trees Abstract Biomedical research funding bodies across Europe and North America increasingly encourage—and, in some cases, require—investigators to involve members of the public in funded research. Yet there...
  17. Snowdrop

    Algorithms and Ethics -- Santa Fe Institute

    I don't have anything to say on the topic but thought it might interest someone here. https://www.sfreporter.com/news/2018/09/19/algorithms-and-ethics/
  18. MeSci

    Science, Politics and the Internet: Challenges for Research into Contested Illness - Michael Sharpe

    I found some other pieces about 'Special Ethics' in relation to Michael Sharpe but they were earlier than this one. St Cross Special Ethics Seminar with Michael Sharpe Thursday, June 1, 2017 Event type: Academic Date: Thursday 1 June, 17:30 – 19:00 Venue: The Lecture Theatre, St Cross...
  19. Andy

    Children’s views on research without prior consent in emergency situations: a UK qualitative study, 2018, Woolfall et al (including Crawley)

    Exploring more ways to take advantage of children. Open access at http://bmjopen.bmj.com/content/8/6/e022894
  20. Allele

    Med Students Still Do Pelvic Exams on Women Under Anesthesia

    (Transcription available underneath video at the link, for those who don't do video.) https://www.medscape.com/viewarticle/896847?src=soc_fb_180529_mscpedt_news_mdscp_pelvicexams&faf=1
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