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#meaction

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  1. Andy
    Thread

    ME Advocacy Network Australia (formerly MEAction Australia)

    From their Facebook post We are excited to announce that as of today we are rebranding as ME Advocacy Network Australia, affectionately known as...
    Thread by: Andy, Jun 24, 2019, 1 replies, in forum: General ME/CFS news
  2. rvallee
    Thread

    Congressman Jack Bergman becomes Champion for ME

    Up with the Marines! We are so pleased that Congressman Jack Bergman (R, MI-1), a former Marine general, has become a champion for people with...
    Thread by: rvallee, Jun 14, 2019, 7 replies, in forum: Advocacy Projects and Campaigns
  3. ahimsa
    Thread

    Introducing #MEAction’s 2019 ME Research Summary

    We are thrilled to announce the release of our 2019 research summary reviewing the most current and important research into myalgic...
    Thread by: ahimsa, Jun 13, 2019, 16 replies, in forum: Advocacy Projects and Campaigns
  4. Sly Saint
    Thread

    Scottish Parliament hearings and report on #MEAction Scotland petition - 2019/20

    Scottish Petitions Committee discussion on M.E./CFS [MEDIA]
    Thread by: Sly Saint, May 31, 2019, 23 replies, in forum: Advocacy Projects and Campaigns
  5. ahimsa
    Thread

    Need help with poster for Millions Missing event

    Hi, I have everything ready for the Sunday Millions Missing event except one item. I want to create a poster to put up near our table. I ended...
    Thread by: ahimsa, May 8, 2019, 14 replies, in forum: Advocacy Projects and Campaigns
  6. ahimsa
    Thread

    Need some input for a #MillionsMissing event in Beaverton, OR

    My husband and I are planning a small #MillionsMissing event at our local library in Beaverton, Oregon. We plan to set up a small table in front...
    Thread by: ahimsa, Apr 22, 2019, 12 replies, in forum: Advocacy Projects and Campaigns
  7. Andy
    Thread

    #MEAction: Celebrating Our Wins for ME!

    It has been been an exciting time for the myalgic encephalomyelitis (ME) community these past few weeks. We are in awe of the sacrifices and hard...
    Thread by: Andy, Apr 12, 2019, 1 replies, in forum: General ME/CFS news
  8. Sly Saint
    Thread

    Article in 'Philly voice' - This 'invisible illness' doesn't have a known cause or effective treatment

    Not a particularly bad article that quotes #MEAction a lot (The Myalgic Encephalomyelitis Action Network). However, I question the bit at the end...
    Thread by: Sly Saint, Apr 12, 2019, 0 replies, in forum: General ME/CFS news
  9. Andy
    Thread

    #MEAction Medical Travel Scholarship Award Winners

    A little late but still worth posting I think. Because of the generous donation from a private family foundation, #MEAction has been able to...
    Thread by: Andy, Apr 6, 2019, 0 replies, in forum: General ME/CFS news
  10. ahimsa
    Thread

    USA: ME/CFS Advocacy Week - Call or email your senators

    Most of us are not able to go to Washington, DC for this advocacy week. But there are still ways to make your voices heard! Today I called both...
    Thread by: ahimsa, Apr 3, 2019, 6 replies, in forum: Advocacy Action Alerts
  11. Robert 1973
    Thread

    #MEAction: A response to Dr Mark Porter’s article about ME in The Times

    https://www.meaction.net/2019/03/25/a-response-to-dr-mark-porters-article-about-me-in-the-times/ Last week, Dr. Mark Porter wrote an article in...
    Thread by: Robert 1973, Mar 25, 2019, 16 replies, in forum: General Advocacy Discussions
  12. Andy
    Thread

    MEAction: Our Community will Not Suffer Stigma and Distortion

    Last week was a difficult time for the ME community as we watched a few journalists deride and dismiss the medical concerns of an entire patient...
    Thread by: Andy, Mar 23, 2019, 18 replies, in forum: General Advocacy Discussions
  13. Andy
    Thread

    Are You a Young Person Affected by ME? How do you Visualize Health Equity? Join a National Contest

    The U.S. National Academy of Medicine (NAM) is holding a contest for young people (ages 5 to 26) to submit art, music, writing, videos, dance,...
    Thread by: Andy, Jan 12, 2019, 0 replies, in forum: Advocacy Projects and Campaigns
  14. Andy
    Thread

    David Tuller: Trial By Error: “Talk is Cheap,” Patients Tell NIH

    Earlier this month, NIH director Francis Collins and other agency officials held a meeting with five representatives from #MEAction. According to...
    Thread by: Andy, Dec 27, 2018, 93 replies, in forum: General ME/CFS news
  15. Andy
    Thread

    MEAction: " All I want for Christmas is #ScienceNotStigma"

    This Christmas, millions will be missing from parties and celebrations, because of the severity of ME. Yet the National Institute of Health and...
    Thread by: Andy, Dec 9, 2018, 13 replies, in forum: Advocacy Action Alerts
  16. Andy
    Thread

    #MEAction: "Let's start the values and policies process!"

    From an #MEAction email: A few months ago, #MEAction Executive Director Jennifer Brea released an open letter, outlining the importance of...
    Thread by: Andy, Dec 4, 2018, 3 replies, in forum: Advocacy Projects and Campaigns
  17. Andy
    Thread

    Solve ME/CFS Initiative: "Congress to HHS: What's replacing CFSAC?" [easy form to fill in to contact your reps]

    Congress to HHS: What's replacing CFSAC? ME/CFS must be represented! On September 6, the Secretary of Health and Human Services disbanded the...
    Thread by: Andy, Dec 4, 2018, 8 replies, in forum: Advocacy Action Alerts
  18. ahimsa
    Thread

    USA advocacy: Ask Congress to sign letter to HHS - NEW deadline Dec. 12

    I got an alert via email a couple days ago requesting folks in the USA to contact their congressional representatives. Signature deadline has...
    Thread by: ahimsa, Dec 3, 2018, 3 replies, in forum: Advocacy Action Alerts
  19. JaimeS
    Thread

    #MEAction ideas for Giving Tuesday

    A few things have begun to aggregate, so I figured I would start a new thread and post them here. First, #MEAction's general article on how to...
    Thread by: JaimeS, Nov 27, 2018, 0 replies, in forum: Fundraising
  20. Kalliope
    Thread

    #MEAction: Fall advocacy round-up - A season of protest and petition

    #MEAction: Fall advocacy round-up - a season of protest and petition An extensive summary of this autumn's advocacy work around the world. Quite...
    Thread by: Kalliope, Nov 16, 2018, 0 replies, in forum: General ME/CFS news
Showing results 41 to 60 of 100
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