me/cfs

"Visible tracks your post-viral illness so you can manage your activity, avoid relapse and improve your health." https://makevisible.co/ There's not a lot of detail on the website - it seems to be focused on heart rate monitoring and tracking of symptoms.

Abstract This review summarizes the symptoms and signs seen in patients with chronic fatigue syndrome (CFS). It is based on the authors' experience with two cohorts of approximately 510 patients with chronic debilitating fatigue and on the reported experience of other investigators with similar...

ABSTRACT Introduction: Research regarding students with myalgic encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) has been limited. This study aimed to understand how their subjective well-being had been affected by their condition by exploring their experiences and sense-making processes...

Illness-Related Cognition, Distress and Adjustment in Functional Stroke Symptoms, Vascular Stroke, and Chronic Fatigue Syndrome Abbeygail Jones , Abigail Smakowski , Alicia Hughes , Anthony S. David , and Trudie Chalder Abstract. Background: High rates of psychological distress are reported...

Differential Effects of Exercise on fMRI of the Midbrain Ascending Arousal Network Nuclei in Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) and Gulf War Illness (GWI) in a Model of Postexertional Malaise (PEM) preprint Abstract Background: Myalgic Encephalomyelitis / Chronic...

An attempt to explain the neurological symptoms of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome Klaus J. Wirth, Carmen Scheibenbogen and Friedemann Paul Abstract There is accumulating evidence of endothelial dysfunction, muscle and cerebral hypoperfusion in Myalgic...

Garbage article from The Times that uses ME as a punching bag and misrepresents everything. https://www.thetimes.co.uk/article/my-mother-munchausens-and-me-by-helen-naylor-review-7v8ts3w77 However, starting abruptly in 1991, when Elinor was in her thirties and Naylor was seven, her mother...

Moved from the NICE guidelines thread Following that Twitter thread eventually gives this link, Long COVID clinics (Mid and South Essex Health https://coronavirus.msehealthandcarepartnership.co.uk/localservicesandpathways/long-covid-clinics/ Which allows you to download the "Chronic...

CHRONIC FATIGUE SYNDROME (CFS) AND FIBROMYALGIA ARE VASCULAR DISEASE FREQUENTLY TRIGGERED BY PERSISTENT INTRACELLULAR INFECTIONS. The tissue hypoperfusion and cellular hypoxia that occurs in CFS is associated with dysfunctions of the cells of the vascular walls (endothelial cells and...

Abstract Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) differ for triggers, mode of start, associated symptoms, evolution, and biochemical traits. Therefore, serious attempts are underway to partition them into subgroups useful for a personalized medicine approach to...

Introduction What has been included under the umbrella term “Functional somatic syndromes” (FSS) has varied over the years. Diagnoses such as “somatoform” and “somatic symptom disorders,” as well as “medically unexplained symptoms,” have been included in FSS (1). Although there is no complete...

Abstract Objectives To explore factors perceived as positive or negative among young people with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) in relation to school and everyday life. Design A qualitative study with semistructured individual interviews performed at the local...

https://www.rcpch.ac.uk/resources/me-cfs-nice-clinical-guideline-member-briefing

NOT a recent FOI but from 2015 following the IOM report; many familiar names, thought it might be of interest here. https://www.whatdotheyknow.com/request/357691/response/883778/attach/2/FOI%20EH73066%20Redacted%20documents%20for%20release.pdf

After a long time and a lot of work, our hypothesis on the development of ME/CFS following an Epstein Barr virus infection has finally been published...

Abstract Aims. This paper explores socio-demographic, work and clinical characteristics that are associated with occupational status among patients who were assessed at baseline and a follow-up point. Methods. Longitudinal data were assessed from patients affected by CFS who attended an...

Hi all, not sure if this is the best place for this post.. Our 8 year old daughter is currently really struggling with the fact that I am ill, which is utterly heartbreaking. I was wondering if anyone had come across any resources for kids to help them come to terms with a parent who is ill? I...

Introduction: Chronic fatigue syndrome (CFS/ME) is a disabling disease severely impacting school attendance, education, and social life in young students. Uncertainties surrounding CFS/ME etiology may impact the interpretation of CFS/ME in schools. Thus, school personnel need information from...

Abstract The findings of controlled trials on use of intravenous immunoglobulin G (IV IgG) to treat myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) are generally viewed as representing mixed results. On detailed review, a clearer picture emerges, which suggests that the potential...

Red blood cell deformability is diminished in patients with Chronic Fatigue Syndrome Amit K. Saha, Brendan R. Schmidt, Julie Wilhelmy, Vy Nguyen, Abed Abugherir, Justin K. Do, Mohsen Nemat-Gorgani, Ronald W. Davis Clinical Hemorheology and Microcirculation 71 (2019) 113–116 DOI...