me/cfs

  1. O

    Post COVID-19 Syndrome in Patients with Asymptomatic/Mild Form, 2021, Malkova et al

    Abstract Post COVID-19 Syndrome (PCS) is a complex of various symptoms developing a month or more after the acute phase of the disease. The cases of PCS development among patients with asymptomatic/mild forms are frequently reported; however, the pathogenesis of PCS in this group of patients is...
  2. Andy

    United Kingdom: South Cumbria CFS Service (Physical Health Psychology)

    "The Physical Health Psychology team offer a range of services across Cumbria and North Lancashire to help you to manage your physical symptoms and live a happier, healthier life. We are a team of Healthcare Professionals made up of Psychological Practitioners, CBT Therapists, Occupational...
  3. Hutan

    Post-infectious disease syndrome, 1988, Bannister

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2428896/ Abstract Many post-infectious syndromes have been recognized in the last 50 years, some following viral infections and others closely related to bacterial disease. The occurrence of prolonged fatigue following an apparent viral illness of...
  4. Sly Saint

    A Botanical; Containing Cistanche & Ginkgo Extracts; Improves CFS Symptoms in Adults: A Randomized, Double-Blind, Placebo-Controlled study,2021,Kan

    A Botanical Product Containing Cistanche and Ginkgo Extracts Potentially Improves Chronic Fatigue Syndrome Symptoms in Adults: A Randomized, Double-Blind, and Placebo-Controlled Study Juntao Kan1†, Junrui Cheng1,2†, Chun Hu3†, Liang Chen1, Siyu Liu1, Dawna Venzon3, Mary Murray3, Shuguang Li4*...
  5. O

    Associations between long-term conditions and upper gastrointestinal cancer incidence: UK Biobank, 2021, Marley et al

    Associations between long-term conditions and upper gastrointestinal cancer incidence: A prospective population-based cohort of UK Biobank participants Abstract Upper gastrointestinal cancers (oesophageal/stomach) have high mortality rates and are often diagnosed after the disease has...
  6. Sly Saint

    Reclaiming terminology for ME/CFS

    Brain fog, and now post exertional malaise, terms that were until fairly recently only used to describe ME/CFS symptoms have been hijacked and become generic terms. Maybe we should learn from the Fibromyalgia community? They use fibro fog, there are many article on this (even the NHS recognise...
  7. Andy

    Monitoring app - Visible - a platform "designed for any invisible illness that benefits from resting and pacing - including ME/CFS & Long Covid."

    "Visible tracks your post-viral illness so you can manage your activity, avoid relapse and improve your health." https://makevisible.co/ There's not a lot of detail on the website - it seems to be focused on heart rate monitoring and tracking of symptoms.
  8. Sly Saint

    Symptoms and signs of chronic fatigue syndrome, 1991, Komaroff

    Abstract This review summarizes the symptoms and signs seen in patients with chronic fatigue syndrome (CFS). It is based on the authors' experience with two cohorts of approximately 510 patients with chronic debilitating fatigue and on the reported experience of other investigators with similar...
  9. Wyva

    Feeling like ‘a damaged battery’: exploring the lived experiences of UK university students with ME/CFS, 2021, Waite, Elliot

    ABSTRACT Introduction: Research regarding students with myalgic encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) has been limited. This study aimed to understand how their subjective well-being had been affected by their condition by exploring their experiences and sense-making processes...
  10. Sly Saint

    Illness-Related Cognition, Distress and Adjustment in Functional Stroke Symptoms, Vascular Stroke, and Chronic Fatigue Syndrome, 2021, Jones, Chalder

    Illness-Related Cognition, Distress and Adjustment in Functional Stroke Symptoms, Vascular Stroke, and Chronic Fatigue Syndrome Abbeygail Jones , Abigail Smakowski , Alicia Hughes , Anthony S. David , and Trudie Chalder Abstract. Background: High rates of psychological distress are reported...
  11. Sly Saint

    Differential Effects of Exercise on fMRI of the Midbrain Ascending Arousal Network Nuclei in ME/CFS and GWI in a Model of PEM, 2021, Baraniuk et al

    Differential Effects of Exercise on fMRI of the Midbrain Ascending Arousal Network Nuclei in Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) and Gulf War Illness (GWI) in a Model of Postexertional Malaise (PEM) preprint Abstract Background: Myalgic Encephalomyelitis / Chronic...
  12. SNT Gatchaman

    An attempt to explain the neurological symptoms of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome, Wirth et al, 2021

    An attempt to explain the neurological symptoms of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome Klaus J. Wirth, Carmen Scheibenbogen and Friedemann Paul Abstract There is accumulating evidence of endothelial dysfunction, muscle and cerebral hypoperfusion in Myalgic...
  13. rvallee

    The Times: My Mother, Munchausen’s and Me by Helen Naylor review — the tyrant in the sick bed

    Garbage article from The Times that uses ME as a punching bag and misrepresents everything. https://www.thetimes.co.uk/article/my-mother-munchausens-and-me-by-helen-naylor-review-7v8ts3w77 However, starting abruptly in 1991, when Elinor was in her thirties and Naylor was seven, her mother...
  14. Andy

    UK ME/CFS and Long Covid clinics not offering guideline compliant care accessible to all

    Moved from the NICE guidelines thread Following that Twitter thread eventually gives this link, Long COVID clinics (Mid and South Essex Health https://coronavirus.msehealthandcarepartnership.co.uk/localservicesandpathways/long-covid-clinics/ Which allows you to download the "Chronic...
  15. Mij

    CHRONIC FATIGUE SYNDROME (CFS) AND FIBROMYALGIA ARE VASCULAR DISEASE, 2021, Chang and Figueredo

    CHRONIC FATIGUE SYNDROME (CFS) AND FIBROMYALGIA ARE VASCULAR DISEASE FREQUENTLY TRIGGERED BY PERSISTENT INTRACELLULAR INFECTIONS. The tissue hypoperfusion and cellular hypoxia that occurs in CFS is associated with dysfunctions of the cells of the vascular walls (endothelial cells and...
  16. Sly Saint

    Tryptophan Metabolites, Cytokines, and Fatty Acid Binding Protein 2 in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2021, Simonato et al

    Abstract Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) differ for triggers, mode of start, associated symptoms, evolution, and biochemical traits. Therefore, serious attempts are underway to partition them into subgroups useful for a personalized medicine approach to...
  17. Andy

    Is Cognitive Change Necessary to Alleviate Symptoms in Patients With Functional Somatic Syndrome?, 2021, Maroti and Johansson

    Introduction What has been included under the umbrella term “Functional somatic syndromes” (FSS) has varied over the years. Diagnoses such as “somatoform” and “somatic symptom disorders,” as well as “medically unexplained symptoms,” have been included in FSS (1). Although there is no complete...
  18. Andy

    Factors related to educational adaptations and social life at school experienced by young people with CFS/ME: a qualitative study, 2021, Similä et al

    Abstract Objectives To explore factors perceived as positive or negative among young people with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) in relation to school and everyday life. Design A qualitative study with semistructured individual interviews performed at the local...
  19. Sly Saint

    UK RCPCH: Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS) - Member briefing on new NICE guideline

    https://www.rcpch.ac.uk/resources/me-cfs-nice-clinical-guideline-member-briefing
  20. Sly Saint

    FOI Documents relating to NICE response to the US IOM report on ME/CFS in 2015

    NOT a recent FOI but from 2015 following the IOM report; many familiar names, thought it might be of interest here. https://www.whatdotheyknow.com/request/357691/response/883778/attach/2/FOI%20EH73066%20Redacted%20documents%20for%20release.pdf
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