me/cfs

  1. Sly Saint

    Understanding The Molecular Changes of Post Exertional Malaise In ME/CFS, 2021, Elley

    Abstract: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a debilitating and often life-long condition affecting over 20,000 New Zealanders. Symptoms include muscle and joint pain, severe fatigue, unrefreshing sleep, hypersensitivity to light and sound, and cognitive dysfunction...
  2. S

    UK: Social prescribing on the NHS (and possible implications for ME/CFS services)

    This thread has been created by merging several threads on social prescribing BBC News: More 'social prescribers' to ease pressure on GPs. 28.01.19 https://www.bbc.co.uk/news/health-46999922
  3. Hutan

    Low-dose hydrocortisone in chronic fatigue syndrome: a randomised crossover trial, 1999, Cleare, Wessely et al

    https://pubmed.ncbi.nlm.nih.gov/9989716/ A J Cleare 1, E Heap, G S Malhi, S Wessely, V O'Keane, J Miell Abstract Background: Reports of mild hypocortisolism in chronic fatigue syndrome led us to postulate that low-dose hydrocortisone therapy may be an effective treatment. Methods: In a...
  4. Fizzlou

    ME/CFS, FM: Mitochondrial dysfunction ... cellular hypoxia, hypoperfusion, endothelial dysfunction, persistent clots, 2021, Chang, Figueredo

    Posts copied from The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS...
  5. Samuel

    Early diagnostics of autoinflammatory disorders associated with post-viral CFS and cognitive impairments in chronic ... herpes, 2021, Nesterova et al

    vvv Source: Medical Immunology Vol 23, #4, pp 975-980 Date: July/August 2021 URL: https://www.mimmun.ru/mimmun/article/view/2439 https://www.mimmun.ru/mimmun/article/view/2439/1456 Early diagnostics of autoinflammatory disorders associated with post-viral chronic fatigue...
  6. Sly Saint

    Podcast: Episode 37: Finding Answers for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)

    Opinionated Science Episode 37: Finding Answers for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Mesothelioma November 5, 2021 ME/CFS first 17 minutes...
  7. Andy

    Occupational Therapists for ME (OTs for ME)

    I don't know anymore about them other than spotting that they have a Facebook page, https://www.facebook.com/OTsforME, and group, https://www.facebook.com/groups/otsforme/, and a Twitter account, https://twitter.com/OTsforME
  8. Hoopoe

    Do postviral syndromes in children have a tendency to appear with a delay?

    https://www.haaretz.com/israel-news/the-new-frontier-israeli-hopsitals-contend-with-long-covid-in-children-1.10280661 Has anything similar been reported in ME/CFS?
  9. Dolphin

    Investigating the neural underpinnings of Chronic Fatigue: A multi-modal approach, 2021, Rayhan (PhD thesis)

    Source: Howard University Date: April 16, 2021 URL: https://www.proquest.com/openview/c0a823ec519e5e6acdd89c29ff4a4b2a/1 Investigating the neural underpinnings of Chronic Fatigue: A multi-modal approach ---------------------------------------------------------- Rakib U. Rayhan -...
  10. Daisy

    Benefits outweigh the risks: a consensus statement on the risks of physical activity for people living with long-term conditions, 2021, Reid et al

    Consensus statement Benefits outweigh the risks: a consensus statement on the risks of physical activity for people living with long-term conditions, 2021, Reid et al British journal of sports medicine https://bjsm.bmj.com/content/early/2021/11/03/bjsports-2021-104281 Consensus statement...
  11. John Mac

    United Kingdom: Petition Change.org: for a new mechanism by which M.E/C.F.S patients can report harms.

    https://www.change.org/p/department-of-health-and-social-care-we-demand-the-creation-of-a-new-mechanism-by-which-m-e-c-f-s-patients-can-report-harms-ab215021-5d66-4f72-9ba2-06a633f298f3?source_location=topic_page
  12. SNT Gatchaman

    The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS

    Moved from Six-month sequelae of post-vaccination SARS-CoV-2 infection: a retrospective cohort study of 10,024 breakthrough infections, 2021, Taquet et al @Hutan thank you, I believe it's all coming together and Long Covid will have been instrumental. The Pretorius micro-clot finding is...
  13. Hutan

    The trial endpoint issue (135 weeks)

    I thought it might be useful for us to get to grips with this issue. The GET defenders have said that NICE chose the trial endpoints it looked at incorrectly. As I understand it, NICE chose the longest followup points where possible, and in the case of PACE, that was 135 weeks. The GET...
  14. Andy

    Deficient butyrate-producing capacity in the gut microbiome is associated with bacterial network disturbances and fatigue..., 2023, Guo,Lipkin et al

    Study now published, see https://www.s4me.info/threads/preprint-deficient-butyrate-producing-capacity-in-the-gut-microbiome-of-me-cfs-patients-is-associated-with-fatigue-symptoms-2021-guo-lipkin-et-al.23117/#post-459929 for abstract and link. Preprint: Deficient butyrate-producing capacity in...
  15. Sly Saint

    Limbic Perfusion Is Reduced in Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), 2021, Xia Li et al

    Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is an illness characterized by a diverse range of debilitating symptoms including autonomic, immunologic, and cognitive dysfunction. Although neurological and cognitive aberrations have been consistently reported, relatively...
  16. Andy

    Clinical Heterogeneity in ME/CFS. A Way to Understand Long-COVID19 Fatigue, 2021,Murga et al

    The aim of present paper is to identify clinical phenotypes in a cohort of patients affected of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Ninety-one patients and 22 healthy controls were studied with the following questionnaires, in addition to medical history: visual analogical...
  17. Andy

    Multi-‘omics of gut microbiome-host interactions in short- and long-term myalgic encephalomyelitis/chronic fatigue syndrome patients, 2023, Xiong

    Study now printed, see https://www.s4me.info/threads/preprint-multi-omics-of-host-microbiome-interactions-in-short-and-long-term-myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-2021-xiong.23022/#post-459931 for abstract and link Preprint: Multi-omics of host-microbiome interactions in...
  18. Science For ME

    NICE ME/CFS guideline - Stakeholder submissions to the draft and NICE responses - published 29th October 2021 - discussion thread

    Stakeholder submissions and NICE responses This thread is for discussion of the published tables of stakeholders submissions to the NICE ME/CFS guideline draft, which also include responses from NICE. The submissions were made by stakeholders in December 2020. These tables with both the...
  19. freddyV

    Chinese Herbal Medicines - discussion thread

    Posts moved from Exploring the scope of homoeopathy in combating the unfortunate consequences of post-COVID-19 survivors based on non-COVID conditions, 2021, Dixit After twelve or so years struggling with ME and trying to stay on top of my working life, I was pleased to see the arrival of a...
  20. Wyva

    Saliva fatigue biomarker index as a marker for severe ME/CFS in a community based sample, 2021, Jason et al

    ABSTRACT Objective The prevalence of pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) has been estimated from an ethnically and sociodemographically diverse community-based random sample of 10,119 youth aged 5–17. We assessed whether a salivary biomarker of fatigue could...
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