" #MEAction will host a seminar for clinicians recognizing and addressing post-viral ME/CFS. The seminar will be panel-style with time for...
email from #MEAction With support from a professional filmmaker, we are putting together a short film for #MillionsMissing 2020 in the UK. If you...
As part of #MEAction’s continued efforts to deliver medical education tools and events to healthcare professionals, #MEAction UK has organised a...
#MEAction has posted an interview with Dr. Lucinda Batemen of the Bateman Horne Centre of Excellence (BHC) for ME/CFS and Fibromyalgia. Dr....
"Hi everyone! Time for an update: We have super important news! The Committee on Petitions is preparing a resolution on ME! This is the...
#MEAction UK has a new project called "Take ME Seriously" Update: Anyone can join in this advocacy action. It is not just for UK residents. They...
From an e-mail from #MEAction: It’s already time to start thinking and planning for #MillionsMissing 2020! This year #MillionsMissing global...
MEAction has an article reporting on their "Cards to Koroshetz" campaign. They asked folks to send holiday cards to Dr. Koroshetz, Director of...
MEAction performed a survey earlier this year, gathering data to submit to NICE for their review of the ME guideline. I think there’s already a...
I haven't seen this posted. It's a personal account by a UK pwME who participated in a study, pre-PACE, using GET/CBT. Very unfortunately, and...
An excerpt from today's ME Action email about the #NotEnough4ME campaign: On Nov. 4th, NINDS Institute director, Dr. Walter Koroshetz, responded...
We know that our community continues to wrestle over the appropriate diagnostic criteria for myalgic encephalomyelitis to the point that it has...
Your experience of ME services - Survey report by #MEAction UK Article:...
After a brief pause the "Postcards to Doctors" project has been relaunched as of Oct. 1. The aim of this project is to have patients (as well as...
https://www.meaction.net/board-of-directors/ I don’t think this has been posted. The meetings are by video conference you don’t need to be US based.
News about Evelien's testimony to Parliament has already been posted on the thread about the EU Petition but I thought the testimony deserved its...
..almost as soon as ACT UP formed, a group within ACT UP realized: it would not be enough to inform the world of our plight and put the people in...
I would like to send the following proposal to ME Action, as it is currently in the process of specifying its core values and principles. I’m...
From an email newsletter. On behalf of #MEAction International’s board, staff, volunteers and everyone who form a part of our wider community, I...
#MEAction advocate, Terri Wilder, and #MEAction board member, Ryan Prior, are co-presenting at the Stanford MEDx conference this weekend about how...
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